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Sunday, December 11, 2016

“The passage of the 21st Century Cures Act will accelerate the discovery, development and delivery of life-changing treatments and improve the day-to-day lives of people with multiple sclerosis


                                                                  
  

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The passage of the 21st Century Cures Act will accelerate the discovery, development and delivery of life-changing treatments and improve the day-to-day lives of people with multiple sclerosis,” said Cyndi Zagieboylo, President and CEO of the National MS Society.



The bill includes a number of the MS movement's top priorities: 

  • Establishment of a data collection system to track the incidence and prevalence of neurological conditions, otherwise known as the Neuro Data bill;
  • $4.8 billion in new funding for the National Institutes of Health and $500 million for the Food and Drug Administration to bring new treatments to patients;
  • A six-month extension protecting access to power complex rehabilitation technology (CRT)wheelchair accessories, which are fundamental components of the chair such as tilt-and-recline systems and specialized seat cushions.
“I applaud Congress for creating a pathway for promising innovation through the establishment of a data collection system for neurological diseases; providing new funding for the NIH and the FDA; protecting access to CRT wheelchair accessories and more. This groundbreaking legislation truly brings us one step closer to ending MS,” said Zagieboylo.
 


“This will be a game-changer,” said MS District Activist Leader Frank Austin of Pennsylvania. Austin was diagnosed with MS in 1999 and was deeply involved in the passage of the bill. “I’ll continue to advocate over the next few years so the funding is appropriated and the bill is effectively implemented.”

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