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Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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Saturday, January 9, 2016

Dancing and the Brain

Dancing and the Brain
Couple ballroom dancing
Millions of Americans dance, either recreationally or professionally. How many of those who are ballroom dancing, doing the foxtrot, break dancing, or line dancing, realize that they are doing something positive for their bodies—and their brains? Dance, in fact, has such beneficial effects on the brain that it is now being used to treat people with Parkinson’s disease, a progressive neurological movement disorder.
“There’s no question, anecdotally at least, that music has a very stimulating effect on physical activity,” says Daniel Tarsy, MD, an HMS professor of neurology and director of the Parkinson’s Disease and Movement Disorders Center at Beth Israel Deaconess Medical Center (BIDMC). “And I think that applies to dance, as well.”

Learn More



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Thursday, January 7, 2016

Could processed foods raise the risk of autoimmune diseases?



 IF you are already struggling with your New Year's resolution to eat healthier, a study published in the journal Autoimmunity Reviews may help you get back on the ladder; researchers suggest that eating processed foods may weaken the intestines in a way that raises the risk for autoimmune diseases, such as type 1 diabetes, celiac disease and multiple sclerosis.

[A woman removing a meal from a microwave]
Researchers identified at least seven food additives that weakened the intestine's immune response to toxins, which could lead to autoimmune diseases.
After a hard day at work, it is tempting to reach for foods that are quick and easy to prepare. For many of us, this means turning to processed foods, such as microwave meals, which are usually high in fat, salt, sugar and other additives.





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3 Ways to Recover from the Holidays

photo
Elissa Holzman
Health Coach, Health/E, LLC




The holidays are over and it’s time to get back to normal life! But for a person with Multiple Sclerosis, it can take extra time to recover – even from happy events. During the holiday season, schedules are disrupted, exercise routines are thrown off, and regular nutritious foods are tucked away while treats are bountiful and hard to resist. And since 80% of people living with MS also live with fatigue, all the excitement can be especially exhausting.



Here are 3 tips that will help you enjoy the time following the holiday season.



· Take a break – The best way to avoid a physical meltdown is to head it off. Schedule time for yourself each day to rejuvenate – take a 20-minute nap or just close your eyes, rest and read a book, or sit quietly and meditate.



· Fill up on healthy foods – There will be sweets and treats wherever you look, so put them away to remove temptation. On your countertops, put out healthy fuel – like brightly colored vegetables (carrots, oranges, peppers) – and your body will thank you.



· Keep it real – It may take some time to get back to where you were before the holidays, but stressing about it doesn’t help. Spread out your commitments and be realistic about what’s best for you so that you’re not overscheduled.



These tips can help you find your energy in a positive and enjoyable way, and to enjoy the time after the holiday season is over.



Elissa is holistic health coach and founder of Health/E. She works with individuals to help them find energy, strength and balance through nutrition, exercise and self-care. Elissa gives workshops throughout the NY area, and runs support groups for the National MS Society, in addition to working one-on-one with clients.



Elissa can work with you to create meaningful change in your life – to help you reach your goals, improve your diet, increase energy and kick your sugar addiction. Find out more by scheduling a complimentary breakthrough session at 917-941-9170 or elissa@healthelissa.com.









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Review Highlights Long List of Unmet Needs For MS Patients


In a special feature published in the journal American Health & Drug Benefits, authors Stanton R. Mehr, President of SM Health Communications, and Marj P. Zimmerman, President of RxDirections, discuss the many unmet medical needs multiple sclerosis (MS) patients still face in dealing with the disease. Over the past few decades, research focusing mainly on the prevention and reduction […]

Read More »






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Entropy in MS Patients’ Brains Seen to Mirror Level of Disability


A recent study published in the journal PLOS ONE described a new technique with the potential to spot brain changes in multiple sclerosis (MS) before the onset of symptoms. The technique, which measures brain dynamic activity and brain entropy, may lead to the development of diagnostic — and possibly prognostic — biomarkers for MS. The use of brain imaging […]

Read more»




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Wednesday, January 6, 2016

“Never Give Up” MS Scholarship Foundation

The Mary J. Szczepanski Never Give Up” MS Scholarship Foundation is finishing its 16th year and offers annual scholarships to seniors at Catholic Central, Covenant Christian, Kenowa Hills and Northview High Schools in the Grand Rapids, MI area for creatively raising funds for Multiple Sclerosis.  In the fall of 2008, all United States high schools and all United States universities in 2010 were invited to participate.  This extraordinary program has touched the lives of many people in our communities across the United States and is constantly raising awareness to this terrible disease.

The program was developed in 1997 to honor my mom, who lived with MS for 38 years.  My wife, also named Mary, has been living with MS for 25 years.  One or two $500.00 scholarships are awarded at each high school, one to a male and female senior who raises the most funds for MS. Each school’s program is set up differently.  A beautiful engraved plaque is also presented to each winner to commemorate his or her accomplishment.  Nine scholarships are offered to high school students annually and one offered to college students annually.
All money raised by the students, over $23,000 to date, has been donated to Accelerated Cure Project for research.


Rick A. Szczepanski - Founder                                                                       

1379 Kinney Ave. NW * Grand Rapids, MI  49534 *  (616) 791-2069 * www.msscholarship.org




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Video: The Basics of MS Treatments now as opposed to 20 years ago - {17:38}


Published November 28, 2015 -
Brian Steingo, MD of Neurology and MS research describes the current MS Treatments


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What You Need To Know About Tecfidera®

Published on Jun 11, 2013
This video was created in June 2013 and features Gabriel Pardo, MD and Bruce Cohen, MD. Information is accurate as of then. Please visit http://www.tecfidera.com for the most updated information.




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What You Need to Know About Aubagio®

Published on Jan 11, 2013
Featuring Dr. Jim Bowen and Dr. Lily Jung Henson. Information in this video was accurate as of its creation in January 2013; please visit  http://www.aubagio.com for the most updated information.





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See How Copaxone® Works




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Informative Video on Treating MS: The long road to drug development - Video was First published in 2014

transformational treatment for multiple sclerosis (MS) - the result of over three decades of research in Cambridge, UK - this video was first published on May 27, 2014



 
Campath 1H - Campath's name came from Cambridge Pathology


For MS, this medication is known as LEMTRADA


This video is being provided now, so that persons affected by MS can see the the development and process in making medications and as stated by an MS RN that sent this to us: It is nearly 2 years old but is perhaps one of the best explanations of the science I have seen or heard to date. CB




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Gilenya: What is it and How Does it Work?

Uploaded on Oct 20, 2010
MS Learn Online is the National MS Society's online educational webcast series. This video features part one of a two-part interview with Aaron Miller, MD, who discusses Gilenya, a new oral therapy for multiple sclerosis. Dr. Miller explains how the medication works, clinical trials findings, and potential side effects. 





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Symptom Co-occurrences Associated with Smoking Among Individuals with Relapsing-Remitting Multiple Sclerosis

Pamela NewlandRN, PhD, CMSRNLouise FlickDrPH, MSN, MPEHong XianPhD;Florian P. ThomasMD, MA, PhD
From the Goldfarb School of Nursing at Barnes Jewish College, St Louis, MO, USA (PN); College for Public Health and Social Justice (LF, HX) and Department of Neurology (FPT), Saint Louis University, St. Louis, MO, USA; and VISN 15 Regional MS Center of Excellence, St. Louis VA Medical Center, St. Louis, MO, USA (FPT).
Correspondence: Pamela Newland, RN, PhD, CMSRN, Goldfarb School of Nursing at Barnes Jewish College, 4483 Duncan Ave., St Louis, MO 63110; e-mail: .
Background: The impact of tobacco on multiple sclerosis (MS) disease process and symptoms is complex and not clearly understood. Tobacco may be used to self-treat symptoms but also appears to intensify others. Studies to date have not characterized co-occurring symptoms (symptom patterns) and their association with tobacco use.
Methods: This study describes tobacco use among patients with relapsing-remitting MS (RRMS) and associated symptoms and symptom co-occurrences. In this cross-sectional study, 101 participants with an average age of 43 years completed a survey adapted from the Behavioral Risk Factor Surveillance System and the revised MS Related Symptom Scale (R-MS-RS). Data reduction was performed using factor analysis on the 43 items of the R-MS-RS, and linear regression was used to detect association between symptom clusters (factors) and smoking.
Results: Using the factor analysis result, the linear regression analysis found that tobacco use is positively associated with co-occurring symptoms and symptoms of Factor 1: Mental/Emotional (anxiety, loneliness, depression, and difficulty sleeping) and Factor 4: Neuro/Autonomic (urinary).
Conclusions: Smoking is associated with patterns of symptoms. Study of MS and tobacco use over time will allow determination of the temporal pattern of tobacco use and MS symptoms.
Published Online: 2015-12-23

Source Link


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Assessing Four Quality Indicators for Multiple Sclerosis Management Through Patient-Reported Data

Assessing Four Quality Indicators for Multiple Sclerosis Management Through Patient-Reported Data

Sarah ShoemakerPhDAlyssa PozniakPhDLouise HaddenBA
From Abt Associates Inc., Cambridge, MA, USA (SS, LH); and Arbor Research Collaborative for Health, Ann Arbor, MI, USA (AP).
Correspondence: Sarah Shoemaker, PhD, Abt Associates Inc., 55 Wheeler St., Cambridge, MA 02138; e-mail: .
Background: While hundreds of quality indicators (QIs) have been developed for various chronic conditions, QIs specific to multiple sclerosis (MS) care have only recently been developed. Our objective is to examine the extent to which the self-reported care of individuals with MS meets four recently developed MS QIs related to treatment of depression, spasticity, fatigue, and timely initiation of disease-modifying agents (DMAs) for relapsing MS.
Materials and Methods: Using the Sonya Slifka Study data, we examined the proportion of the MS population who met four QIs (based on patient-reported data) in a sample of individuals with MS in 2007–2009. For the three diagnoses, meeting the QI was defined as receiving appropriate medication or seeing a provider for treatment of the diagnosis; for timely initiation, it was defined as receiving a DMA within 3 months of a relapsing MS diagnosis. We also examined differences in characteristics between respondents who met the QI versus those who did not.
Results: Our analysis found that about two-thirds of people with MS in our sample, per our pre-defined criteria, met the QIs for treatment of depression, management of spasticity, and DMA initiation within 3 months of a relapsing diagnosis, and about a fifth met the QI for management of fatigue. There were some significant differences in characteristics between respondents who met the QIs and those who did not.
Conclusions: This study provides an examination of a subset of MS QIs based on patient-reported data. Additional data sources are needed to fully assess compliance with MS QIs.
Published Online: 2015-12-22

Source Link


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Tuesday, January 5, 2016

MS Fitness Challenge considered for South Florida


MSFC has developed the MS Fitness & Wellness Specialist trainer certification for fitness professionals with American Fitness Professionals & Associates (AFPA), an internationally recognized accredited organization that has certified nearly 100,000 fitness professionals since 1994. 
The MSFC course provides trainers, coaches & health professionals with the necessary guidelines, exercise protocols, lifestyle recommendations and resources to be successful in helping clients with Multiple Sclerosis achieve a healthier lifestyle! http://store.afpafitness.com/ms-fitness-wellness-specialist-1/ 

This specialized certification prepares trainers to work with people who have Multiple Sclerosis and who are looking to control their disease through exercise and nutrition. It is promoted as well by AFAA, ACE and NASM, three of the largest fitness organizations in the world.  MSFC helps connect these trainers with people with MS nationwide through our association with the Medical Fitness Network (MFN). 

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Many have made suggestions to Stuart that exercise alone can beat MS
Stuart's response: I do not think we should claim that exercise alone will beat the disease but it would be a great complementary agent along with using with an existing Mainstream MS medication.
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I agree 100% with Stu on a complimentary approach. Exercise and even diet, although many claim "miracles", is NOT a cure. We have to be proactive and some need MS meds to help while others don't. I am very leery of the stories of how people are "healed" by a Paleo diet or some form of workout. That's nonsense or everyone would be cured!! I believe that a lifestyle of fitness, health and nutrition is a big part of battling MS and should be incorporated in every MSer's life even from a wheelchair. But I NEVER tell anyone not to take meds unless they make that choice or do so with their doctor.   – Written by David Lyons, Founder of MS Fitness Challenge – www.msfitnesschallenge.org

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There is thought to bring this Fitness Challenge to South Florida, if there are enough people interested in participating. First, we would have this take place in Palm Beach County and then maybe Broward County if the reception is warm -- Stu's Views


So, a Question for those affected by MS and living in South Florida: 
What are your thoughts for the MS Fitness Challenge?

Please reply by leaving a comment to this Blog Posting. 
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Monday, January 4, 2016

Higher-dose portions of multiple-sclerosis studies with Laquinimod drug terminated

Trucks cross in front of the Teva Pharmaceutical Logistic Center in the town of Shoam, Israel.

Teva Pharmaceutical Industries Ltd. and Active Biotech AB said Monday they were ending the higher-dose portions of two multiple-sclerosis studies with the drug Laquinimod after eight patients suffered nonfatal cardiovascular events.
The companies said the incidents occurred in the higher-dose components of a phase 3 and a phase 2 clinical trial. The lower-dose and placebo components of the tests will continue.
Phase 3 clinical trials are typically the last phase before a drug gets approval from the U.S. Food and Drug Administration.
Laquinimod is a once-daily oral drug being developed for treating multiple sclerosis and Huntington disease.
Continue reading


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How a Relapsing Multiple Sclerosis Treatment, Works -

Published on Aug 20, 2015

Looking for a relapsing multiple sclerosis (MS) treatment to help you manage your condition? Just received your relapsing multiple sclerosis diagnosis? This video shows how an FDA-approved relapsing MS oral pill treatment is thought to work in the body. Don't worry, there are no complicated scientific explanations to sit through—just a smart, informative look at the journey this medicine takes through the human body.

Along the way, you'll also learn how the immune system is supposed to work when it's functioning properly, and how it works differently in the case of people with relapsing MS. The mechanism of action for this medicine was observed in animal models.

Learn more of this medication by clicking here


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