Please visit our MS learning channel on Youtube, which provides hundreds of topics from our education programs, that were video-recorded and archived here: www.youtube.com/msviewsandnews
-- Scroll left side of this blog for needed resources. Also, use our 'search by topic' tool, to find specific information.
Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.
CHAMPIONS TACKLING MS - AWARDS Dinner, Honoring Aaron Boster, MD and Jon e. Glaser, DDS - now open for registration. Visit www.events.msvn.org
Saturday, January 24, 2015
Just a 20-minute brisk walk each day can lower odds of early death, researchers add.
Just 20 minutes of exercise a day can lower your risk of early death by 30 percent, the study found.
A MS Patients' Story: Tax Season 2014: Filing SSDI plus Earned Income and How I Totally Screwed Up 2013 -
Small initial trial showed improvement for people with relapsing-remitting MS
The stem cell treatment was most effective for patients with relapsing-remitting MS.
A therapy that uses patients' own primitive blood cells may be able to reverse some of the effects of multiple sclerosis, a preliminary study suggests.
The findings, published Tuesday in the Journal of the American Medical Association, had experts cautiously optimistic.
But they also stressed that the study was small -- with around 150 patients -- and the benefits were limited to people who were in the earlier courses of multiple sclerosis (MS).
"This is certainly a positive development," said Bruce Bebo, the executive vice president of research for the National Multiple Sclerosis Society.
There are numerous so-called "disease-modifying" drugs available to treat MS -- a disease in which the immune system mistakenly attacks the protective sheath (called myelin) around fibers in the brain and spine, according to the society. Depending on where the damage is, symptoms include muscle weakness, numbness, vision problems and difficulty with balance and coordination.
But while those drugs can slow the progression of MS, they can't reverse disability, said Dr. Richard Burt, the lead researcher on the new study and chief of immunotherapy and autoimmune diseases at Northwestern University's Feinberg School of Medicine in Chicago.
His team tested a new approach: essentially, "rebooting" the immune system with patients' own blood-forming stem cells -- primitive cells that mature into immune-system fighters.
The researchers removed and stored stem cells from MS patients' blood, then used relatively low-dose chemotherapy drugs to -- as Burt described it -- "turn down" the patients' immune-system activity.
From there, the stem cells were infused back into patients' blood.
Friday, January 23, 2015
“Global Multiple Sclerosis Epidemiology and Patient Flow Analysis - 2015”
Source, click here
Financial Aid for Animals
So many of us have Pets, and many with or affected by MS need assistance when paying bills. Especially when our pet (Our friend) also has an illness or handicap.
These organizations help owners of handicappedpets that cannot afford vet care and rescue organizations and homeless pets.
Handicapped Pets Foundation
The Newly-Formed Handicapped Pets Foundation helps caretakers get the financial support they need to get wheelchairs for their pets. Accepted applicants are posted on the website and receive donations for individuals and organizations. The non-profit has events and fund-raising drives to benefit the animals in need.
American Animal Hospital Association
The heartbreak happens all too often -- a pet owner is unable to afford treatment and their sick or injured companion animal pays the price. If the owner is elderly, disabled or on a fixed income, the cost of care may be too much of a stretch for their pocketbook. Perhaps they have been victimized by crime, property loss or a job layoff and are experiencing a temporary financial hardship ? making it too difficult to afford pet care. And some animals, brought to clinics by Good Samaritans, don't have an owner to pay for treatment. Whatever the situation, the fact remains the same: When sick or injured animals are unable to receive veterinary care, they suffer. Through the AAHA
Helping Pets Fund, veterinary care is possible for sick or injured pets even if they have been abandoned or if their owner is experiencing financial hardship.
CareCredit, the leader in patient/client financing, has helped more than 3 million patients/clients get the treatment or procedures they needed and wanted. With a comprehensive range of plan options, for treatment or procedure fees from $1 to over $25,000, we offer a plan and a low monthly payment to fit comfortably into almost every budget.
Feline Veterinary Emergency Assistance (FVEAP)
The NEED & The HELP: Seniors, People with disabilities, People who have lost their job, Good Samaritans who rescue a cat or kitten - any of these folks may need financial assistance to save a beloved companion."
The Feline Veterinary Emergency Assistance Program is a nonprofit 501 (c)(3) organization that provides financial assistance to cat and kitten caretakers who are unable to afford veterinary services.
Helping people help pets. To better the lives of sick, injured and abused companion animals. We are dedicated to insure that no companion animal has to be euthanized simply because their caretaker is financially challenged.
The Pet Fund
The Pet Fund is a registered 501(c)3 nonprofit association that provides financial assistance to owners of domestic animals who need urgent veterinary care. Often animals are put down or suffer needlessly because their owners cannot afford expensive surgery or emergency vet visits. Companion animal owners must often make the difficult decision to put an animal down or neglect urgent medical needs because of the costs involved. The purpose of the Pet Fund is to work towards a future where decisions about companion animal medical care need never be made on the basis of cost."
Special Needs Dobermans
Doberman911.org is a website for Special Needs Dobermans (SND). They are an organization of people with a common goal of helping senior and special needs Dobermans. That need may be financial or it may be only information and/or moral support for the owner of a Doberman with a serious illness or injury. They will also aid in re-homing and fostering senior Dobermans. These Dobermans may be shelter rescues or they may already be much loved companions with a special need. Financial aid may be through donations or through avenues such as online auctions. Every precaution will be taken to assure that the need is real.
RedRover Relief provides financial assistance grants and additional resources so pet owners and rescuers can care for animals who need urgent veterinary care. Visitwww.redrover.org/grants for eligibility requirements and application. RedRover also offers financial assistance for victims of domestic violence and their pets. To learn more about this program, visitwww.redrover.org/domestic.
UK Assistance with Veterinary Bills
Most of us can cope with the financial commitment involved in the day to day care of our pets. However, how many of us come out in a cold sweat when our pet is ill or injured and we know we have to take it to the vet? Most of us are fortunate enough to be able to afford it but, some of us who love our animals dearly cannot. Unfortunately we do not have a PDSA or a RSPCA Centre within our area, but there are a few
charities who may be able to help.
Other Groups Who are Breed or Injury Specific:
Dachshunds Needing IVDD surgery
LabMed: Rx For Rescued Labs
In Canada: The Farley Foundation. The Farley Foundation is a charitable organization, founded in 2001, that subsidizes non-elective medical care for pets of seniors receiving the Federal Guaranteed Income Supplement (GIS) and persons with disabilities receiving the Ontario Disability Support Payment (ODSP). Farley funding is both applied for, and disbursed through eligible veterinary practices across Ontario. http://www.fborfw.com/features/ffoundation/
Pet Diabetes - for diabetic animals in need
Pet Samaritan Medical fund - based in Colorado
Feline Veterinary Emergency - Providing financial assistance to cat and kitten caretakers who are unable to afford veterinary services.
The Pet Fund - Provides financial assistance to owners of domestic animals who need urgent veterinary care.
United Animal Nations - Helps homeless or recently rescued animals suffering from life-threatening conditions that require specific and immediate emergency veterinary care.
UK Assistance with Veterinary Bills
Other Groups Who are Breed or Injury Specific:
Dachshunds Needing IVDD surgery
Special Needs Dobermans
Westie Med - - Westies in need of medical attention is our Mission - to distribute financial aid to injured or ill rescue Westies.
Please contact HandicappedPets.com if you are aware of other agencies that should be included on this list.
Thursday, January 22, 2015
Written by Dave Bexfield
Gang, I apologize if my recent writing has lacked its typical carefree effervescence and squish-MS-like-a-bug attitude. Gains from my 2010 stem cell transplant to halt my aggressive multiple sclerosis are slipping. Walking endurance has waned and numbness has lurched back into my limbs like unwelcome zombies (not that zombies are ever welcome). For those of you who read between the blurry lines over the past months and wrote to check in on me, I deeply appreciate those offers of a shoulder.
The transplant saved my life--I was, and still am, beyond fortunate. For four years it helped me feel almost normal again. And I purposefully took every advantage, living life with my right foot firmly on the accelerator, figuratively and literally. It allowed me to drive again, travel the world again, and even snowboard again. But I knew that I might have to pen this letter to all of you one day.
There are no regrets. Even though today I am walking noticeably slower than I was a year ago, I am still walking. Even though my numbness has increased, I can still feel. Indeed, I'm still far above baseline, when I had to sit to brush my teeth, struggled to pick up a pint of IPA, and had to ask Laura to clip my nails and button my shirt and drive me everywhere.
I urge you not to be disappointed. The transplant was a success for a majority of the trial participants and me: no relapses, no new or enhancing lesions, and a reversal of some disability. If I go back on treatment, so be it. A stumble in medical science is never a step backward, it is a stubborn shuffle forward. It gets us a little closer to finding that maddeningly elusive cure for our shared disease. Indeed, the future is squinty bright in MS research. (Speaking of which, have you done your part and registered with the patient database iConquerMS? Consider this a friendly reminder.)
I am committed to keep dreaming big dreams and reaching for those stars. Please join me. And I don't want to hear any guff about how stars are just massive, luminous spheres of plasma held together by their own gravity and can have temperatures exceeding 50,000 degrees Kelvin, which would be rather detrimental because of MS heat sensitivity and all. Bah, turn on the AC or put on a cooling vest and get on with it. We have to keep reaching. We'll get there. I am certain of it.
For me, it's time to research and potentially prepare for a Plan F--or more specifically, attempt number six--to slow down this disease. I don't yet know what route I'll take, or if I'll hold to the status quo for the time being, but I do know that quitting is not an option. I'll exhaust the alphabet if I have to.
Life will forever throw challenges our way, testing our mettle, our fortitude, our resoluteness to persevere. That's just life... life with or without MS. It is how we absorb those challenges--not just physically, but mentally--that reroute our destinies. Never forget, hope still reigns. Tomorrow I celebrate an unforgettable 22 years of being married to Laura. She's my anchor, and I am hers. Always have been. Always will be.
I've posted a more detailed update of my experience on the forum so this note can reach beyond those who get our newsletter. Be active, stay fit, and keep exploring. I sure as hell intend to!
Okay, my fellow MSers, are you sick of sitting on the sidelines like powerless spectators observing a do or die contest that will determine your very own fate, waiting anxiously for neurologists, researchers, and pharmaceutical companies to ride to the rescue? Are you, like me, sick and tired of being sick and tired, weary of having very little ability to do anything about the situation except listen to the same old same old, held hostage by a status quo that offers more questions than answers? Do you just for once want to pick up a club and give MS a good smash in the kisser, to kick the fiend squarely where the sun don’t shine, to metaphorically extract a pound of flesh even as the disease quite literally attacks your own? Do you want to actively help conquer MS? Well, take note, that chance has arrived, and you need not even get up from your computer to help wage war on our mutual enemy, multiple sclerosis.
Enter iConquerMS, a new patient driven research initiative that allows those living with MS to participate in a groundbreaking research effort aimed at amassing the most comprehensive database about MS patients and the manifestations of their disease ever created. Through the web based iConquerMS portal (click here) patients can participate in a series of surveys and questionnaires that will soon form the most complete repository of information about the disease and those who suffer from it in existence. Researchers from around the globe will be granted access to this data, a wealth of information that could very well reveal brand new insights about the disease itself and those who suffer from it. In addition, the iConquerMS website provides patients and those who care about them the ability to address researchers directly with questions and suggestions, thereby helping to shape the future of MS research.
But first things first - what exactly is iConquerMS? The face of iConquerMS is a user-friendly website, iConquerMS.org (click here), designed to allow MSers to easily contribute information about themselves and their disease. The driving idea behind iConquerMS is the concept of Big Data, a pooling of vast amounts of vital information that can reveal patterns and trends that otherwise wouldn’t be detected. Just as the intricate actions of the tides can’t be determined by observing a single drop of water but instead only by studying the oceans themselves, the complexities of multiple sclerosis may very well best be revealed by the pooling of data from tens of thousands of patients. Big Data-enabled MS research may help answer questions such as: what causes the disease and what strategies might prevent it, cure it, or arrest its progression; which treatments work best in which individuals; and what factors affect the progression of the disease.
The initial 18 month funding for iConquerMS has been provided by the Patient Centered Outcomes Research Institute (PCORI), an independent nonprofit organization authorized by Congress in 2010. Tasked with funding research that will provide a chance to overcome the challenges presented by traditional models of medical research, PCORI is working to close the gaps in evidence needed to make the paradigm shifting medical breakthroughs so urgently needed to rid the world of many dread diseases. - Continue