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Important Resources for the MS community are found on the left side of this blog.

Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, for your personal knowledge and to keep you informed of current health-related issues. It is not a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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Saturday, July 7, 2018

What is a Spinal Tap (aka Lumbar Puncture) for Multiple Sclerosis?



IN this video, Dr. Boster will teach you about cerebral spinal fluid (CSF) and how it relates to Multiple Sclerosis (MS). He will answer questions such as: What exactly is CSF? What are the functions of CSF? What is a Spinal Tap? (and I share 3 pro tips for LP headaches!) How does CSF help diagnose PPMS? How does CSF help diagnose Relapsing MS? AND if you watch until the end...how we may soon be able to monitor response to MS treatment through a new-future biomarker, neurofilament light chain! If you'd like answers to these questions, start watching this video now! Please leave your comments and questions below.


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Tuesday, July 3, 2018

"Country Chic" MS Benefit, honoring country singer Julie Roberts and Paul Pelland (LongHaulPaul)

 "Country Chic" MS Benefit, honoring country singer Julie Roberts 
and Paul Pelland (aka: LongHaulPaul)
           
Save the Date
J
oin us on October 27th, 2018 


Save on ticket price - purchase early   Ticket Information found here

Learn more of this event by writing to: champions@msvn.org



Sunday, July 1, 2018

SSDI (Social Security Disabilty) Laws


                  
April 28, 2018 - from Atlanta, Ga.

Featuring Lisa Gonzalez Goetz, PA

Speaking in everyday language about Social Security disability laws

Listen to Learn


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A Compass to MS Care - Partnering with and Understanding a Comprehensive Healthcare Team with MS neurologists Williams and Thrower



Video Recorded on April 28, 2018 in Atlanta, Ga. - https://youtu.be/v6qkbaCcK_I In this video listen with MS Neurologists, Dr. Williams from the MS Center of Atlanta and Dr. Ben Thrower from the Shepherd Center in Atlanta as they discuss: - Putting together the pieces of the puzzle: Is MS management a “one-size fits all model”? Defining priorities & goals; Understanding your options and communicating your unique needs as they change to your healthcare team Plus: What is a comprehensive healthcare team in relation to MS? Getting your needs met through the utilization of an interdisciplinary team and Recognizing and managing MS relapse in your life ---------------------------------------------- To see Social Security attorney Lisa Gonzalez Goetz, click here: https://youtu.be/unB7fSiotUQ


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Online Aid for MS Patients with Cognitive Difficulties Now Part of MyMSTeam


Online Aid for MS Patients with Cognitive Difficulties Now Part of MyMSTeam

MyHealthTeams together with Biogen launched a new online tool center, called MS and Cognition Resource Center, to educate multiple sclerosis (MS) patients on brain health, and to help them better understand how MS impacts the brain and how they might manage the cognitive challenges the disease brings.
“Educating people within the context of a social network where they’re already seeking trusted information and authentic connection is a powerful way to engage patients,” Eric Peacock, co-founder and CEO of MyHealthTeams, said in a press release.
MyHealthTeams creates social networks for people with chronic health conditions.
The idea to launch the MS and Cognition Resource Center stemmed from a study, sponsored by MyHealthTeams and Biogen, among members registered at the MyMSTeam — a website and mobile app for anyone living with MS, including caregivers. MyMSTeam, which opened in 2013 currently has more than 100,000 registered members.
The study identified several factors that impact patients’ daily life, and cognitive impairment was among one of the top five symptoms identified. Moreover, 49% of MyMSTeam members surveyed said that symptoms indicative of cognitive impairment preceded their MS diagnosis.
The resources now available through the MS and Cognition Resource Center include an introduction to how the brain works, and how MS impacts brain health and cognitive abilities, highlighting signs of potential cognitive impairment: e.g., difficulties in memory or recall, difficulties in learning new things, as well as easily forgetting appointments or people’s names; difficulties in attention and concentration; impairments in problem-solving and dealing with complex tasks.

Join our MS News Today forums to discuss living with MS.

The online tool also includes tips on how to improve brain health — examples include routine physical exercise and mind exercises, a healthy diet and disease-modifying therapy (DMT) — as well as day-to day tips for managing MS cognitive challenges.
Patients can also download a discussion guide to help them discuss cognitive difficulties and ways of managing them with their doctor.
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