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CHAMPIONS TACKLING MS - AWARDS Dinner, Honoring Aaron Boster, MD and Jon e. Glaser, DDS - now open for registration. Visit www.events.msvn.org

Friday, January 22, 2016

"The “Inclusion Framework” for Print Communications targeted at the Multiple Sclerosis Community


The aim of this research is to prototype an “inclusion framework” that will advance knowledge for the design community about symptoms of Multiple Sclerosis and provide them options when working on MS-related communication pieces. “Inclusion” references attitudes and behaviors that accommodate people with disabilities without restriction while “framework” is a proposed thinking model that will focus on printed communications targeted at this community.

This proposed research will result in an exploration into graphic design in printed communications and in what ways design solutions can be tailored for people with Multiple Sclerosis. The survey will take no longer than an hour to complete and is conducted online anonymously. Participants will be asked several questions in relation to both graphic design, design thinking and their Multiple Sclerosis conditions. There are no exclusionary criteria based on age, gender, nationality, race, or ethnicity. The only criteria to participate is a confirmed diagnosis of Multiple Sclerosis. All results of the survey are anonymous to ensure complete confidentiality.

click:




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Wednesday, January 20, 2016

SOPRANO"S Jamie-Lynn Sigler Reveals She Has Been Battling MS for 15 Years: 'It's Still Hard to Accept'


The actress, who just married her fiancé of almost three years, pro baseball player Cutter Dykstra, opens up to PEOPLE in this week's issue about her battle with multiple sclerosis (MS), which she was diagnosed with at 20 years old. 

"I wasn't ready until now," Sigler says of revealing her illness. "You'd think that after all these years, somebody would be settled with something like this, but it's still hard to accept."



Learn more and watch a video, found here




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Tuesday, January 19, 2016

Cancer treatment for MS patients gives 'remarkable' results

UK doctors in Sheffield say patients with multiple sclerosis (MS) are showing "remarkable" improvements after receiving a treatment usually used for cancer.
About 20 patients have received bone marrow transplants using their own stem cells. Some patients who were paralysed have been able to walk again.
Prof Basil Sharrack, of Sheffield's Royal Hallamshire Hospital, said: "To have a treatment which can potentially reverse disability is really a major achievement."
Around 100,000 people in the UK have MS, an incurable neurological condition. Most patients are diagnosed in their 20s and 30s.
The disease causes the immune system to attack the lining of nerves in the brain and spinal cord.
cells in freezer
Image captionAn MS patient's stem cells being removed from the freezer prior to transplant

Immune system 'rebooted'

The treatment - known as an autologous haematopoietic stem cell transplant (HSCT) - aims to destroy the faulty immune system using chemotherapy.
It is then rebuilt with stem cells harvested from the patient's own blood. These cells are at such an early stage they've not developed the flaws that trigger MS.
Prof John Snowden, consultant haematologist at Royal Hallamshire Hospital, said: "The immune system is being reset or rebooted back to a time point before it caused MS."
About 20 MS patients have been treated in Sheffield in the past three years. Prof Snowden added: "It's clear we have made a big impact on patients' lives, which is gratifying."


CLICK HERE to watch a video and to continue reading



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Monday, January 18, 2016

New Study Suggests People with MS are at Increased Risk for Depression, Anxiety and other Psychiatric Disorders

Summary
  • A large-scale study from Canada suggests that people with MS have increased rates of anxiety, bipolar disorder, depression, and schizophrenia compared to people without MS.
  • Among people with MS, women were more likely than men to develop depression, anxiety disorder, and bipolar disorder, while men were more likely than women to develop schizophrenia. Although women with MS were more likely to develop depression than men, men developed depression at a much higher rate compared to men without MS. 
  • This study provides new information about the risks of psychiatric disorders in people with MS. Recognizing and addressing issues related to mental and emotional health can greatly improve quality of life for individuals and families.
  • The National MS Society is focusing a light on psychosocial issues and emotional health in MS as part of its commitment to drive research and programs in wellness.  
  • The team (Ruth Ann Marrie, MD, PhD) published their results in Neurology (2015;85:1–8).
Details 

Background: In scientific terms, having two chronic medical conditions at once is called “comorbidity.” There is growing recognition that comorbidities may complicate the diagnosis of MS and also influence disease progression, as well as an individual’s wellness and quality of life.  It has long been known that depression and bipolar disorder are more common among people with MS than in the general population. In a recent study from Dr. Marrie and others, psychiatric disorders (depression and anxiety) were among the five most prevalent disorders occurring alongside MS. The current study specifically looks at psychiatric comorbidities in people with MS.
   
The Study: The team identified 44,452 persons with MS and 220,849 controls without the disease in administrative medical data from four Canadian provinces. They examined medical records to determine the incidence (new cases) and prevalence (all existing cases) of depression, anxiety, bipolar disorder, and schizophrenia from 1995 to 2005 among these groups.
 
The results show that the incidence and prevalence of anxiety, bipolar disorder, depression, and schizophrenia were all higher in people with MS than in people without MS in the control population. Among people with MS, women were more likely than men to develop depression, anxiety disorder, and bipolar disorder, while men were more likely than women to develop schizophrenia. Although women with MS were more likely to develop depression than men, men developed depression at a much higher rate compared to men without MS. 

Learn more by clicking here


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Progress in 2015 Toward Stopping MS, Restoring What’s Been Lost, and Ending MS Forever

Information provided by : The National Multiple Sclerosis Society



Important research progress occurred in 2015, offering new leads toward our vision of a world free of MS. The Society mobilizes people and resources so that everyone affected by MS can live their best lives as we stop MS in its tracks, restore what has been lost and end MS forever. We continue to pursue all promising paths to uncover solutions, wherever those opportunities exist, with special focus on progressive MS, nervous system repair, lifestyle/wellness and genes/environment.
 
The results of previous Society investments continue to mount, and we are committed to growing our research funding even further. In 2015 the Society invested over $53 million in 380 new and ongoing research projects and initiatives. Here is a brief summary of significant 2015 research progress and initiatives, including links to details. 
 
STOPPING MS
  • Positive results were reported from three phase 3 trials of an experimental therapy called ocrelizumab (Genentech, a member of the Roche Group), showing positive impacts in relapsing MS and, for the first time in a large-scale trial, a modest impact in primary progressive MS.
  • The Society collaborated to convene a scientific workshop to set research priorities for understanding how co-morbidities (other medical conditions) impact MS severity and clinical trial outcomes, and to explore implications for program development. Finding solutions to address co-morbidities may slow down progression, increase lifespan and quality of life of people with MS.
  • A new study uncovered a gene variation linked to response to MS therapy, which may open new treatment approaches with further research toward the important goal of personalized medicine in MS. 
  • The first generic version of daily Copaxone® (glatiramer acetate), branded “Glatopa” (by Sandoz, a Novartis company, developed in collaboration with Momenta Pharmaceuticals), was approved by the FDA and distribution began by Sandoz in June. Additional generics of this therapy are expected soon.
  • Scientists at the University of Virginia uncovered evidence of a previously unrecognized network of vessels that facilitate immune system activity in the brain. The team showed evidence of this network of “lymphatic vessels,” in both mice and people. Further research is needed to understand how and whether lymphatic vessels play a role in MS, and whether they present new opportunities for stopping MS disease activity.
  • Results were published from a Phase 3 Trial of daclizumab high-yield process (Zinbryta™) in relapsing MS, showing it could significantly reduce relapse rates and disease activity observed on MRI scans over the course of 2 to 3 years. (Biogen and AbbVie have applied to regulatory agencies in the U.S. and Europe to obtain marketing approval to treat people with MS.)
  • The 2015 John Dystel Prize for MS Research went to Prof. Alastair Compston (University of Cambridge) for driving breakthroughs in therapeutic immunology and genetics.  
 Focus Area - Progressive MS:
  • clinical trial co-funded by the Society of a repurposed oral epilepsy therapy called phenytoin showed promise for protecting the nervous system. Neuroprotection is a leading strategy for slowing down or stopping progression.
  • While disappointing results were announced from major trials of Tysabri (natalizumab)‎ in secondary progressive MS and Gilenya (fingolimod)‎‎ in primary progressive MS, learnings from these trials have advanced our understanding of the processes that lead to progression and will inform future clinical trial designs.
  • study found that MS progressed faster in those who continue to smoke cigarettes compared to those who quit after an MS diagnosis. This may be explained in part by a Society-funded study showing that mice exposed to smoke showed increased inflammation and oxidative stress.
  • The MS Outcome Assessments Consortium had its 3rd annual meeting with the FDA, and added new clinical trials data and partners in this global effort to develop a tool that will provide a sensitive way to detect the benefit of potential treatments that slow or reverse MS progression.
  • The International Progressive MS Alliance held a scientific meeting on MS pathophysiology, funded 11 new collaborative network planning grants, and has grown to 14 member societies and pharmaceutical participation through the Industry Forum.
 
RESTORE AND REPAIR

LEARN MORE





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Esclerosis Múltiple: Información en Español

The information found here in Spanish is offered through the National Multiple Sclerosis Society


Bienvenidos a este su centro de información sobre la esclerosis múltiple (EM). Aquí hallará información sobre diagnóstico y tratamientos, manejo de síntomas y asuntos laborales, así como información para cuidadores y niños. También hallará transmisiones educativas a través de la Internet, libros y enlaces a otros sitios educativos en la Internet. Para nuestras familias bilingües, cada título tiene su traducción en inglés y el enlace a su respectivo informativo (de así haberlo).

Si desea mayor información o para enterarse de los programas y servicios que se ofrecen, incluyendo nuestro programa nacional de educación por correo en español "Saber es Poder" (Knowledge is Power - KIP en inglés), por favor llame al 1-800-344-4867.

Visítenos a menudo. Constantemente revisamos y añadimos recursos e información sobre temas importantes para usted y su familia.




Bienvenidos: Sociedad Nacional de Esclerosis Multiple

Sobre la esclerosis múltiple


para continuar, haga clic aquí



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MS Views and News:  provides education, information and resources 
for persons affected by MS
Keep current with Multiple Sclerosis news and information 
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