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Saturday, November 7, 2015
- Results from clinical trials in new approaches to treating progressive and relapsing MS, wellness and lifestyle research, and myelin repair strategies took center stage during the European Committee for Treatment and Research in MS (ECTRIMS) meeting held in Barcelona, Spain in early October.
- More than 9,000 participants convened to share progress in understanding and treating MS.
- Read blogs from the meeting
- Explore scientific summaries (abstracts) on the ECTRIMS Website. Search specific topics of interest or sessions
Many studies presented showed the continued benefit and safety of available therapies, as well as more evidence that early and ongoing treatment with a disease-modifying therapy has long-term benefits for controlling disease activity, delaying accumulation of disability and protecting quality of life. A new MS Brain Health initiative is promoting the message of minimizing delays in the diagnosis and time to treatment to reduce the risks of MS progression.
Minocycline Before MS Diagnosis (CIS): Dr. Luanne Metz (University of Calgary) reported on a Phase III trial of a relatively inexpensive oral antibiotic called minocycline, which is often prescribed to treat acne. In addition to its bacteria-killing action, it reduces inflammation. The trial tested minocycline against placebo in 144 people who had clinically isolated syndrome. Results showed that over 6 months, those taking twice daily minocycline had a 44.6% reduced risk of developing definite MS, compared to those taking placebo. There were no unexpected side effects outside of the most common that occur with this antibiotic, which carries several warnings including that it is not to be taken during pregnancy. (Abstract 227)
Restoring Function: Nervous System Repair
Friday, November 6, 2015
information provided by MSVN
Watch this news video about an MS Patient and of Medical Marijuana found here
Multiple sclerosis (MS) flare ups are caused by changes in melatonin levels in the spring and summer seasons, according to findings published in Cell. Researchers from Brigham and Women’s Hospital in Boston, Massachusetts studied 139 patients with relapsing remitting MS in order to determine the relationship between seasonal changes in disease activity in MS and melatonin levels. The investigators examined improvement in symptoms and seasonal factors as proposed links to MS disease activities, such as vitamin D levels, UV incidence, and upper respiratory tract infections.
“We wanted to see what environmental factors would reveal to us about this disease,” study leader Francisco Quintana, PhD, from the Ann Romney Center for Neurologic Diseases, explained in a press release. “We knew that MS disease activity changed with the seasons.
What we’ve uncovered offers an explanation for why that is the case.” -
Continue Reading from HCPLIVE
Thursday, November 5, 2015
ReThinking MS - (2) Event Locations - Nov 14th in San Antonio, TX and December 5th in Coral Gables, FL.
November 3, 2015
Pilot Study shows Promise for Improving brain function, neural plasticity and balance in MS patients
November 2nd, 2015
Read on »
Tuesday, November 3, 2015
HACKENSACK, N.J. - Nov. 3, 2015 - PRLog -- The Multiple Sclerosis Coalition recently voted to admit a new associate member, MS Views and News (MSVN). As an associate member, MSVN will work cooperatively with the eight member organizations of the Coalition – comprised of the leading advocacy, education, and support organizations for multiple sclerosis in the United States – to benefit all individuals with MS
Member organizations of the MS Coalition are: Accelerated Cure Project, the Consortium of MS Centers, Can Do Multiple Sclerosis, the International Organization of MS Nurses, Multiple Sclerosis Association of America, Multiple Sclerosis Foundation, National Multiple Sclerosis Society, and United Spinal Association. Find the Multiple Sclerosis Coalition online at http://ms-coalition.org or visit MSC on Facebook at www.facebook.com/
About MS Views and News:
MS Views and News is dedicated to the global collection and distribution of information concerning multiple sclerosis. Through partnering relationships, MSVN provides education, advocacy and service to empower and enhance the quality of life of the MS community.
About the Multiple Sclerosis Coalition
The Multiple Sclerosis Coalition was founded in 2005 by three independent multiple sclerosis organizations in an effort to work together to benefit individuals with MS. Since that time, the MSC has grown to eight member organizations and one associate member organization, all of whom provide critical MS programs and services. The Multiple Sclerosis Coalition's mission is to increase opportunities for cooperation and provide greater opportunity to leverage the effective use of resources for the benefit of the MS community.
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By Matt Allen G—October 29, 2015
I have only had multiple sclerosis (MS) for about 5 years. Despite that short amount of time I have had an “action packed” experience with this disease as my MS is (from what I am told) very aggressive. I have not had a very “stable” 5 years, and so, people often ask me how I do it. How is it that I have not lost my mind and that I often still maintain a positive attitude? Well that is easy, I am very stubborn.
Yes, I know, being stubborn is usually looked at like a bad thing, a bad characteristic and before I was diagnosed with MS it was probably one of my worst qualities. It can often get you into trouble; someone would tell me I should not do something and I had to do it for whatever reason. After being diagnosed at the early age of 20, I was able to turn that trait into a tool to help fight my MS and get through tough times. I have no issues with admitting that I am fueled little by hope and fate like many others may be. Nope, I am a realist (and I know there is a very fine line between being a realist and a pessimist) and for me it is all about my stubbornness. There are many times where I just want to curl up in bed and just give up but I can’t, I am just too stubborn, if I give in like that I lose against MS and because I am so stubborn I just can’t let myself lose! I was the kid who when everyone else in my group of friends said “that can’t be done, that is just too dangerous/difficult/whatever” I took it as a challenge and said “watch me”. Of course there were times where I did achieve what I was told I could not do (fueling my ego) but there were also many times where I failed, but what is important is that I tried without doubting myself. You could say that my attitude was a bit naïve but guess what? It has always worked for me.When times get tough I have to just say “ok, what do I do next?” and just dive into things. Of course I have no idea what that will result in but in my minds eye, if I give up just for a second, MS wins and as far as I am concerned? MS will never get that luxury from me.