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Friday, August 10, 2018

Video: The MS Improvement Project: Update Summer 2018

Did you know that some MS patients manifest IMPROVEMENTS to disability? It’s true, and I’m amazed that no one seems to talk about it. Well, we’re going to talk about it in this video!
In the modern era of 2018, with our highly effective disease modifying therapies, we now see increasing numbers of patients (upwards of 41% of patients in some clinical trials) who manifest “confirmed disability improvements” or CDI (link: https://youtu.be/TYvdnulc1Sk). CDI is defined as IMPROVING on the disability scale we use in MS (called the expanded disability status scale, or EDSS) by at least 1 point and maintained for at least 6 months. WOW!
Several symptomatic therapies IMPROVE functional outcomes in MS. In the 1st MS Improvements Project video (link: https://youtu.be/_tWRMuPjaz0), I talked about how symptomatic treatments for heat sensitivity and motor fatigue, pathologic fatigue and cognitive impairments, severe spasticity and depression. There is evidence amongst all these treatment that they can improved function in some patients.
In this Video, “The Improvement Project: Update Summer 2018” I share several real-life anecdotes of meaningful improvements amongst people with MS. I discuss improvements to cog fog, pathologic fatigue, fecal incontinence, neuropathic pain, comprehension of social cues, imbalance, bladder dysfunction and more. Please note that I’ve changed aspects of the stories to ensure patient privacy.)


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