Please visit our MS learning channel on Youtube, which provides hundreds of topics from our education programs, that were video-recorded and archived here: www.youtube.com/msviewsandnews

joomla ecommerce template -- Scroll left side of this blog for needed resources. Also, use our 'search by topic' tool, to find specific information.

Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

=================

CHAMPIONS TACKLING MS - AWARDS Dinner, Honoring Aaron Boster, MD and Jon e. Glaser, DDS - now open for registration. Visit www.events.msvn.org

Saturday, May 14, 2016

MS Hug: How to Ease the Pain

                                                                  

Click here to receive MS news via e-mail        
 


If you’ve been diagnosed with multiple sclerosis, an autoimmune disease that affects the brain and spinal cord, you might have felt a band of pain around your torso. It’s often called the “MS hug.”




What You’re Feeling

Like most symptoms of MS, the feeling is different for each person. You might have pain under your rib cage or anywhere between your neck and waistline. It can be dull and achy, sharp, or burning. It can last a few seconds to a few hours, and in rare cases, a few days.
Some people describe a slight tingling or tickling vibration, while others say it’s a crippling pressure below their ribs that can make it hurt to breathe. People often say it’s like wearing a girdle around the middle of your body. For that reason, you may also hear it called the “MS girdle” or “girdle-band” sensation.

What’s Really Going On?

In between each of your ribs are small muscles that hold your rib cage together and help it expand when you move, bend, or breathe. If these muscles have spasms, you feel painful, tightening pressure.

What Should You Do?

If you think you’re having an MS hug, talk to your neurologist or main doctor right away. The symptoms can seem like those of a heart attack, so it’s important to make sure that’s not the case and to rule out any other causes of the pressure.
Your doctor will most likely give you an MRI to look for other things, like gall bladder or lung disease. MS hug can also happen to people with other rib and spinal cord conditions.


~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
MS Views and News
Provides educational information, resources and services for those affected by MS
We Believe YOU (the MS Patients and Caregivers) should Be Empowered with Multiple Sclerosis information
.===================================



Signs of an MS Hug

                                                                  

Click here to receive MS news via e-mail        
 


If you’ve been diagnosed with multiple sclerosis, an autoimmune disease that affects the brain and spinal cord, you might have felt a band of pain around your torso. It’s often called the “MS hug.”
Like most symptoms of MS, the feeling is different for each person. You might have pain under your rib cage or anywhere between your neck and waistline. It can be dull and achy, sharp, or burning. It can last a few seconds to a few hours, and in rare cases, a few days.
Some people describe a slight tingling or tickling vibration, while others say it’s a crippling pressure below their ribs that can make it hurt to breathe. People often say it’s like wearing a girdle around the middle of your body. For that reason, you may also hear it called the “MS girdle” or “girdle-band” sensation.

What’s Really Going On?

In between each of your ribs are small muscles that hold your rib cage together and help it expand when you move, bend, or breathe. If these muscles have spasms, you feel painful, tightening pressure.

What Should You Do?

If you think you’re having an MS hug, talk to your neurologist or main doctor right away. The symptoms can seem like those of a heart attack, so it’s important to make sure that’s not the case and to rule out any other causes of the pressure.
Your doctor will most likely give you an MRI to look for other things, like gall bladder or lung disease. MS hug can also happen to people with other rib and spinal cord conditions.

Continue Reading


~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
MS Views and News
Provides educational information, resources and services for those affected by MS
We Believe YOU (the MS Patients and Caregivers) should Be Empowered with Multiple Sclerosis information
.===================================



Friday, May 13, 2016

Get the Facts: Make the MS Treatment Decision That’s Right for You

                                                                  

Click here to receive MS news via e-mail        
 




Get the Facts: Choose the MS Treatment That's Right for You

Multiple sclerosis (MS) is a complex disease that affects your life in many ways. In this program, you'll learn about MS and your treatment options. It's important to partner with your doctor and health care team to make treatment decisions that are best for you.

Continue





~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
MS Views and News
Provides educational information, resources and services for those affected by MS
We Believe YOU (the MS Patients and Caregivers) should Be Empowered with Multiple Sclerosis information
.===================================



Multiple Sclerosis Guide, by WebMD

                                                                  

Click here to receive MS news via e-mail        
 















~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
MS Views and News
Provides educational information, resources and services for those affected by MS
We Believe YOU (the MS Patients and Caregivers) should Be Empowered with Multiple Sclerosis information
.===================================



MS Meds: Do I Really Need Them?

                                                                  

Click here to receive MS news via e-mail        
 



I Have MS. Do I Really Need To Take My Medicines?

This article is for people who are involved with multiple sclerosis (MS), as a patient or care partner, as well as others who are interested in this topic. The goal is to help you understand why it is important to stick with your treatment plan and take your medicine as prescribed by your doctor.

This article will cover:


  • How MS is treated
  • Taking injectable medicines
  • What you can expect from treatment
  • Questions to ask your healthcare team
  • Why you should take the medicine your doctor and team prescribed
  • Tips for remembering to take your medicines
  • You will also hear from Dr Ben-Zacharia who will give some additional information on managing side effects and sticking to your treatment plan.

Continue


~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
MS Views and News
Provides educational information, resources and services for those affected by MS
We Believe YOU (the MS Patients and Caregivers) should Be Empowered with Multiple Sclerosis information
.===================================



Speech and Swallowing Problems From MS

                                                                  

Click here to receive MS news via e-mail        
 


Speech and Swallowing Problems From MS


People with multiple sclerosis, or MS, often have trouble swallowing, a problem called dysphagia. It can also lead to speech problems. It happens when the disease damages the nerves in the brain and spinal cord that make these tasks happen.
For some people, these problems are mild. Others have a harder time dealing with severe symptoms. But treatments and techniques can help you improve your speech and make swallowing easier.

Symptoms of a Swallowing Problem

You might:
  • Cough or choke when you eat
  • Feel like food is lodged in your throat
  • Get a lot of lung infections, like pneumonia, that you can’t explain
When you can’t swallow properly, you might inhale food or liquids into your windpipe instead of getting them down your esophagus and into your stomach. Once in the lungs, they can cause pneumonia or abscesses. You could also be at risk for malnutrition or dehydration because your food and water aren’t getting to your stomach.

Symptoms of Speech Problems

The kinds of speech problems MS causes can vary depending on which part of the brain is damaged. Someone with the disease might have mild trouble with words or severe problems that make it hard for them to speak and be understood. A problem that’s subtle in the beginning might get worse over time.
People with MS usually have a few distinctive language problems:
  • “Scanning" speech, when a person’s normal speech pattern is disrupted with long pauses between words or syllables
  • Slurring words. It usually happens because of weak tongue, lip, and mouth muscles.
  • Trouble changing tone of voice
  • Nasal-sounding speech

Getting a Diagnosis

Continue reading this information






~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
MS Views and News
Provides educational information, resources and services for those affected by MS
We Believe YOU (the MS Patients and Caregivers) should Be Empowered with Multiple Sclerosis information
.===================================



The SHOW MUST GO ON -- an MS patient's video description of Multiple Sclerosis










                                                               
 










~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
MS Views and News
Provides educational information, resources and services for those affected by MS
.===================================



Thursday, May 12, 2016

ADA lawsuit information versus Greyhound

                                                                  

Click here to receive MS news via e-mail        
 



People who experienced disability discrimination while traveling or attempting to travel on Greyhound may now file a claim for compensation as part of a consent decree that resolves nationwide Americans with Disabilities Act discrimination claims brought by the Justice Department.

Individuals eligible for compensation must:
* have a disability;
* have traveled or attempted to travel on Greyhound between Feb. 8, 2013, 
and Feb. 8, 2016;

* experienced a disability-related incident during the travel or attempted travel (for example, lack of accessible transportation or transportation-related services, Greyhound’s failure to make disability-related accommodations, etc.); and
* submit a Claim Form by mail, email, or online, to the Claims Administrator by no later than Nov. 10, 2016.

Instructions regarding the claims process are available at the Claims Administrator’s website.  The Claims Administrator can also be reached by email, by telephone, toll-free at 844-502-5953 or 800-659-2656 (TTY), or by mail at U.S. v. Greyhound Claims Administrator, c/o Class Action Administration LLC, PO Box 6878, Broomfield, CO 80021.  Assistance is available from the Claims Administrator for those who are unable to complete the Claim Form because of a disability.

To learn more about the Department’s lawsuit and settlement with Greyhound that established this claims process, visit the ADA website at www.ada.gov.














~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
MS Views and News
Provides educational information, resources and services for those affected by MS
We Believe YOU (the MS Patients and Caregivers) should Be Empowered with Multiple Sclerosis information
.===================================



Severe Rebound Effects Found in ‘Relevant’ Number of MS Patients After Stopping Fingolimod

                                                                  

Click here to receive MS news via e-mail        
 


May 10, 2016


Rebound symptoms after stopping fingolimod (Gilenya) treatment affect a “clinically relevant” number of multiple sclerosis (MS) patients, a study by University of California, San Francisco, researchers reported. The study called attention to the need for determining the best method of sequencing or stopping MS treatments, and highlighted the need to identify factors that increase the risk of severe symptoms after fingolimod cessation.
The change or discontinuation of immunoactive drugs is a sensitive matter, balancing safety and protection against relapse, and is of particular concern to women stopping treatment because of pregnancy. The occurrence of rebound symptoms after fingolimod treatment, however, is not well-studied.
Rebound effects are the re-emergence of symptoms held under control by a treatment once the treatment is stopped. The study, published in the journal JAMA Neurology, investigated electronic medical records, along with magnetic resonance images (MRI), from the UCSF Multiple Sclerosis Center for evidence of rebound symptoms after fingolimod cessation. Records from January 2014 to December 2015 were included in the analysis.
Continue Reading on REBOUND after stopping Fingolimod


~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
MS Views and News
Provides educational information, resources and services for those affected by MS
We Believe YOU (the MS Patients and Caregivers) should Be Empowered with Multiple Sclerosis information
.===================================



Stem Cell Therapy: Modern Medicine’s Promising Future For MS Treatment

                                                                  

Click here to receive MS news via e-mail        
 



stem cell therapy and MS

May 3, 2016



MS research shows that adipose-derived mesenchymal stem cell therapy may potentially repair the damage and inflammation seen in the nervous system of patients with MS.  During an autoimmune reaction, the myelin sheath coating which is formed around the axons of neurons slowly deteriorates, thus causing physical and cognitive impairments.  By calming down the autoimmune attack and attenuating inflammation, adipose-derived mesenchymal stem cell therapy may halt the progression, and potentially reverse the damage of MS.
Numerous studies have demonstrated the potential of adipose-derived mesenchymal stem cells (MSCs) in treating the different types of MS. In Saudi Arabia, a group of researchers published the literature review, “The Immunomodulatory and Neuroprotective Effects of Mesenchymal Stem Cells (MSCs) in Experimental Autoimmune Encephalomyelitis (EAE): A Model of Multiple Sclerosis (MS),” describing how MSCs prevent progressive damage in mice induced with MS. The cells secrete soluble factors that inhibit the T-cells contributing to the autoimmune attack, thus protecting neurons from further damage.
In the study, “Mesenchymal Properties of SJL Mice-Stem Cells and Their Efficacy as Autologous Therapy in a Relapsing-Remitting Multiple Sclerosis Model,” researchers in Spain isolated MSCs from one mouse and transplanted the cells into another mouse with an experimental model of relapse-remitting multiple sclerosis. The mice receiving cells rather than saline as a control exhibited lower clinical scores and slower disease progression. These results were confirmed with another mouse strain, demonstrating the robustness of treatment.
Additional evidence comes from a group of researchers and clinicians from the United Kingdom who treated MS patients in the study, “Autologous Mesenchymal Stem Cells for the Treatment of Secondary Progressive Multiple Sclerosis: An Open-Label Phase 2a Proof-of-Concept Study.”
Research findings show that intravenous administration of autologous mesenchymal stem cells to patients with secondary progressive multiple sclerosis is feasible and safe and suggests structural, functional, and physiological improvement in patients after receiving treatment with autologous mesenchymal stem cells which is consistent with remyelination. In addition, patients experienced enhanced visual acuity.



~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
MS Views and News
Provides educational information, resources and services for those affected by MS
We Believe YOU (the MS Patients and Caregivers) should Be Empowered with Multiple Sclerosis information
.===================================



Slideshow: A Visual Guide to Understanding Stroke

                                                                  

Click here to receive MS news via e-mail        
 



Missing Images!

What Is a Stroke?


Stroke is a medical emergency and a leading cause of death in the U.S. It occurs when a blood vessel in the brain bursts or, more commonly, when a blockage develops. Without treatment, cells in the brain quickly begin to die. The result can be serious disability or death. If a loved one is having stroke symptoms, seek emergency medical attention without delay.






~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
MS Views and News
Provides educational information, resources and services for those affected by MS
We Believe YOU (the MS Patients and Caregivers) should Be Empowered with Multiple Sclerosis information
.===================================