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Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, for your personal knowledge and to keep you informed of current health-related issues. It is not a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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Saturday, September 1, 2018

Ready set go: MS5000 - this 50 day journey began on Saturday Sept 1st

A note from Paul Pelland (LongHaulPaul) to his bike riders

August 31, 2018

Hello and thank you for registering for the 2018 MS5000 Motorcycle fundraising challenge.

Fundraising is off to a good start, we have over $2000 raised even before we start riding! Awesome.

Here is a little more about where our efforts are going and why for the first time in years I am excited about the money we are going to raise through this event.

Over the past 5 years we have raised over $100,000 for an organization that has been difficult to work with and unwilling to help promote or even mention the efforts we have done on their behalf. After losing thousands of dollars in donations two years in a row and never bothering to even credit our event, I was discouraged and had decided not to do the MS5000 this year. I began searching for a new MS charity that wanted our money and even better, would be willing to work with me in a variety of ways. At the very least, answer my emails! I spent two years researching, visiting and talking to a handful of organizations before choosing the right one.

This year we are riding and raising money for MS Views and News, an organization that delivers free unbiased educational programs and services to people living with MS and their families. I have personally spent many hours discussing my goals and ideas for MS programs and presentations with them as well have already begun to speak at events for this charity.

For the last 6 years, I have been traveling around the country as an advocate, sharing my story to patients at pharmaceutical sponsored events and I believe I have made a difference in the lives of many newly diagnosed as well as those who had given up on life, letting this disease get the better of them. I always seek out the people who look to need the most encouragement and often stay until I have answered every question they have. Knowing I made a difference, even if in just one person's day, is an incredible feeling that propels me to continue sharing my story and inspiring others to overcome their challenges as well. Helping others along their path is what drives me to continue my journey.

These pharmaceutical events I speak at usually take place in bigger cities and places easily accessible by the neurologists and drug representatives, and quite frankly where patients receive better care. Each time I visit a smaller town or area of the country where there is not an MS center or population to support such educational programs, I am stunned at the level of disability, lack of information regarding new therapies and quite frankly, a loss of hope; hope of any future worth living for. My FDA approved speech is watered down and after the lawyers and compliance agents get a hold of it, loses much of my message.

I have so much more to offer and want to do so much more. I have been struggling to find a place where I can use my real story, my humor and visuals to engage and inspire on a much different level. MS Views and News has let me create and deliver a powerful and entertaining presentation without restrictions and sees the value having me present at their events will bring to their organization. So, this is why I am excited that my efforts, and your efforts during this event will be used to make a real and measurable difference in patients lives that I will be able to see with my own eyes.

The money we are raising this year will go towards a new initiative called The Ride to Reach Rural America, where together with MS Views and News, we will be reaching people in remote and rural areas, providing unbiased and unbranded patient programs along the backroads of America, delivering education, inspiration and hope where it is truly needed most.

Thank you for taking part, riding and raising money for this cause.

Please Donate to a MS5000 Rider - https://goo.gl/c9nMpk

Paul Pelland
Longhaulpaul
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Cheers,

 Paul

Paul  Pelland
Longhaulpaul
Chasing the Cure
A Million Mile Journey for MS




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