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Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, for your personal knowledge and to keep you informed of current health-related issues. It is not a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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Tuesday, May 15, 2018

#CMSC2018 – Julie Roberts, Country Music Singer and MS Advocate, Performing at CMSC Meeting

Julie Roberts, a country music singer and multiple sclerosis (MS) patient advocate, will perform at the upcoming Consortium of Multiple Sclerosis Centers (CMSC)’s annual meeting, the association announced.
Additionally, Julie will be presenting at the MS Views and News educational program on May 29th at the Nashville Marriott Airport, as showing here. to attend this event, RSVP here.   
Roberts, diagnosed with MS while making her second recording in 2005, will also attend #CMSC sessions to learn more about potential and current treatments, and ongoing research in the disease. The conference runs from May 30 to June 2 in Nashville.
She is set to perform at the meeting’s opening John F. Kurtzke Memorial Lecture and Luncheon on Wednesday, and again at its awards reception on Friday, June 1.
Her first single, “Break Down Here,” was a Billboard Top 20 Hot Country Song and she has sold millions of albums.
Roberts says she met her diagnosis with years of denial, refusing to pursue any treatment.
“I thought if I ignored my MS it would go away,” she said in a press release. Then another disaster struck.
Record-shattering rainfall flooded Nashville in early May 2010, inundating the Roberts family home and killing 26 people across Tennessee and neighboring Kentucky. Roberts and her family were rescued by boat, after frightening hours that led to an awakening.
“The flood rescue made me realize that I needed to manage my MS, adopt a healthy and positive lifestyle, and show others that the disease does not define who you are or stop you from pursing your dreams,” she said.
She now encourages patients to find a neurologist and healthcare team they trust and feel comfortable with to ensure the care they need.
“Julie Roberts is living proof of the mission of the CMSC and its Annual Meeting – to present MS healthcare teams with the latest information and tools to provide optimum care to those living with MS,” said June Halper, chief executive officer of CMSC. “We are excited to have Julie at our conference to entertain and share her MS journey with our attendees.”
In Roberts’ latest album, “I Think You Know,” produced by Shooter Jennings,  she sings about love, loss, roots, and redemption. She also has a biography,  “Beauty in the Breakdown, Choosing to Overcome,”  set for release in September.
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Doctor Discussion Guide: Newly Diagnosed with MS

Learning you have multiple sclerosis can be alarming and frightening. Here are some questions to ask your doctor about your new diagnosis to help you…

Receiving a multiple sclerosis (MS) diagnosis can leave you feeling overwhelmed and scared. But it’s important to remember that you’re not alone. The Multiple Sclerosis Foundation estimates that there are more than 2.5 million people living with MS around the world.
It’s normal to have a lot of questions about your new diagnosis. Getting your questions answered and learning about your condition can help you feel more at ease.
Here are some questions to ask your doctor during your next appointment.

What Symptoms Will I Experience?

Chances are, it was your symptoms that helped your doctor diagnosis you in the first place. Not everyone experiences the same symptoms, so it can be difficult to predict how your disease will progress or exactly what symptoms you will feel. Your symptoms will also depend on the location of the affected nerve fibers.
Common signs and symptoms of MS include:
  • numbness or weakness, usually affecting one side of the body at a time
  • painful eye movement
  • vision loss or disturbances, usually in one eye
  • extreme fatigue
  • tingling or “prickly” sensation
  • pain
  • electric shock sensations, often when moving the neck
  • tremors
  • balance issues
  • dizziness or vertigo
  • bowel and bladder issues
  • slurred speech
While the exact course of your disease can’t be predicted, 85 percent of those with MS have relapsing-remitting multiple sclerosis (RRMS). RRMS is characterized by a relapse of symptoms followed by a period of remission that can last months or even years. These relapses are also called exacerbations or flare-ups.

What Are My Treatment Options?

There’s currently no cure, but there are many effective medications available to treat MS. The three main goals for treatment are to:
  • modify the disease course by slowing MS activity for longer periods of remission
  • treat attacks or relapses
  • manage symptoms
Disease-modifying therapies (DMTs) approved by the Food and Drug Administration can effectively decrease the number of relapses and slow progression of your disease. Some DMTs are given by a medical professional through an intravenous infusion, while others are given by injection at home.


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