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Wednesday, June 7, 2017

Beginner's Guide to MS: The Impact of MS on Your Children


Lisa Emrich @LisaEmrich , Health Guide

Yesterday, Julie shared an excellent post, Telling my Kids, in which she describes discussing multiple sclerosis with her children.

"It was shortly after that when I started talking very openly in front of my kids about having MS. It was on my mind a lot so I brought it up a lot. Instead of waiting for the questions, I integrated talk about MS into my conversation. It wasn’t in a complaining way. Instead, I welcomed it into our household instead of holding it at bay. If I didn’t feel like making dinner, I didn’t think twice about saying “Looks like peanut butter and jelly sandwiches on your own tonight.” If I was struggling to understand a rapid-fire, meandering conversation among family members, I would speak up and tell them to slow down."

The National MS Society (NMSS) has created an interactive resource, Keep S’myelin, designed especially for kids (5-12) and their parents to learn about MS in a fun and positive way.   New issues are published quarterly.   I was having fun the other day just browsing through the available issues online.   Good stuff!
_"Keep S’myelin is a colorful, engaging, informative, and reassuring newsletter to help children and their parents talk and learn about MS together. Each issue is filled with stories, interviews, games, and activities that highlight a specific topic related to MS, as well as a special section just for parents." _

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