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Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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Saturday, April 23, 2016

Emotional Adjustments for newly diagnosed and seasoned

                                                                  

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Take time to grieve

“Will I end up in a wheelchair?” It’s the first question many people ask when told they have MS. The use of any type of mobility device is often viewed as the hallmark of disability. However, canes, walkers, motorized scooters, or wheelchairs help people live active lives. They promote independence, conserve energy, and generally make life easier. Getting used to the idea of using them can be hard but it is the first step toward staying fully mobile.
When walking becomes difficult, people need to grieve. It’s normal to feel sad and angry about a limitation that alters one’s life. Changes of this kind force people to develop a different picture of themselves, and changing self-image is never easy.
The grieving process also involves tackling some difficult questions:
  • Who am I now that I can no longer do things the way I used to?
  • What are my goals now and what will they be in the future?
  • What changes do I need to make? What are my options?
New choices need to be made. The task may feel overwhelming, and I would urge people who feel this way to talk it over with a doctor or a counselor. The National MS Society can refer callers to counselors who are familiar with these issues.

Energy conservation

Many people with MS resist using mobility aids for fear that they will become dependent on them—that they are “habit forming.” They think once a person sits down, she or he may never get up again. And sometimes well-meaning family members or friends insist: “You can still walk—you don’t need a mobility aid yet.”
This is a distorted view of the reality of MS fatigue. Why use up precious energy struggling to walk when you can use it for something more productive—or fun?
Energy is one of our most valuable resources. People with MS use mobility aids to conserve this precious commodity. Mobility devices can get them where they want to go while saving enough energy to be productive—and enjoy themselves—once they get there. A person might use a cane or nothing at all on the best days, and go with a walker when feeling more fatigued.

Tools for winning

Here are some of the ways that mobility devices actually improve life:
  • Prevent falls and show others that the problem is medical—not substance abuse.
  • Make shopping trips manageable, and visits to a museum or zoo a pleasure instead of a trial.
  • Make a new sport possible or reopen the door to an old favorite. People in scooters and wheelchairs bowl, fish, and play golf, tennis or basketball. 

Finding your independence

Mobility devices can allow people to go places without having to rely on others. They can keep pace with everyone else, “walk” side-by-side, and share laughter and conversation.
Family members, friends, and co-workers ultimately benefit too. They no longer find themselves worrying about the person with MS getting hurt in a fall or becoming too tired to stand. 

Embarrassed or empowered

Many people struggle to walk unassisted so others won’t stare, feel sorry for them, or think less of them. They may accept a cane, but resist a walker or crutches. And some will stay at home rather than be seen in a scooter or wheelchair. In other words, they dread being stigmatized or labeled.
However, mobility devices can allow people to go places without having to rely on others. They can keep pace with everyone else, “walk” side-by-side, and share laughter and conversation.
Family members, friends, and co-workers ultimately benefit too. They no longer find themselves worrying about the person with MS getting hurt in a fall or becoming too tired to stand. 
It’s worth remembering that mobility devices often help people look less disabled. A person struggling to walk may look like a drunk. A person using a cane looks purposeful, and may even give off an aura of confidence. A person sitting comfortably in a power chair arrives looking (and feeling) in control.
But people who use aids do sometimes have the experience of being treated as though they’re invisible. This example is all too common: A man in a wheelchair and his wife go into a restaurant to have dinner. The server turns to the wife and asks what her husband would like to have.
In an uncomfortable situation like this it’s important to remember that the server is probably not being intentionally unkind or insensitive. Most people have little understanding of disability, and simply do not know what is and is not appropriate. To handle this, the wife might say, “I don’t really know what he would like, but I’m sure he’ll tell you.” Or, the husband might respond, “I’ll be happy to give you my order.” In other words, people often need to be shown how to respond.

 Article source: 

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Mobility & Accessibility Explore tools and strategies

                                                                  

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Explore tools and strategies that will allow you to get where you want to go and do what you want to do — comfortably, safely, and with a limited drain on your energy.

The terms “mobility” and “accessibility” refer to being able to get where you want to go and do what you want to do — comfortably, safely, and with a limited drain on your energy.
 
Rehabilitation specialists can help you identify the tools and strategies that best meet your mobility and accessibility needs, keeping you active, productive and involved. Physical therapists, occupational therapists, speech/language pathologists, and physiatrists can help you restore and maintain function, manage symptoms, and identify appropriate tools and strategies to accomplish tasks and achieve your goals.

Staying Mobile can be accomplished through effective symptom management, the use of mobility aids, automobile adaptations and the use of assistance animals.
 
Increasing Accessibility often requires the adaptation of tools and devices at one’s home or work — and becoming an MS activist in the community.

Resources

  • Infinitec
    “Infinite potential through assistive technology.” Click “Live” tab for information on home modification, adaptive driving and more.

The above information was found on the National Multiple Sclerosis Society website found here





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MS Research and Clinical Training Investments in 2016

                                                                  

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National MS Society Invests Over $25 Million In New Research And Clinical Training To Stop Multiple Sclerosis, Restore Function And End MS Forever – Vitamin D, Myelin Repair, Clues To MS Progression And Wellness Strategies Are Among The New Leads Being Explored To Move Us Closer To A World Free Of MS


April 6, 2016
The National Multiple Sclerosis Society has committed over $25 million to support an expected 60 new MS research projects, as well as 7 MS clinical training awards. These are part of a comprehensive strategy aimed at stopping MS, restoring function that has been lost, and ending the disease forever – for every single person with MS.  

This financial commitment is the latest in the Society’s relentless research efforts to move us closer to a world free of MS, and part of a projected investment of $54 million in 2016 alone to support more than 380 new and ongoing studies around the world.  The Society pursues all promising paths, while focusing on priority areas including progressive MS, nervous system repair, gene/environmental risk factors and wellness and lifestyle.

Just a few of the new cutting-edge research projects include an ambitious project at Harvard and the University of California, San Francisco that tracks a group of people with MS over time and creates a platform to enable researchers worldwide to identify factors that drive MS progression; a clinical trial in Germany and the U.S. testing an online program to treat MS-related depression to increase wellness; a study at Ohio State University looking at whether low vitamin D in early life increases the risk of developing MS; and a Collaborative MS Center at Mayo Clinic in Minnesota focusing on whether abnormal energy production in nerve cells contributes to nerve degeneration, and strategies to correct it in MS. The Society is also launching 7 clinical training awards to increase the number of MS specialists who can provide the highest quality of care to people with MS. 

“The comprehensive nature of these new research investments is very exciting,” notes Bruce Bebo, PhD, National MS Society’s Executive Vice President, Research.  “We’re funding scientific breakthroughs that will propel the knowledge we need to end MS and identify everyday solutions that change the lives of people with all forms of the disease.”

Download details about the new research awards. 

Information for the above found here




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Coffee may help prevent MS, study finds

                                                                  

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Drinking coffee may reduce your risk of developing MS, study finds.


Researchers have found that study participants who consumed four to six cups of caffeinated coffee per day were up to 30 percent less likely to develop multiple sclerosis (MS), a degenerative autoimmune disease that causes the body to attack its own myelin sheath, a fatty covering that protects nerve cell fibers in the brain and spinal cord.
Results of the large-scale study, which followed more than 6,700 study participants in both Sweden and the United States, were published this month in the Journal of Neurology, Neurosurgery & Psychiatry.

While the study is not the first to look at the coffee - MS connection, it is the first of its size and international nature, and its results bolster findings of previous studies linking caffeine consumption to lower rates of MS.

Though study findings are promising, researchers caution consumers on guzzling gallons of coffee, as there is more research that is needed.

“I think from the MS perspective, there are too few data to support changing coffee intake at this time,” said, Dr. Ellen Mowry, assistant professor of neurology at Johns Hopkins University School of Medicine in Baltimore, according to Live Science.
And quantity of data, and accuracy of data are factors. Researchers in the Swedish/American study report that the study relied on the participants recollection of their coffee consumption, which could mean that there is some degree of error in reporting by study participants.

In addition to quantities consumed, another area requiring further research could determine whether the benefits that participants experienced were derived from the caffeine in coffee, or other compounds found in the beverage.

A 2008 study, conducted by the University of Oklahoma Medical Research Foundation, showed that mice who were bred to develop a disease resembling MS, did not develop symptoms of the disease when the mice consumed high doses of caffeine.

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Friday, April 22, 2016

Tysabri No Help in SPMS - Drug didn't reduce disability progression but may benefit upper limb function

                                                                  

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VANCOUVER -- Natalizumab (Tysabri) didn't slow disability progression in patients with secondary progressive multiple sclerosis (SPMS), researchers reported here.


The ASCEND trial missed its primary endpoint of reducing progression as measured by a composite endpoint assessing disability unrelated to relapses, Deborah Steiner, MD, of Biogen, reported during the emerging science session at the American Academy of Neurology meeting here.

But Steiner noted that there was a significant benefit on upper extremity function.

"There's a striking contrast between the lack of effect on ambulatory function as measured by the timed 25-foot walk test, and the effects on upper extremity function as measured by the 9-hole peg test," she said.

There are currently no approved therapies for primary progressive or secondary progressive MS -- although data reported here on ocrelizumab, an investigational B-cell targeting therapy by Roche/Genentech, suggested the drug has some efficacy in primary progressive disease.

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Edward Fox from the MS Clinic of Central Texas: Alemtuzumab's Long-Term Studies Show Efficacy for Multiple Sclerosis Treatment -

                                                                  

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    |    Adam Hochron -



With a unique delivery method, alemtuzumab (Lemtrada) has proven to be an effective treatment option for multiple sclerosis. While careful monitoring is required, new data has shown benefits for the right patient population. 


Edward J. Fox, MD, PhD, director of the MS Clinic of Central Texas, discussed the latest research on Lemtrada, which was presented at the 68th Annual Meeting of the American Academy of Neurology in Vancouver. - 





                                            
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Thursday, April 21, 2016

MS Education Video -- Current MS Mainstream Medications plus Complementary Therapies, Presented by Allen Bowling, MD

                                                                  

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Before Dr. Bowling's presentation on the selected video showing below, please listen to:  “The Benefits of Exercise with MS” -
 Presented by: Ellen Belle MA, PT MSCS - 
Ellen works at Colorado Neurological Institute - Director of Patient Services
Discussion to include reducing painful spasticity. This begins at 4 Mins - 55 Seconds

After Ellen Belle and beginning at approx 45:30 into this video is the Presentation from Allen Bowling MD. Listen Dr. Bowling’s detail of Mainstream Medications and a few complementary therapies.  Please listen to his entire discussion which will include medications and concepts. Plus listen to the Q&A that follows his presentation and a little humor that he added between the Talk and the Q&A. 
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on April 13th 2016 - MS Views and News hosted their first educational event in Denver Colorado - 
Speakers: Ellen Belle, MA, PT and Allen Bowling, MD of Neurology

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Like MS Views and News, Allen Bowling, MD of Neurology, believes-in Empowering MS patients with information. 

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MS Views and News 
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Video helping to Reduce Painful Spasticity with Simple Exercise

                                                                  
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https://www.youtube.com/watch?v=QF4ViJ15e_A&feature=youtu.be 



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Tuesday, April 19, 2016

ALL FDA approved MS Treatments, Adherence, Compliance, MS Relapse and Mobility

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Educational presentation provided by MS Views and News


                     https://www.youtube.com/watch?v=aBFQH0mIyII                                             

    
This presentation was video recorded on March 17, 2016
WATCH Regina Berkovich, MD, PhD expertly discuss the FDA approved medicinal treatments for Multiple Sclerosis

Dr. Berkovich has away in which to captivate the attention of those who listen

Watch this program (the talk begins at approx 13:40 into the recording) - 
Share this with others as this talk can educate many.


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The Social Security Disability Income (SSDI) Process - video recorded on March 16, 2016 in Los Angeles, Ca

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With this program on March 17, 2016 - MS Views and News began doing programs Coast-to-Coast

For those with interest in Social Security Disability Law and the SSDI process, we hope you will watch this video and then to share with others




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Muscle Strength Is in the Mind

                                                                  

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A new study found that just imagining arm exercises created a tangible effect on the body.



“If there are jocks on one side, and it’s a confrontation, the other side, by definition, has to be nerds,” David Anderegg wrote of what he calls the “archetypal struggle” in Nerds: Who They Are and Why We Need More of Them.

Of course, there are moments—mostly in Disney musicals—when both camps lay down their footballs and their calculators and realize that really, brain and brawn aren’t mutually exclusive—that, in fact, they have more in common than they ever thought.

This is one of those moments.

In a small study recently published in the Journal of Neurophysiology, researchers found that much of muscle strength is based on brain activity, rather than on the mass of the muscles themselves. Researchers at Ohio University’s Musculoskeletal and Neurological Institute, 29 volunteers had their non-dominant arms placed in elbow-to-finger casts for four weeks. (Fifteen others acted as a cast-free control group.) Of the 29, 14 were asked to perform mental-imagery exercises five days a week, imagining themselves alternately flexing and resting their immobilized wrists for five-second intervals.


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Monday, April 18, 2016

Adaptive Training Improves Cognitive Function in Multiple Sclerosis

                                                                  

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VANCOUVER, British Columbia – Adaptive, computer-based cognitive remediation may improve cognitive function in patients with multiple sclerosis (MS), data indicate.
The study, which compared the cognitive benefits of an adaptive program vs typical computer-based games, was presented at the 2016 annual meeting of the American Academy of Neurology (ANN), in Vancouver.
Compared to ordinary computer games, adaptive cognitive training programs allow for remediation that adjusts in real time to the user's level of performance, promoting constant effort and engagement. In order to assess and compare the benefits of adaptive vs ordinary training programs, Leigh Charvet, PhD, of NYU Langone Medical Center, and colleagues conducted a randomized, double-blind, placebo-controlled trial in patients with MS.

                                            
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