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Saturday, August 1, 2015
For those who fall into these categories and who would like some assistance, there is a Clinical Trial Notification Program that can let you know about multiple sclerosis clinical trials for which you may qualify.
The Clinical Trial Notification Program (CTNP) is a project of MS News Today, an online digital publication that covers science and research news related to multiple sclerosis. Its editorial staff consists of researchers, medical professionals, journalists, and scientists.
MS Exercise Challenge
RSVP to attend the Next MS Symposium in Atlanta - a welcomed learning experience for many affected by Multiple Sclerosis
So much to learn from this Years MS Views and News, MS Symposium in Atlanta, Ga. including a topic designed for the Caregiver
This is a multiple topics educational program with (4) different presenters
Speakers include: Dr. Ben Thrower, MD
Tracy Walker, ARNP
Mark Biernath, PA
Kristie Salerno Kent
To register for this event on September 12th , either click here or click on the program flyer
See the patient-made video showing below the flyer
Our final Speaker of the day is Kristie Salerno Kent a known patient advocate who also created this video:
Kristie will have other things to share with you when she speaks at this program
PLEASE SHARE this Program posting with others affected by MS in the Atlanta region
To register for this event, either click here or click on the program flyer
Inclusion of data-gathering provision is vital to future MS research
Hackensack, NJ, July 10, 2015: The member organizations of the Multiple Sclerosis Coalition (MSC) congratulate the House on the passage of the 21st Century Cures Act - #Cures2015. The MSC specifically applauds the inclusion of H.R. 292 as a provision of the Act, the goal of which is to establish a data system to track the incidence and prevalence of neurological diseases, including multiple sclerosis.
This provision will help advance MS research by establishing a data system to collect the size and makeup of the MS population. Currently, no one has an accurate account of how many people in the United States have MS or the demographic characteristics of those living with MS. As a result, MS researchers are working at a distinct disadvantage because they are operating without basic information about the disease. By establishing this data system, researchers will be supplied data that may point to new environmental triggers, which could lead to a better understanding of the disease and new disease targets.
“The collection of this data is vital to the future of MS research,” said Multiple Sclerosis Coalition President Lisa Skutnik. “We are proud to support this legislative effort to accelerate the discovery, development and delivery of treatments and thank the House Energy and Commerce Committee for their leadership on behalf of people with MS and other illnesses.”