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CHAMPIONS TACKLING MS - AWARDS Dinner, Honoring Aaron Boster, MD and Jon e. Glaser, DDS - now open for registration. Visit www.events.msvn.org

Saturday, August 13, 2016

MS Shaming: ‘You Don’t Look Like You Need a Handicapped Tag!’


  


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Written by Ed Tobias (see below for Ed's information)  - August 2016


Do you remember when you applied for a handicapped license plate?
I put it off for quite a while after I was diagnosed. After all, I could walk several city blocks fairly easily. I could still play a little tennis. Why did I need to park in a handicapped spot? But, there were days when I did. I needed that privilege when it was hot. I needed it when I was extra tired, or when rain or snow made slipping a distinct possibility.
The thing is, as many of you know very well, I didn’t look like I was dragging. I didn’t look like someone with a handicap. That’s the problem that Aneta Prantera, who has MS and lives in St. Catharines, Ontario, recently faced.
Aneta is 29 years old and she was diagnosed about four years ago, after she lost the viHC permit notesion in one of her eyes. She’s an example of someone who looks healthy but who needs to use her handicapped parking permit on those tough days that we all have. That’s what she was doing, not long ago, in the parking lot of a large shopping center near her home. When Anita returned to her car after shopping, she found an angry note on its windshield. “A handicap permit is meant for handicap Only!  You are not handicap.  You should be ashamed (sick) of yourself for taking a handicap spot simply because you are Lazy.  Shame – shame.”

CONTINUE Reading



Ed Tobias is a retired broadcast journalist. Most of his 40+ year career was spent as a manager with the Associated Press in Washington, DC. Tobias was diagnosed with Multiple Sclerosis in 1980 but he continued to work, full-time, meeting interesting people and traveling to interesting places, until retiring at the end of 2012.


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Bladder Issues in MS


                                                                  
  

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Don’t underestimate the importance of early diagnosis of UTI and bladder dysfunction in MS patients—or the impact on QOL.

By Brett Moskowitz
Reviewed by Aaron Miller, MD, Professor of Neurology, Icahn School of Medicine at Mount Sinai and Medical Director at the Corinne Goldsmith Dickinson Center for Multiple Sclerosis, New York, NY


Bladder dysfunction, associated urinary tract colonization (UTC), and urinary tract infections (UTIs) are among the many common complications associated with multiple sclerosis (MS).1 The level of spinal cord involvement and general severity of MS-related disability has a direct impact on the severity of bladder dysfunction.2
As many as 75% of MS patients have neurogenic detrusor overactivity (NDO), which causes symptoms of urinary urgency, frequency, and/or incontinence.2,3 Bladder dysfunction tends to worsen as the disease progresses. Eventually, patients may require pelvic floor exercises, intermittent self-catheterization, or a permanent catheter. Recurrent UTIs become common in these patients as a result of urinary stasis or the use of a catheter and, when left undiagnosed and untreated, can cause systemic infection and sepsis.1
Further, UTIs, respiratory infections, and other infections commonly cause or exacerbate acute relapses in MS patients and have a significant impact on quality of life. Activation of the immune system in response to UTIs or other infections is commonly believed to exacerbate MS symptoms. Conversely, corticosteroid treatments used during MS exacerbations can “unmask” an infection in a patient with UTC. The mechanisms by which infections increase risk of relapse and, potentially, disease progression aren’t well understood.1






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Sleep Disturbances in Multiple Sclerosis


                                                                  
  

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By Gloria Arminio Berlinski, MS
Reviewed by Aaron Miller, MD, Professor of Neurology, Icahn School of Medicine at Mount Sinai and Medical Director at the Corinne Goldsmith Dickinson Center for Multiple Sclerosis, New York, NY



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In the last several years, researchers have begun to focus on the potential risk of sleep problems in multiple sclerosis (MS) and the hypothesis that this risk may contribute significantly to the highly prevalent symptom of fatigue in MS patients.1 Experts indicate that MS-related fatigue is multifactorial in origin and often ascribed to the primary diagnosis of MS itself.2,3 Consequently, sleep disorders have often gone unrecognized in MS patients, despite the intuitive connection between these disorders and fatigue.1-3


To illustrate, in a recent cross-sectional study conducted by Brass and colleagues among approximately 2,300 MS patients, 38% screened positive for obstructive sleep apnea, 32% for insomnia, and 37% for restless legs syndrome, but only 4%, 11%, and 12% of the study cohort, respectively, had been diagnosed by a clinician with these sleep disorders.






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Providing educational information, resources and services for those affected by MS





Friday, August 12, 2016

Warning Signs of an MS Relapse


                                                                  
  

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Watch a Slideshow from WebMD concerning MS relapse 

    click here:  goo.gl/eO3f5z






MS Views and News
Providing educational information, resources and services for those affected by MS





The Importance of Diet and Nutrition in Multiple Sclerosis


                                                                  
  

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The Importance of Diet and Nutrition in Multiple Sclerosis
 AUGUST 12, 2016 - BY ANDREIA PEIXOTO



In this National MS Society video, listen to MS patients and healthcare professionals talk about their experiences regarding the potential effects of diet/nutrition on multiple sclerosis.
See a video about the above topic by clicking here





MS Views and News
Providing educational information, resources and services for those affected by MS





Stem cell therapy trial for ALS and MS patients at Jerusalem hospital shows stunning results


                                                                  
  

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Professor Dimitrios Karussis
Professor Dimitrios Karussis. (photo credit:Courtesy)
Written by: Paul Alster is an Israel-based journalist. 
Tucked-away in the pine-tree clad Jerusalem hills at Israel’s renowned Hadassah University Medical Center at Ein Kerem, a groundbreaking clinical trial is taking place that could have a truly profound affect on the lives of millions of people around the world.


This is no copywriter’s sales pitch; this is the story of a mission to find a successful treatment for ALS and multiple sclerosis, a treatment that also may have the potential to positively impact other neurological conditions such as Alzheimer’s and Parkinson’s disease, and for those who have suffered the debilitating effects of a stroke.

I first became aware of the work of internationally acclaimed neuroimmunologist Professor Dimitrios Karussis and his colleagues some years ago, when discussing research into possible treatments for multiple sclerosis with a friend who had been diagnosed with the disease. More recent reports of astonishing results of a clinical trial using stem cells in patients suffering from amyotrophic lateral sclerosis (also known as Motor Neuron disease and Lou Gehrig’s disease) and multiple sclerosis (MS), prompted me to seek out the Greek-born scientist. I wanted to find out just how close he really is to proving a revolutionary treatment that not only may stop the progression of these until-now incurable neurological diseases, but even reverse some of the damage and debilitation already caused.

From a modest set of offices and laboratories at Hadassah, Karussis and his small team – which includes fellow Greek-born neurologist Dr. Panayiota Petrou, and Dr. Ibrahim Kassis, an expert in tissue regeneration and mesenchymal stem cells – working in collaboration with the Israeli biotechnology company BrainStorm Cell Therapeutics, are causing many in the medical world to take notice.

A clinical trial in which the patient’s stem cells are removed from their own bone marrow, cultivated under laboratory conditions, then returned to the patient by intrathecal injection, has shown significant indications with a number of patients, including some whose previously disabled limbs have recovered to a point that was scientifically unimaginable even a couple of years ago.

One of the subjects of this latest clinical trial, who suffers from primary progressive multiple sclerosis and in recent years had become increasingly challenged by his growing disability, spoke exclusively to The Jerusalem Report on condition of anonymity, citing medical privacy.

Now in his late 40s, the dual Israeli-British passport holder and a former marathon runner had sought help from many sources to fight MS, but had been told in Britain that “they had nothing at all to offer” other than a little help from speech and physical therapists or cholesterol tablets. There was nothing that could be done to help stem the progression of the disease that made walking increasingly challenging, and caused the once capable athlete, who despite his deterioration continued to push himself to run, (albeit much slower and with obvious disability), to fall on a regular basis. He can be referred to as “D.”

D was accepted for Karussis’s current clinical trial, and within 24 hours of having the first set of his own adult stem cells injected back into his body experienced something extraordinary.

“The day after [the treatment], a junior doctor asked me to lift my leg up in the air. Normally, she would put her little finger on my leg and it would fall back onto the couch, but I could actually keep the leg up on my own. I remember her leaving my room and I just cried. I never cry, but it was the realization that this treatment appeared to be working. I was able to achieve resistance because my muscles were working again. Seventy-two hours after receiving the treatment, I went for a run.





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Providing educational information, resources and services for those affected by MS





Monday, August 8, 2016

Former Alabama Crimson Tide Defensive Back - tells his MS story at two upcoming MS educational programs in Alabama


                                                                  
  

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Through Thursday of this week, last chance to register for one or both of our upcoming Alabama MS educational events. Thursday 8/18 - Huntsville dinner program OR Saturday 8/20 Birmingham Luncheon -- see event details and to RSVP here: www.events.msvn.org - 

Along with the Neurologist and Nurse Practitioner - listen to Don McNeal (former Crimson Tide Hall of Fame) speak about his MS / "no excuses" -- 

RSVP Required ---  to Register for with or both events visit: www.events.msvn.org 






                                      







MS Views and News
Providing educational information, resources and services for those affected by MS