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Friday, October 14, 2016

What Causes Multiple Sclerosis?


                                                                  
  

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Doctors still don't understand what causes multiple sclerosis, but there are interesting data that suggest that genetics, a person's environment, and possibly even a virus may play a role.

How Does the Environment Affect a Person's Risk of Multiple Sclerosis?

Epidemiological data show several interesting trends regarding multiple sclerosis: Different populations and ethnic groups have a markedly different prevalence of MS. The disease is especially common in Scotland, Scandinavia, and throughout northern Europe. In the U.S. the prevalence of MS is higher in whites than in other racial groups.
Studies show that MS is more common in certain parts of the world, but if you move from an area with higher risk to one of lower risk, you acquire the risk of your new home if the move occurs prior to adolescence. Such data suggest that exposure to some environmental agent encountered before puberty may predispose a person to MS.
Moreover, MS is a disease of temperate climates. In both hemispheres, its prevalence increases with distance from the equator.
Also there have been "epidemics" of MS -- for example, it occurred in a group of people living off the coast of Denmark after WWII, suggesting an environmental cause.

What Role Do Genetics Play in Multiple Sclerosis?

Researchers believe that multiple sclerosis may in part be inherited (genetics contribute to the increased risk of MS seen in family members). 
Click here to continue reading from WebMD



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Multiple Sclerosis and Exercise


                                                                  
  

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Exercise can help ease the symptoms of multiple sclerosis, but it's important to be careful if you want your workouts to be successful. The most important thing to remember is to not overdo it.
No doubt you’ve heard the sayings "no pain, no gain" or "feel the burn," but that’s not good advice when you have MS. Do too much, and you can end up straining your muscles, increasing pain, and putting too much stress on your body and your mind. Never exercise to the point of fatigue.
Check with your doctor before you start any fitness program. He may make recommendations about:
  • The types of exercise that are best for you and those you should avoid. The right moves depend on your symptoms, fitness level, and overall health.
  • How long and intense your workouts should be
  • Any physical limitations for your routines
  • Other professionals, such as a physical therapist, who can help you build a personal exercise program that meets your needs
 Tips for Safe Exercise ->>> CLICK HERE






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Riskier Alternative Treatments for MS


                                                                  
  

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Bee stings, cobra venom, and hookworms are things you usually avoid -- unless you have multiple sclerosis. Then, you may be willing to try them to help ease your symptoms. But do they work? Are these alternative treatments safe?
Let's separate the science from the wishful thinking.
Some lifestyle treatments, such as exercise, have been proven to help with fatiguedepression, memory, and bladder control. Others, such as supplements and minerals, are still being tested. Acupuncture, a centuries-old form of Chinese medicine, shows mixed results. The problem is that many of the studies into the effectiveness of nondrug treatments do not meet the high standards for medical research.
Your best bet is to stick to your treatment plan. Don't stop taking your medication. Talk to your doctor about any alternative treatment you want to try, especially because it may interfere with your medications. Together, you can decide if it makes sense and won't do more harm than good.

Bee Stings and Bee Pollen

Ancient Greek and Egyptian medical writing tells of bees used as medicine (apitherapy).
Melittin, found in bee venom, supposedly brings down inflammationrelated to MS. But one study shows that it doesn't. What's more, bee sting therapy could be dangerous if you have a life-threatening reaction to bee venom.

Click here to continue reading





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Is Stress Making Your MS Worse?


                                                                  
  

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From WebMD:

VISIT this page to answer a few questions and get responses.
GET STARTED >>  Click HERE 









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Risky Stem Cell Transplant Halts MS for Years


                                                                  
  

risky-stem-cell-ms-bns
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Autologous haematopoietic stem cell transplantation has been used to stop autoimmune processes in MS, although the treatment is not effective for every person.
Fortunately, research is always evolving and there is now an improved version of the technique which is showing extremely good results, with patients free of both the need for treatment and the risk of relapses for years on end — but the risk associated with the procedure is substantial.
What are the risks for MS patients and how does this treatment work?The current stem cell transplantation process for these patients  involves stem cells being collected from their own bone marrow before the patients are exposed to chemotherapy. This treatment suppresses the immune system, so that when the stem cells are injected back into a person, the immune system is reset to no longer attack the body.
Read More







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Thursday, October 13, 2016

Guillain-Barré Syndrome and MS


                                                                  
  

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Multiple sclerosis (MS) and Guillain-Barré syndrome (GBS) are diseases of the nervous system. They’re not the same, but they do have a lot of similarities.
Both MS and GBS are autoimmune diseases. This means they cause your body's immune system to attack its own tissues. They both start when the immune system attacks and damages something called myelin. That’s a layer of insulation that surrounds nerves. It also helps nerves transmit their messages.
Each condition affects a different part of your nervous system:
MS damages the central nervous system. That’s the brain and spinal cord.
GBS damages the peripheral nervous system. That’s the nerves outside the brain and spinal cord. They help the central nervous system communicate with the rest of your body, including the skinheart, and muscles. Chronic inflammatory demyelinating polyneuropathy (CIDP) is closely related to GBS with many of the same symptoms, but CIDP lasts much longer and if not caught earlier enough, can cause lasting effects.
It's very rare for someone to have MS and GBS at the same time. But it has happened. Experts say it may be a coincidence. But both diseases share causes that might trigger them together.

Causes







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Wednesday, October 12, 2016

New Urinary Catheter, Designed by Quadriplegic


                                                                  
  

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The U.S. Food and Drug Administration (FDA) approved for marketing Adapta Medical’s PerfIC Cath, an intermittent and easy-to-use urinary catheter that was designed for patients with limited dexterity by a doctor who is also a quadriplegic.
Urinary tract symptoms can trouble people with multiple sclerosis (MS). In fact, according to the National MS Societybladder dysfunction affects at least 80% of people with MS, due to MS lesions that block or delay the transmission of nerve signals in areas of the central nervous system (CNS) that control the bladder and urinary sphincters.
PerfIC Cath, designed by J. Glen House, MD, is a sterile catheter that:
  • Comes in a user-friendly package, with a gripping device and protective sheath that makes its use easy, even for patients with limitations in dexterity
  • A hydrophilic coating to ensure even and complete catheter lubrication, and easy passage into the bladder
  • An introducer tip that bypasses high levels of bacteria and reduces the risk of infection
“The PerfIC Cath catheter represents a significant advancement in intermittent catheter technology and is extremely easy to use, even with limited dexterity,” House, who is CEO of Adapta and president of Colorado Rehabilitation Physicians, said in a press release. “It is designed for those with a spinal cord injury, multiple sclerosis, diabetes, stroke, spina bifida or other conditions that require a catheter, but can be used easily by those with normal hand dexterity too. It is created for users by users.”

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You Know You Have MS When….


                                                                  
  

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Profile photo of Laura Kolaczkowski
 
Often the idea that conveys what having MS means doesn’t take many words when we’re talking to others who also have this disease. I’ve put together my initial thoughts on “you know you have MS when…” but I would sure love to hear what else you might add to this list of one-liners that might make us smile in recognition of our own situation.

You Know You Have MS When…..

  • You open your freezer door and recognize you have more cooling packs than packs of food in cold storage.
  • You keep a shelf in the refrigerator side reserved for your meds or even have its own small mini-fridge in your bedroom.
  • You find yourself sharing the details of your toileting patterns with strangers via public forums.
  • Someplace on Facebook you post ‘those pictures’ that you would find in a medical text book.
  • Last minute cancellations happen often in your social schedule and eventually you stop scheduling anything at all just because it’s hard to explain
  • Your neurologist is also your defacto-doctor for all your symptoms because it could be your MS but it probably isn’t.
  • You walk like you are surfing, using your hands to maintain your balance as if you are trying to hang 10.
  • The weather report determines if you are going to schedule something outdoors; unlike others who love sunny, warm days you live for overcast gloomy skies to cut the heat.
More to read.... Click here





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MS, a Relationship Killer?


                                                                  
  

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Profile photo of Azjackie
 
MS is miserable on relationships. Not only for your significant other but all relationships. Your family and friends craves you will be better and your significant other runs away scared.
I knew it was bad when I heard my boyfriend start the conversation with “what am I going to do with you?” Followed by “I don’t know if I signed up for this.” If the broken feeling mid back wasn’t bad enough my heart is then ripped from my chest.
I know I’m to be strong, brave, and independent but realizing you are destined to be handicapped longterm and alone is dreadful. Memories rush your mind “I’ll love you forever and be with you forever”.
I do not walk well at all. I fall a lot sometimes very hard. The intense pain in my back makes me frequently wish I did not exist. The falls hurt and followed with comments is very cruel.
I’m 46 criminalized by MS almost 9 years. What am I going to do? A good thing I never had children to burden. My parents are still alive. I live on my own so luckily they don’t have to know how much I struggle. My brother cringes and winces watching me move. I had hoped my boyfriend was learning about me and I could emotionally lean on him a little. My friends don’t come around.




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Caregiver to Caregiver: We Are Not Alone


                                                                  
  

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There’s nothing like sitting in a room with people you don’t know, looking into their eyes, listening to their stories and concerns, receiving words of wisdom, and learning that you truly are not alone, to crack the dam of pent-up emotions caused by dealing with a stressful situation and a future of the unknown.
That’s what happened to me on Saturday.
It doesn’t matter that I’ve been in this ‘business’ of patient empowerment, advocacy, education, support, and community for many years now. It doesn’t matter that I’ve written numerous articles on various aspects of dealing with a chronic disease. And, it really doesn’t matter that I’ve identified resources available for ‘other’ people dealing with patient and caregiver issues.
On Saturday, I attended an all-day conference with a family member who deals with multiple chronic conditions. At this particular event, I had very little in common with the patients in attendance. I didn’t have the primary disease being discussed and I didn’t know ‘everything’ there was to know about the disease and its treatments. I was simply a typical caregiver or family member who was attending their first conference.




MS Views and News
Providing educational information, resources and services for those affected by MS

Caregiver to Caregiver: We Are Not Alone


                                                                  
  

Click here to receive MS news via e-mail





Profile photo of Lisa Emrich
 

There’s nothing like sitting in a room with people you don’t know, looking into their eyes, listening to their stories and concerns, receiving words of wisdom, and learning that you truly are not alone, to crack the dam of pent-up emotions caused by dealing with a stressful situation and a future of the unknown.
That’s what happened to me on Saturday.
It doesn’t matter that I’ve been in this ‘business’ of patient empowerment, advocacy, education, support, and community for many years now. It doesn’t matter that I’ve written numerous articles on various aspects of dealing with a chronic disease. And, it really doesn’t matter that I’ve identified resources available for ‘other’ people dealing with patient and caregiver issues.
On Saturday, I attended an all-day conference with a family member who deals with multiple chronic conditions. At this particular event, I had very little in common with the patients in attendance. I didn’t have the primary disease being discussed and I didn’t know ‘everything’ there was to know about the disease and its treatments. I was simply a typical caregiver or family member who was attending their first conference.




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The jury is still out on the role, if any, that heavy metals play in multiple sclerosis


                                                                  
  

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Many theories have been floating around for years regarding the possible connection between MS and dental amalgams, pesticides, additives to food, lead paint in older homes … and the list goes on. 
The National Multiple Sclerosis website, under its list of disproved theories, has this to say: “Although poisoning with heavy metals such as mercury, lead or manganese can damage the nervous system and produce symptoms such as tremor and weakness, both the process and the symptoms are different from what occurs in MS. There is no evidence that heavy metal exposure causes MS.”
Maybe there is no concrete evidence to prove heavy metals contribute to this disease, but I also couldn’t find any concrete evidence to prove that they don’t.

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The ABLE Act: A Tax-free Benefit for People with MS That Could Be Better


                                                                  
  

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Disability from multiple sclerosis develops, on average, within 10 years of diagnosis. Financial catastrophe was often the consequence, until Congress passed the Achieving a Better Life Experience Act (ABLE Act) — signed into law on Dec. 19, 2014, by President Obama.
This act allows you or anyone to put money into a special non-taxable account for you, up to $100,000, and you will still be eligible for Medicaid and SSI (Supplemental Security Income). The grand total allowed in ABLE accounts is $500,000, but anything over the $100,000 will affect SSI and Medicaid eligibility (as it should). Here is a link to the ABLE National Resource Center website for more information.
I first became aware of the ABLE Act legislation because Sara Wolffput it forward as a petition on Change.org. When I saw it, I was amazed and thrilled at the possibilities. Primarily, I longed to eliminate terror from my financial future. I signed the petition immediately.
Sara Wolff has Down’s syndrome. Like all of us who live with disabilities, a future life of penury loomed. There was no point to a disabled person saving for the future, because having any assets beyond $2,000 (variable based on state definitions of excluded assets) would be forfeit, that is, require a “spend down” to qualify for assistance.
The ABLE Act has changed that requirement, and made it possible to save money for future expenses, especially expenses that would require an extensive quantity of cash — for example, new car tires or new home appliances  — without losing eligibility for government assistance.
Here is the original language proposed: CLICK HERE to read




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