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CHAMPIONS TACKLING MS - AWARDS Dinner, Honoring Aaron Boster, MD and Jon e. Glaser, DDS - now open for registration. Visit www.events.msvn.org

Saturday, June 4, 2016

OhioHealth Multiple Sclerosis

                                                                  

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The OhioHealth  multiple sclerosis program is growing to help even more MS patients and families live quality lives.


At OhioHealth, we offer comprehensive assessment, diagnosis and treatment for patients with multiple sclerosis (MS). We work closely with our patients and their families throughout the course of a patient's life to find the right MS treatment and manage symptoms of this disease — so our patients can live the lives they want to live.
Our medical team has a breadth of neurologic expertise that spans the wide spectrum of MS symptoms, from mild to complex. We know how to recognize and address the many ways this disease expresses itself. Our experience comes from years of treating high volumes of MS patients.

Continue reading here: https://www.ohiohealth.com/multiplesclerosis/ 

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Note:    OhioHealth is now partnering with MS Views and News, to provide needed educational programs to those affected by Multiple Sclerosis.


If you want your MS Center, Clinic or Healthcare System and your various clinicians that benefit those affected by MS highlighted on our pages, please contact us to discuss the possibilities. Write to: info@msviewsandnews.org for more information.

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Provides educational information, resources and services for those affected by MS
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Canadian discovers genetic mutation linked to severe MS in two families

                                                                  

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June 2, 2016


When Canadian scientist Dessa Sadovnick started her career, the idea that genes played a role in multiple sclerosis was almost heretical and her PhD supervisor even urged her to abandon her research on the topic.
Four decades later, it is widely accepted that genetics are important in MS, partly due to Sadovnick’s pioneering work.
And, on Wednesday, she and her team published their latest genetic discovery: a single mutation linked to severe MS in seven members of two Canadian families.
The study authors believe they have found the first gene mutation to cause a rare and inherited form of MS, though this finding needs to be replicated by further studies.
The findings, published in the journal Neuron, reveal an exciting new clue for understanding the severest form of MS, which affects 15 per cent of patients, and this could, perhaps, pave the way for new treatments.

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Gender Plays Role in Multiple Sclerosis Care and Treatment - Men and Women greatly differ in handling MS

                                                                  

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Published on Jun 3, 2016
There are known differences between men and women when it comes to multiple sclerosis and the likelihood of developing the disease. There are also differences in how best to treat patients given their gender.






























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MS Views and News
Provides educational information, resources and services for those affected by MS
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Treating Advanced Disease in Multiple Sclerosis

                                                                  

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Published on Jun 3, 2016

Defining what advanced disease means in multiple sclerosis is a topic open for discussion. Deciding a course of treatment after that determination is another challenge in overall patient care.





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Provides educational information, resources and services for those affected by MS
We Believe YOU (the MS Patients and Caregivers) should Be Empowered with Multiple Sclerosis information
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Monday, May 30, 2016

Fasting diet has been shown to ease multiple sclerosis symptoms in early trial

                                                                  

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New research has shown that a diet involving periods of fasting could help fight autoimmune conditions - which are a range of disorders, such as lupus and multiple sclerosis, that occur when a patient's immune system starts attacking its own body.
The initial study was performed in mice, but a small, follow-up trial in humans showed that the calorie-restricted diet was also able to help reverse the symptoms of multiple sclerosis. The team is so excited they're now quickly moving into larger clinical trials.




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Underestimated burden: Epilepsy, multiple sclerosis, Parkinson’s impair sexuality

                                                                  






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Date:
May 29, 2016
Source:
European Academy of Neurology
Summary:
Neurological disorders can impair sexuality on a much more massive scale than frequently assumed, leaving loss of desire, erection problems and infertility in their wake. Both men and women are affected. A person’s self-esteem, love life and relationship with a significant other can all suffer.
Neurological disorders can impair sexuality on a much more massive scale than frequently assumed, leaving loss of desire, erection problems and infertility in their wake. Both men and women are affected. A person's self-esteem, love life and relationship with a significant other can all suffer. But as Prof David B. VoduĊĦek from the University of Ljubljana, Slovenia, pointed out at the Second Congress of the European Academy of Neurology (EAN) in Copenhagen, people do not have to simply acquiesce to this situation: "There are ways of helping affected individuals, provided neurologists actively address possible problems with the patient's intimate private life. Many patients have the impression that this aspect is given too little attention," the Chairman of the EAN Liaison Committee noted. Neurological problems affect a person's love life

CONTINUE Reading





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Provides educational information, resources and services for those affected by MS
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Sunday, May 29, 2016

Stem Cells, B Cells, and T Cells in Focus at CMSC

                                                                  

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Cell-based therapies — and the role T and B cells play in the development of multiple sclerosis (MS) — are a few of the cutting-edge topics on the agenda at the upcoming Consortium of Multiple Sclerosis Centers (CMSC) 2016 Annual Meeting.
The meeting, being held June 1 to 4 in National Harbor, Maryland, brings together physicians, scientists, researchers, nurses, rehabilitation specialists, occupational therapists, social workers, and others involved in caring for patients with MS and trying to unlock the mysteries of the disease.
The Consortium, celebrating its 30th anniversary, has more than 200 member centers in the United States and Canada, representing 10,000 healthcare professionals who provide care for more than 200,000 individuals with MS and their families.
This year, CMSC expects some 2000 attendees, the organization's chief executive officer, June Halper, MSN, APN-C, MSCN, told Medscape Medical News.
The meeting will be heavy on networking and educational programming, but there will also be platform and poster presentations of some 400 abstracts, including 5-year data on alemtuzumab in patients with active relapsing-remitting MS from the CARE-MS II study and phase 3 efficacy data on ocrelizumab in primary progressive MS.

Continue reading of the 2016 Consortium of MS Centers conference





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MS Views and News
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Expert Tips on Managing Pregnancy in MS

                                                                  






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Expert Tips on Managing Pregnancy in MSExpert Tips on Managing Pregnancy in MSDoctors should try to alleviate the anxieties that patients with multiple sclerosis have about fulfilling their dream of a family, an expert says.


NDIANAPOLIS, Indiana — When a patient with multiple sclerosis (MS) wants to get pregnant, chances are she'll turn to her neurologist for advice.
Doctors shouldn't discourage these women from fulfilling what for many is a life-long dream of having a family, according to Maria Houtchens, MD, assistant professor, Department of Neurology, Harvard Medical School, director, Women's Health Program, and staff neurologist, Partners MS Center, Boston, Massachusetts.
A specialist in managing MS during pregnancy, Dr Houtchens shared some information and tips with delegates during a clinical course here at the Consortium of Multiple Sclerosis Centers (CMSC) 2015 Annual Meeting.
No Guidelines
Pregnancy is an important and often complex issue for patients with MS. Of the 500,000 patients with MS in the United States, two thirds are women, most of whom are diagnosed before menopause. Half of all pregnancies in the United States are unplanned.
There are no evidence-based practice guidelines for managing patients with MS during pregnancy, said Dr Houtchens. Care during this period varies "dramatically" depending on the knowledge and comfort level of caregivers, she said.
Women wanting to have a baby are concerned about passing on MS to their offspring and about the effect on the fetus of drugs they have taken to control their disease. But perhaps their biggest worry, she says, is how they will raise a child should their disease worsen.
"They worry about how to manage their symptoms and care for the child at the same time," she said.




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MRI Guidelines in MS being Updated

                                                                  






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MRI Guidelines in MS UpdatedMRI Guidelines in MS UpdatedAnnual 3D imaging using gadolinium contrast is recommended to monitor patients with multiple sclerosis, a guideline update notes.Pauline Anderson - May 29, 2015

INDIANAPOLIS, Indiana — A panel of neurology and radiology experts has updated imaging protocols for patients with multiple sclerosis (MS) that promise to improve diagnostic accuracy.
The panel recommends using higher-resolution three-dimensional (3D) imaging over two-dimensional (2D) imaging wherever possible because it's faster and better able to show breakthrough disease activity, said Anthony Traboulsee, MD, University of British Columbia, Vancouver, who led the expert panel.
"The advantage of 3D imaging technology is that it provides complete coverage of the brain, so you're not missing pieces like we were before, said Dr Traboulsee.
Not only can it improve detection of lesions, but it make it easier to compare a patient over time, he added. "We are comparing apples to apples now."
Dr Anthony Traboulsee
Dr Traboulsee discussed MRI guidelines at the Consortium of Multiple Sclerosis Centers (CMSC) 2015 Annual Meeting.
About 80% of scanners in North America have 3D imaging. If a 3D scanner isn't available, Dr Traboulsee suggests making sure to use a "good-quality" 2D scanner.
Physicians should order a first MRI as soon as they suspect a patient may have MS and then a series of subsequent MRIs to confirm that suspicion. Typically, a patient with MS eventually would undergo MRI once a year.
Big Question
"The big question for neurologists is how often should they be monitoring their MS patients with MRI," Dr Traboulsee told Medscape Medical News. "We tell them that they should be monitoring patients who are on treatment at least once a year with standard MRI. That will give them important information on whether the patient is stable or if there's evidence of new disease activity that might prompt a change in treatment."
However, there are exceptions. For example, a scan every 6 months might be in order for patients with a more aggressive, active disease course, or those who have just changed therapy in whom it's important to see whether the new therapy is working.
As well, more frequent scanning is recommended to monitor for progressive multifocal leukoencephalopathy in patients taking natalizumab (Tysabri, Biogen), who are at high risk for this condition. For these patients, diffusion-weighted imaging would be added to the imaging protocol, said Dr Traboulsee.
MRI can be used to help diagnose MS or clinically isolated syndromes. But it's important not to use MRI scans by themselves because this can lead to misdiagnosis, said Dr Traboulsee.
"If you take 100 normal people off the street, 5% of them will have an abnormal-looking brain MRI — it's just the way they were put together; it doesn't mean they have MS."
White Spots
And in certain patient populations, it might be even more difficult to read an MRI correctly. "If you do an MRI in people over age 60, they will have white spots that look like MS, but that's just part of natural aging."


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New gene linked to Multiple Sclerosis discovered

                                                                  

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May 29, 2016


LONDON: Researchers have discovered a gene involved in deregulation of certain immune cells in the neurological disease Multiple Sclerosis (MS).

Characterized by the onset of chronic, neurodegenerative damage of the central nervous system, this unpredictable, often disabling disease disrupts the flow of information within the brain, and between the brain and body by attacking the protective sheath (myelin) that covers nerve fibres.




Right now, its causes are unknown although various self-immune mechanisms are known to be involved.




Researchers are already aware that genetic variants lead to changes in the code of the DNA component and that in order to understand their biological effects, the effects of the expression of the corresponding gene need to be studied, in other words, the changes in the messenger RNA and the proteins.




The new study showed that the gene known as ANKRD55 produces three different transcripts of the messenger RNA, and that the genetic variant associated with MS greatly increases the production of these transcripts.






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Get Inspired: Man with multiple sclerosis out to 'put smiles on faces' through golf

                                                                  

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"I'm not brave, I just get on with it. What else can I do?"
So says Graeme Robertson, although most would disagree.
The 53-year-old, from Berkshire, has lived with primary progressive multiple sclerosis since 1998. It is steadily making him weaker and he now struggles to walk unaided.
But Graeme - who has a 10-year-old daughter and two stepchildren with his wife, Sue - has refused to allow his condition to define him.
On the contrary, he has rekindled his childhood passion for golf to raise awareness of disability sport, rising to the position of captain for the England disabled golf team.
"I don't think of myself as an inspiration because all I do is get on with my life," he said.
"A lot of people say to me 'you're amazing, you're brave' and I'm thinking 'no, I'm not brave'. I just get on with it. What else can I do?'
"But I am proud of myself. When you look around the room you can see people who are friends, and they wouldn't know each other if it wasn't for us.
"It's been great for me, this journey, playing golf again, and I'd like to persuade other people to do the same.
"We're affecting peoples' lives, and that's more important than anything really isn't it? Putting smiles on peoples' faces."
To Read complete article and to see photos Click here

Primary progressive MS is a rare form of the disease, with which patients see a gradual decline in their health


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