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Thursday, May 18, 2017

Understanding Multiple Sclerosis (MS) in Children and Teens

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How does Stony Brook treat children and teens with MS?
Our National Pediatric MS Center has a multidisciplinary team known for its comprehensive approach. The program begins with a comprehensive multidisciplinary evaluation conducted over one or two days.
The evaluation includes:
A neurological assessment by a pediatric neurologist and MS specialist
• Review of medical records
• A neuropsychological evaluation and psychological assessment to evaluate the impact of MS on cognition, academic performance and emotional functioning
• An MRI may possibly be performed and evaluated with our neuro-radiologist to assess the disease
• Ophthalmology exam
• Individual psychological support for patients and their family members
• Neuropsychological evaluation
• Assistance, if needed, with school issues
• Nursing support
Once a diagnosis is made, the team develops a treatment plan, which is shared with the family, the child’s primary care physician and the local neurologist. We have access to disease modifying therapies including infusion medications. The plan may also include developing a relationship with the local healthcare providers in order to coordinate care near the home. In addition, the plan may include physical, occupational and speech therapy, counseling and more. Note that we work closely with the child’s primary care physician and local neurologist, and serve as consultants in the ongoing care of the patient. Educational materials regarding MS and its treatment are also provided. And, because of our role as National Pediatric MS Center, we have access to a worldwide network of international experts. We consult on difficult cases around the world and we are pleased to offer this high level expertise in our own community.

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