tag:blogger.com,1999:blog-8010368813638032407.post2735195470400498197..comments2023-10-08T06:22:08.767-04:00Comments on MS Views and News: An MS Story - POST HIATUS ( 3rd story in this series)Stuart http://www.blogger.com/profile/14853421273383452873noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-8010368813638032407.post-17427693458254742642009-01-30T17:18:00.000-05:002009-01-30T17:18:00.000-05:00Hi Stuart,My boyfriend of 2 years has MS and is li...Hi Stuart,<BR/><BR/>My boyfriend of 2 years has MS and is living with me. He hates taking his daily injections. If I dont give him the injection, more so than not, he wont do it himself, he has gone days without taking it, him, advoidence, me just watching to see how long he would go without it. After reading your story, I will be more diligent in making sure, I or he gives himself his injection once a day.<BR/>Thanks for all you do.<BR/><BR/>Janice Guibert<BR/>jlguib@aol.comAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8010368813638032407.post-61100622147371312302009-01-19T00:20:00.000-05:002009-01-19T00:20:00.000-05:00Hi Stuart and friends,I've never missed a sho...Hi Stuart and friends,<BR/><BR/>I've never missed a shot of my first Copaxone and since Betaferon, but I did try an experiment on myself with Lyrica. <BR/><BR/>I finally got approval for Lyrica exactly a year ago, 1/2008. I couldn't wait to get started on it as PAIN, neuropathic and whatever else, is one of my major, life-altering sx.<BR/><BR/>My main mental problem is my hysteria about gaining weight.<BR/><BR/>Ok, from Jan, 08 through May, 08 I put on a kg (2.2 lbs) or 2, but my clothes were fine, jeans fit as usual. Then some time between May and Sept I started blowing up like bread dough with too much yeast :-O . My wt went up and down with a span of 3 kg. I went over 60 kg around Oct 2008 and went into ataomic hysteria.<BR/><BR/>What did I try to do? As we all know, one of the side-effects of Lyrica is possible wt-gain. I read about people who put on over 100 lbs and started shaking in my proverbial boots. To try and reverse this gain I decided I would cut down and then out the Lyrica that gives me more relief than anything else at this point. Within only 4 days I was miserable. The pain level had shot through the roof :-( . I decided I couldn't torture myself like that and slowly went back on my daily dose of Lyrica.<BR/><BR/>Although I have my neuro's agreement to take up to 450mg / day, I work hard at not taking more than 300 mg daily. I'm succeeding at keeping my wt around 59 - 59.5 kg. I've had to get new jeans - 1 inch bigger than my norm. That upsets me terribly. I finally felt good with my body and then I had to go through menapause and Lyrica and mess it all up.<BR/><BR/>End of story and the lesson I learned: when meds are doing what they're supposed to do for you, DON'T MESS WITH THEM!<BR/><BR/>Just take care and feel good.<BR/><BR/>Peace & Serenity,<BR/>Maris in IsraelAnonymousnoreply@blogger.com