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Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, for your personal knowledge and to keep you informed of current health-related issues. It is not a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.


Wednesday, December 31, 2008



My wife, Kris said, "Whatcha doin today?"

I said, "Nothing."

Kris said, "You did that yesterday."

I said, "I wasn't finished."

Provided by Darlene, In Pembroke Pines, Fl.

Tuesday, December 30, 2008

"Do You Laugh or Cry Uncontrollably"?

If you laugh or cry uncontrollably, You are Not Alone!
You may be one of more than one million Americans suffering from a neurological condition called Pseudobulbar affect.

If you or someone who know experiences episodes of uncontrollable laughing and/or crying, you may be eligible to participate in a clinical research study, now underway, to treat PBA ( Pseudobulbar Affect). This study is known as the STAR Trial (Safety, Tolerability and Efficacy Results of AVP-923 in PBA).

To Learn More of PBA and The STAR Trial, talk to your doctor or visit

If however you are living in South Florida, "Neurological Associates" is currently conducting a clinical research trial to study the Pseudobulbar Affect on patients having a confirmed diagnosis of Multiple Sclerosis.
To see if you may be eligible to participate in this study, please call their office located at 572 East McNab Road, Suite 202, Pompano Beach, FL 33060. Tel: 954-738-1697

** OR ** visit THIS SITE for further information (Once the website opens, click on the banner ad that reads "DO YOU LAUGH OR CRY UNCONTROLLABLY")

To View OTHER Star Trial for PBA locations click this link
This link was provided to me by Cherie C. Binns RN BS MSCN
Suggestions, Comments, or Questions, are always appreciated. - Thank you

Immune Molecule Decreases Severity Of Multiple Sclerosis-like Disease In Mice

Science Daily - Dec. 30, 2008) — A group led by Dr. Cedric Raine at Albert Einstein College of Medicine have explored the expression of an immune molecule (CXCL1) that interacts with myelin-producing cells, finding that CXCL1 decreases the severity of disease in a mouse model of multiple sclerosis (MS).

The autoimmune disease multiple sclerosis (MS) attacks the central nervous system, resulting in demyelination of neurons. Myelin-producing cells in the central nervous system are severely depleted in lesions in patients with MS.

» Read More

.Please return to this page to Leave :
Comments and/or Questions Thank you

Saturday, December 27, 2008

Tips for Recycling Electronic Waste

By the staff of Earth911

In the 1970s, Gordon E. Moore theorized that computer processing power doubles about every 18 months especially relative to cost or size. His theory, known as Moore’s Law, has proved largely true. Thinner, sleeker, and faster computers have replaced the big boxes and monitors people once owned 10 years ago.

This phenomenon is not limited to computers. Each day, various types of consumer electronics are constantly being upgraded or completely scrapped in favor of technological advancements. In the process, scores of old VCRs, walkman cassette decks and bulky video cameras become what is known as “e-waste” or electronic waste.

Americans have amassed an enormous amount of electronic devices—an estimated three billion in total. Given the large amount of potential products involved, e-waste includes a broad range of electronic devices. Unfortunately, improper disposal of e-waste creates a significant burden on landfills because toxic substances can leach into the soil and groundwater. Absent recycling, the problem could escalate.

The total annual global volume of e-waste is expected to reach about 40 million metric tons. In the U.S. alone, it is estimated that we generated 1.5 billion pounds of all kinds of e-waste in 2006. This includes an estimated 44 million computers and televisions.

This amount is likely to increase because e-waste is growing at three times the rate of other municipal waste. Although e-waste accounts for only one to four percent of municipal waste, it may be responsible for as much as 70 percent of the heavy metals in landfills, including 40 percent of all lead.

Certain items are particularly harmful. For instance, CRT-based computer and television monitors contain on average four to eight pounds of lead, a highly toxic heavy metal.

E-waste should not be considered waste. It is a resource. Useful materials such as glass, copper, aluminum, plastic and other components can often be extracted and reused. Some manufacturers have even referred to e-waste as a valuable source of materials.

With an increasing array of environmentally-friendly options now available, people should consider recycling or donating their old electronic devices. With either choice, we can reduce the amount of e-waste and actually put our old items to good use.

More information about recycling electronics:

Content provided by Earth 911, the leading nationwide directory of local recycling resources.

Suggestions, Comments and/or Questions are always appreciated.. - Thank you

Wednesday, December 24, 2008

Shmoozin with Susan - Setting Personal Goals for the New Year

Shmoozin' with Susan - Occupational Therapist

Greeting the New Year

Setting Personal Goals

Many people enjoy ringing in the New Year and use it as a time for reflection and a time to look toward the future. However for many, it can be a difficult time as they are faced with challenges that impact their lives and uncertainties for the future.

As we look toward the year ahead, we have a tendency to set resolutions, to look at things we can do differently to better ourselves and/or others. For me, setting resolutions was something I would try to do annually but I was finding that most of the time they seemed to be the same ones. At one point I decided to create ‘rollover resolutions’…..why try to set more when in all actuality, they were just the same old ones said differently! Now I’m approaching this in another way, I have substituted resolutions with personal goals.

Read balance of Susan's Story - Click here - then scroll down on her page to find this story.

Come back to this page to leave any comments you may have...

Tuesday, December 23, 2008


Press Release - December 23, 2008



- Survey Results Indicate New Needle Significantly
Preferred By More Than Three Out of Four Patients -

Kansas City, MO – December 23, 2008 – Teva today announced the launch of a new, thinner, 29-gauge pre-filled syringe for its multiple sclerosis (MS) treatment, COPAXONE® (glatiramer acetate injection). A recent survey of 562 MS patients found the new thinner needle was significantly preferred by 77 percent of patients over the previous 27-gauge needle.

“I used to hesitate before administering my daily injection because of slight discomfort experienced in the past,” said Stacia D., COPAXONE® 29-gauge needle patient. “With the new 29-gauge needle, I immediately noticed less discomfort with each injection, and I no longer hesitate about taking my medicine.”

» Read More

Have a comment that you would like to share with others?

Does MS always cause paralysis?

FAQ's - from the National MS Society

Does MS always cause paralysis?

No. Moreover, the majority of people with MS do not become severely disabled. Two-thirds of people who have MS remain able to walk, though many will need an aid, such as a cane or crutches, and some will use a scooter or wheelchair because of fatigue, weakness, balance problems, or to assist with conserving energy.

Have a comment or suggestion? Feel free to leave it for others to see...


Only one in 10 people with multiple sclerosis are being treated with key drug, (UK) government admits - Tuesday 16 December 2008

Sarah Boseley, health editor

Only around one in 10 of those who are eligible for a new drug to treat multiple sclerosis are getting it, even though it was approved a year ago for use in the NHS, the Guardian has been told.

Natalizumab, which goes by the brand name Tysabri, is the first drug that the National Institute for Clinical Excellence has approved for multiple sclerosis.

Comments and/or Questions are always appreciated.. - Thank you

re: Stu's Views MS e-Newsletter

FYI ---

The newsletter will be published this Thursday ( on Christmas day).. Have had many people asking me and yes, it will be published.........

You can now also find me on facebook, for those that have ventured into this domain.....

Keep in touch and Happy Holidays.


Suggestions, Comments and/or Questions are always appreciated.. - Thank you

Corpus callosum damage and cognitive dysfunction in benign MS

2008 Dec 9. [Epub ahead of print] - Pubmed

summary:The authors used MRI techniques to study an important white matter structure commonly affected in MS in people with a long disease duration and little physical disability. They found an association between damage to this structure and cognitive function

Mesaros S, Rocca MA, Riccitelli G, Pagani E, Rovaris M, Caputo D, Ghezzi A, Capra R, Bertolotto A, Comi G, Filippi M.

Neuroimaging Research Unit, Scientific Institute and University Ospedale San Raffaele, Milan.

» Read More

Suggestions, Comments and/or Questions are always appreciated.. - Thank you

Saturday, December 20, 2008

Popular Hypothesis Concerning Emergence Of Multiple Sclerosis Contested

Science Daily

ScienceDaily (Dec. 20, 2008) — During an autoimmune disease, the endogenous defence system (the immune system) loses the ability to distinguish between "self" and "foreign." As a consequence, the immune system directs its defence against itself, with fatal consequences. In the case of multiple sclerosis, a chronic, inflammatory autoimmune disease, the immune system attacks the protective layer encapsulating the nerve fibres: This protective layer formed by myelin works like insulation for electrical cables. If the insulation is damaged, the nerves can no longer transmit messages effectively.

» Read More

Suggestions, Comments and/or Questions are always appreciated.. - Thank you

Cognition Pharmaceuticals Announces: Positive Memory Results For Phase II Trial Of C105 In Multiple Sclerosis

Medical News Today Article Date: 18 Dec 2008

- Cognition Pharmaceuticals LLC announced positive results from a Phase 2 clinical trial of C105 (l amphetamine sulfate) on 151 Multiple Sclerosis patients with documented cognitive dysfunction.In the six-week placebo-controlled study, Cognition Pharmaceuticals reported, the active group obtained significantly higher scores on secondary outcome measures of memory and learning, including the Brief Visuospatial Memory Test - Revised, Total Recall (p = 0.041) and Delayed Recall (p < 0.01), and the California Verbal Learning Test, Long Delay Free Recall (p = .012). Safety data were unremarkable with a limited side-effect profile.
» Read More

Suggestions, Comments and/or Questions are always appreciated.. - Thank you

Friday, December 19, 2008

Keeping your Brain Healthy

Rec'd with this months AARP e-Newsletter:

50 Ways to Keep Your Brain Healthy

Research shows that the things you do every day can actually
exercise your brain. Our brain teasers range from
snacking on walnuts to ballroom dancing.
Check them out!

Click here to continue »

Related Link:
Five Tools for Improving Your Memory


Multiple Sclerosis Patient who was using Tysabri developed PML (a Brain illness) has died


Biogen Says Tysabri Patient With Brain Illness Died

By Elizabeth Lopatto

Dec. 19 (Bloomberg) -- A multiple sclerosis patient who developed a severe brain infection after taking Biogen Idec Inc. and Elan Corp.’s Tysabri, the fourth case reported in five months, has died, according to Biogen.

Cambridge, Massachusetts-based Biogen was informed of the American woman’s death two days ago, company spokeswoman Naomi Aoki said in an interview.

The company reported on Oct. 29 that the patient had been diagnosed with the brain illness, progressive multifocal leukoencephalopathy (PML).

Comments and/or Questions are always appreciated..

From the Nat'l MS Society: MS Learn Online Presents

Today's new Feature Presentations focus on employment issues.
This Feature Presentation will discuss common barriers to employment as a result of MS and how to overcome those barriers, as well as how to access rehabilitation counseling.

MS in the Workplace
This Feature Presentation examines the issues of MS in the workplace from the perspective of the employer.

Suggestions, Comments and/or Questions are always appreciated.. - Thank you

Very Cool online Radio (Entertainment)

Received from Sheryl in Miami

Very Cool online Radio:
Type a song or your favorite artist and it will bring it up
and then keep playing songs from that era

Click on the middle tab and you will get a list
of all kinds of music.


Make Others Smile...
Do you have an item to share with others?


Who is your real friend? - (Humor)

My father's humor:

Who is your real friend?

This really works...!
If you don't believe it, just try this experiment:

Put your dog and your spouse in the trunk of the car for an hour.

When you open the trunk, who is really happy to see you?


Wednesday, December 17, 2008

Multiple sclerosis drug natalizumab may reduce immunity

News-Medical Net
Published: Tuesday, 16-Dec-2008

A drug used to treat multiple sclerosis might make some patients vulnerable to brain infection by reducing the number of immune cells there, researchers at UT Southwestern Medical Center have found.

The findings also suggest that the drug, natalizumab, might be safer and more effective when given with treatment "holidays" instead of continuously over long periods, the researchers said.

"Natalizumab is very effective in keeping pro-inflammatory cells out of the brain to reduce damage from MS," said Dr. Olaf St?>, assistant professor of neurology at UT Southwestern and senior author of the study, which appears in the December issue of Archives of Neurology.

But the potential downside is interference with immune surveillance against infection, he said. Thus, infections of the brain or spinal cord may go undetected until they become a serious problem.

Continue reading by clicking here ( taking you to the originating site)

Suggestions, Comments and/or Questions are always appreciated.. - Thank you

4th case of PML in 2008 for Multiple Sclerosis patient on Tysabri

Reported by Trent S.-in Miami -- thanks Trent

Biotechnology companies Biogen Idec Inc. and Elan Corp. on Monday reported the fourth case this year of a deadly brain infection in a patient taking their multiple-sclerosis drug Tysabri.

The companies said they notified relevant regulatory agencies about the patient, located in the European Union, on Dec. 11. That patient has received about 26 months of Tysabri for the autoimmune condition multiple sclerosis and is being treated by a physician.

The drug has been facing pressure on the market since August, when the companies reported two new cases of the brain infection called progressive multifocal leukoencephalopathy, or PML. A third case was reported in November. More than 35,500 patients are taking the drug worldwide.

The companies have argued the risks, which are on the drug's label, are outweighed by the benefit the drug provides to multiple sclerosis patients. Tysabri was pulled from the market in 2005 after being linked to PML but reintroduced under restricted sales conditions in mid-2006.

Source: © 2008 Cable News Network.(15/12/08)

Suggestions, Comments and/or Questions are always appreciated.. - Thank you

Tuesday, December 16, 2008

Think Tank Examines How to Turn More Lab Discoveries into New Therapies for Progressive MS

National MS Society
Dec 12, 2008

What are the barriers to finding therapies that can stop and reverse the nervous system injury caused by multiple sclerosis? A think tank held by Fast Forward, LLC, the National MS Society’s drug discovery venture, in collaboration with Harvard’s NeuroDiscovery Center, gathered representatives from venture capital firms, voluntary health and patient advocacy groups, pharmaceutical and biotechnology companies, and university-based research scientists to share information and ideas around this issue and ways to overcome them.

» Read More

Suggestions, Comments and/or Questions are always appreciated.. - Thank you

Oral FTY720 (Fingolimod) Reduced Relapse Rate More Effectively Than...

Nat'l MS Society News
Dec 12, 2008

Before reading the information found below, please take note that if you are not yet using a mainstream MS medication and would like to enroll in an FTY720 clinical trial, contact your doctor to learn of a study location nearest you. OR, if in South Florida, Click HERE to see where you can enroll and/or obtain further information on FTY720..

Oral FTY720 (Fingolimod) Reduced Relapse Rate More Effectively Than Avonex in Initial Results of One-Year Study in Relapsing-Remitting MS

The experimental oral drug FTY720 (fingolimod, Novartis) reduced relapses significantly more than Avonex® (interferon beta-1a, Biogen Idec) in a one-year study involving 1,292 people with relapsing-remitting MS. Serious adverse events in the FTY720 group included two deaths from herpes infections and seven cases of localized skin cancer. These initial results are reported in a press release from Novartis, which notes that analysis of these data is ongoing and that two other large-scale, phase 3 trials of the drug are ongoing. The company expects to submit an application to the FDA for approval by the end of 2009.

Suggestions, Comments and/or Questions are always appreciated.. - Thank you

Sunday, December 14, 2008

Estriol to be studied as MS treatment in UCLA trial

Estriol to be studied as MS treatment in UCLA trial
Los Angeles Times - CA,USA
To try to develop kinder and more effective treatments for MS, Dr. Rhonda Voskuhl, director of the UCLA multiple sclerosis program, is reexamining the ...

Click above to read

The Secret Lives Of Bloggers (And ALL Human Beings)...

The Secret Lives Of Bloggers (And ALL Human Beings)...
My goal has always been (and will continue to be) to provide a public forum for those dealing with Multiple Sclerosis in which there is education, common bonding, and a sense of community provided in what I have tried to mask behind ...

Click the above link to read BRAINCHEESE

Friday, December 12, 2008

Novartis’s Multiple Sclerosis Drug (FTY720) Cuts Relapse Rates

A Bloomberg Report

Novartis’s Multiple Sclerosis Drug Cuts Relapse Rates (Update1)

By Dermot Doherty and Naomi Kresge

Dec. 12 (Bloomberg) -- Novartis AG, Switzerland’s second- biggest drugmaker, said its experimental oral treatment FTY720 kept multiple sclerosis at bay in a study.

The medicine cut annualized relapse rates by 38 to 52 percent in the study, depending on the dose, compared with treatment with Biogen Idec Inc.’s interferon therapy Avonex, the Basel, Switzerland-based company said today.

The compound was “generally well-tolerated” and the side effects were in line with previous trials, Novartis said. Seven patients in the study were diagnosed with skin cancer in the FTY720 group, compared with one patient in the interferon group. All the skin cancers were successfully removed, the Swiss company said. Novartis already reported two fatal herpes infections in patients being treated with its drug, which suppresses the immune system.

“The safety profile of FTY720 has been a primary concern for investors, and over time more and more safety issues have shown up,” Tim Anderson, an analyst for Sanford C. Bernstein & Co., wrote in a note to investors. “It is important to realize, however, that all currently available MS drugs have significant side effects.”

Novartis fell as much as 3 percent to 53.5 Swiss francs in Swiss trading. The stock declined 60 centimes, or 1.1 percent, to 54.55 francs at 11:54 a.m.

The Swiss drugmaker said it will release full results at a major scientific conference in 2009. The company plans to ask regulators in Europe and the U.S. by the end of 2009 to approve FTY720, potentially the first oral pill for multiple sclerosis.

To contact the reporter on this story: Dermot Doherty in Geneva at

Last Updated: December 12, 2008 06:01 EST

Suggestions, Comments and/or Questions are always appreciated.. - Thank you

Take some time for yourself and relax

Provided by Joe in Florida:

This holiday season, MS LifeLines® wants to remind you to take some time for yourself and relax!

Amidst the hustle and bustle of the season, it's important to try to schedule some downtime for yourself. Even finding twenty minutes in a day to unwind and relax can go a long way to relieving tension and recharging your batteries.

MS LifeLines Ambassador Teresa knows how important it is to relax. Whether it's crocheting, reading, doing crossword puzzles or watching her favorite television game show, Teresa knows that relaxing is an important part of her day that also delivers real health benefits. "I love doing word puzzles because they help me unwind and keep my mind sharp."

Relaxing can provide lots of health and wellness benefits, including helping you have better sleep, a decrease in tension and more energy. And there are many, many ways to relax. For instance, reading is a wonderful way to exercise your mind and escape from the day-to-day. If reading is difficult on your eyes, find books with larger print or books on tape or CD, all of which are available at most local libraries.

Learn about how different activities like exercising, meditation, and laughing can help you relax!

Suggestions, Comments and/or Questions are always appreciated.. - Thank you

Thursday, December 11, 2008

MRI Can Spot Presymptomatic MS

HealthDay News

A third of patients with suspect scans develop the disease within 5 years, study finds

Posted December 10, 2008

WEDNESDAY, Dec. 10 (HealthDay News) -- Among people whose brain scans show signs of multiple sclerosis but who have no symptoms, one-third will develop MS within about five years, researchers say.

The study included 44 people who had MRI brain scans for a variety of reasons, including migraines or head trauma. The scans detected abnormalities similar to those that occur in MS. After the researchers confirmed these abnormalities were MS-related and ruled out other causes, they followed the patients for a number of years to find out if they developed the disease.

Suggestions, Comments and/or Questions are always appreciated.. - Thank you

Wednesday, December 10, 2008

MS Research Studies underway at: Neurological Associates Research

Research Ctr information found below the listing of:


  • Relapsing-Remitting MS - A 24 month study comparing the efficacy and safety of 2 different doses of oral Fingolimod versus placebo with an optional extension phase. For more information visit:

  • Relapsing- Remitting MS - A 4 year study to compare 2 annual cycles of intravenous low and high dose alemtuzumab(Campath) to three times weekly subcutaneous Rebif in patients who have relapsed on therapy. For more information visit: :

  • Relapsing-Remitting MS - A 2 year study comparing safety and efficacy of 2 different doses of oral Fumarate versus placebo with Copaxone as an active comparator. For more information visit:

  • Relapsing Remitting MS - an 85 day study to assess safety and efficacy of 2 oral doses of Dextromethorphan/Quinidine in the treatment of Pseudobulbar Affect (inappropriate laughter/crying) with an optional extension phase. For more information visit:

  • Relapse-Remitting MS- A 2 year study comparing safety and efficacy of 2 cycles of Alemtuzumab (Campath) intravenous Versus 3 times weekly subcutaneous Interferon Beta-1a (Rebif).

Learn More of the above studies by contacting the office of: Neurological Associates Research (Dr. Brian Steingo)
>>>>> Click here to review contact information


Large Study of Oral Laquinimod Seeking People with Relapsing-Remitting MS

Large Study of Oral Laquinimod Seeking People with Relapsing-Remitting MS

To learn more of ORAL LAQUINIMOD,

click here to review info ad found on the MS Views and Related News website

>> click here to review the Teva Clinical Trial Ad.

There are two Laquinimod Clinical Trials.
Allegro, which is now closed to enrollment (that sought 1000 patients) and Bravo, whose enrollment is still open and seeking 1200 patients.
...,,, Click here to review the Bravo Clinical Trial Information


Rationale: Multiple sclerosis occurs when the immune system mistakenly attacks nerve fiber-insulating myelin and other brain and spinal cord tissues. Laquinimod is believed to affect this attack. Oral laquinimod (Teva Pharmaceutical Industries) reduced disease activity by 40.4% compared with inactive placebo in a phase 2 study of 306 people with relapsing-remitting MS. (Lancet 2008; 371: 2085–92) A phase 3 study of laquinimod versus inactive placebo is currently underway in 1000 people with relapsing-remitting MS.


Great Strides Moved MS Research Forward During 2008

Dec 02, 2008

The year saw rapid research progress in virtually every field of science and medicine that impacts our understanding of the unpredictable neurological disease of multiple sclerosis. Thanks to its generous contributors, in 2008 the National MS Society invested nearly $50 million to support over 440 new and ongoing MS research projects as part of its international effort to prevent, treat and cure MS.

Significant advances have been made in both clinical and laboratory studies in MS. In addition, more than 130 clinical trials are underway around the world – with over one dozen final-phase trials of new therapies including some taken by mouth. Key highlights of the last year include:

To Read Balance of this article from the Nat'l MS Society, Click Here

Return to this page if you want to leave a comment. Thank You

What is pseudobulbar affect (PBA)?

What is pseudobulbar affect (PBA)?
PBA is a condition characterized by episodes of uncontrollable laughing and/or crying that may be inappropriate, unrelated to the situation at hand, or not expressing the person's mood. The condition is known by other terms, including emotional lability, emotional incontinence, and pathological laughing and crying.

PBA is associated with neurologic disorders that may include, but are not limited to multiple sclerosis (MS), amyotrophic lateral sclerosis (ALS), dementias including Alzheimer's disease, Parkinson's disease, stroke, and traumatic brain injury.

How many people live with PBA?
A significant percentage of patients with neurologic disorders also suffer from PBA - estimates of frequency range from 10 percent to 50 percent. More than one million people may suffer from PBA in the United States alone.

Suggestions, Comments and/or Questions are always appreciated..
- Thank you


How Schwann Cells Might Be Altered So That They Might Be Better Candidates For Myelin Transplantation

From the Myelin Project:

How Schwann Cells Might Be Altered So That They Might Be Better Candidates For Myelin Transplantation
Author: Anne Baron-Evercooren, PhD
Release Date: Wednesday 10-Dec-08 2:00 PM
Dr. Anne Baron-Evercooren, Centre Hospitalier Universitaire, Pitié-Salpêtrière, Paris, presented her investigation of how Schwann cells might be altered so that they might be better candidates for myelin transplantation. By forcing the cells to express an enzyme, sialyltransferase, their ability to migrate was greatly improved. Schwann cells (SC) form myelin in the peripheral nerves and are easy to get. Despite their obvious repair potential in the central nervous system (CNS),... [More Info]

Suggestions, Comments and/or Questions are always appreciated.. - Thank you

How Can the "MS Hug" be Managed?

info obtained from

The "MS Hug" is an annoying and often painful MS symptom. If the symptom is severe enough to cause discomfort breathing, your neurologist may define this as a true relapse, run an MRI and give a course of Solu-Medrol. There are also several medications which can be prescribed that can provide varying degrees of relief (see below).

The following suggestions have been taken from different patient accounts of what helps them – different things may work for you at different times:

Deep Breathing Exercises: Breathe in as deeply as you can (really engaging the diaphragm) through your nose and blow out through your mouth.

Apply Pressure: Place the flat of your hand on the area and press fairly hard. I have even heard of people wrapping themselves in Ace bandages for the same effect.

IF YOU Suffer from the MS Hug, please tell others what you do to manage this symptom.
Leave your comment here. - Thank you


Help the Obama Administration Frame Comprehensive Health Care Reform More Info

As the Obama Administration and the 111th Congress prepare to convene, we have an early opportunity to make an impact on the discussion around comprehensive health care reform.

President-elect Barack Obama recently sent out a call to action for all Americans. The incoming Administration wants you to engage your family and friends in a dialogue about comprehensive health care reform.

» Read More



Misc. Info: If you want to reduce the amount of SPAM you are receiving...

Information provided by Susan in Miami

AND IT IS TRUE --- If you want to reduce the amount of SPAM you are receiving, stop doing what is mentioned below

In case you are unaware:
Forwarded to me today:
Here is a nice little tidbit of information that came my way this morning. So if any of you are wondering why I didn't return something to you that said something like "if I don't get this back, I'll". . . or "See how many flowers you can get back," or "Forward this to 10 people in the next 5 mins. or something bad will happen to you," etc.

The following is why I don't send them back.


1) Any time you see an email that tells you to forward this on to '10' of your friends, or sign this petition or you'll get bad luck, good luck, or whatever, it almost always has an email tracker program attached that tracks the cookies and emails of those folks you forward to.

The host sender is getting a copy each time it gets forwarded, and then is able to get lists of "active" emails to use in spam emails, or sell to other spammers.

2) Almost all emails that ask you to add your name and forward on to others are similar to that mass letter years ago that asked people to send business cards to the little kid in Florida who wanted to break the Guinness Book of Records for the most cards.

All it is, and all any of this type of email is, is a way to get names and "cookie" tracking information for telemarketers and spammers - - to validate active email accounts for their own profitable purposes.

You can do your friends and family members a GREAT favor (PLEASE) by sending this information to them. You will be providing a service to your friends, and will be rewarded by not getting thousands of spam emails in the future!

If you have been sending out (forwarding) the above kinds of emails, now you know why you get so much spam!

Do yourself a favor and STOP adding your name to those types of listings regardless how inviting they might sound! You may think you are supporting a GREAT cause, but you are NOT in the long run. Instead, you will be getting tons of junk mail later! Plus, you are helping the spammers get rich! Let's not make it easy for them!

Also, email petitions are NOT acceptable to Congress or any other organization. To be acceptable, petitions must have a signed signature and the full address of the person signing the petition.

Read the full story here:

Tuesday, December 9, 2008

UK MS Society calls for law change on unproven stem cell trials

Info obtained from the MSIF.

UK MS Society calls for law change on unproven stem cell trials
Following the recent guidelines on unproven stem cell treatments by the International Society for Stem Cell Research (ISSCR), the UK MS Society is calling on the UK government to change the law on advertising medicines.

The MS Society supports the advice from the ISSCR that patients and their families should approach stem cell therapy with caution. To read more click here.

ISSCR: patient handbook on stem cell therapies

Source: UK MS Society

Suggestions, Comments and/or Questions are always appreciated.. - Thank you

MRI in the diagnosis of pediatric multiple sclerosis

Neurology. 2008 Nov 26. [Epub ahead of print]

Summary: MRI diagnostic criteria have not yet been adopted for MS in children. The authors looked for differences in MRI features of MS and other demyelinating diseases and proposed some modifications to the current criteria for adults.

BACKGROUND: MRI diagnostic criteria have not yet been adopted for pediatric multiple sclerosis (MS). MRI plays a pivotal role in supporting the diagnosis of MS in adults. We sought to quantitatively define the MRI features of pediatric MS, to determine features that distinguish MS from nondemyelinating relapsing childhood neurologic disorders, and to propose MRI criteria for lesion dissemination in space in children with MS.

» Read More

Suggestions, Comments and/or Questions are always appreciated.. - Thank you

Role of MRI in the differentiation of ADEM from MS in children

Neurology. 2008 Nov 26. [Epub ahead of print]

Summary: ADEM is a disease which can present in a similar way to a first attack of MS, particularly in children. This study showed some differences in the MRI patterns between them that may be useful to distinguish them.

BACKGROUND: Acute disseminated encephalomyelitis (ADEM) is typically a monophasic demyelinating disorder. However, a clinical presentation consistent with ADEM can also be the first manifestation of multiple sclerosis (MS), particularly in children. Quantitative analyses of MRI images from children with monophasic ADEM have yet to be compared with those from children with MS, and MRI criteria capable of distinguishing ADEM from MS at onset have yet to be derived.

» Read More

Comments and/or Questions are always appreciated.. - Thank you

Observation: Natalizumab Use in Pediatric Multiple Sclerosis

Vol. 65 No. 12, December 2008

Archives of Neurology

Peter Huppke, MD; Wiebke Stark, MD; Claudia Zürcher, MD; Brenda Huppke, MD; Wolfgang Brück, MD; Jutta Gärtner, MD

Arch Neurol. 2008;65(12):1655-1658.

Background: Natalizumab, a humanized monoclonal antibody raised against 4 integrins, is approved for treatment of active relapsing-remitting multiple sclerosis (RRMS) in adult patients.

Objective: To determine the safety, effectiveness, and tolerability of natalizumab use in pediatric patients with MS.

Design: Case report.

» Read More Please Return to this page to Leave your Comments


Monday, December 8, 2008

Welcome To Education & Resources for Stem Cell Therapy


1] To Help Readers understand why Adult Stem Cell therapy (aka 'Repair' Stem Cell therapy) does NOT have controversial moral & ethical issues, contrary to embryonic stem cell research ~ please take time to read & learn how the most promising stem cell research & treatment does NOT require destruction of human embryos.

2] To Form a Community among:
~ Potential Adult Stem Cell Therapy Patients
~ Previous Adult Stem Cell Therapy Patients
~ Benefactors to Adult Stem Cell Therapy Patients
~ Family & Friends of Loved Ones w/ a Dreaded Disease
~ Caregivers
~ Medical Professionals
~ Research Students
~ Sign-Up Today to Show Unity in the Universal Hope for Healing

About some of this websites' content:
Due to the broad spectrum of potential, all natures of repair stem cell therapies will be broached here to help readers become better informed of distinctions between current & proposed embryonic stem cell research debates vs. available & proven Adult Stem Cell Therapy treatments.

The long-term focus of this site continues to be on the advancements of Adult Stem Cell Therapy ~ what it can do ~ where it can be found ~ how it can be be obtained.

Comments and/or Questions are always appreciated.. - Thank you

Sunday, December 7, 2008

Multiple Sclerosis News from the MS News Channel

Timothy L. Vollmer, MD

Department of Neurology
University of Colorado Health Sciences Center
Co-Director of the RMMSC at Anschutz Medical Center
Medical Director-Rocky Mountain MS Center
My Educational Video on MS and MS Trials
Produced by
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A Stem Cell therapy update from Preston Walker

From: Preston Walker []
Sent: Sunday, December 07, 2008 3:28 PM
Subject: Interview before/after treatment in Costa Rica

As most of you know, I have had Multiple Sclerosis since December of 2001. I pursued stem cell treatment in Costa Rica in May 2008. I can absolutely say that pursuing the treatment was the best decision I have made. For now, I am MS symptom free. I can't/won't say I have been cured for quite some time now but the treatment was worth every moment working extra to pay for the treatment and praying the funds would come in through the fund raisers.

The company offering the treatment there is the Institute for Cellular Medicine. The long and short of it is that my entry and exit interview has been posted on YouTube. Through these sort of videos and exposure, I know the company is going to make a lot of money but I also know spreading the word of the treatment is providing a lot of hope through the MS Community.

If you want to watch the video, go to YouTube and search the site for me. There I am!!

I hope this finds everyone doing well,
Preston Walker

Suggestions, Comments and/or Questions are always appreciated.. - Thank you

In Response to The Headache Posting, found just below

Guillermo, from the Dominican Republic has offered the following information with regards to headaches and MS:

Hi Stuart:
I've read on your blog that you want more investigations about headaches and MS.
I think this will help you.

I suffered from an everyday terrible migraine-like headache . Everyday I took 6 or 8 tylenols for about 6 months, with success only until the effects of the tylenols.
I didn't tolerate noise, odors or anything.

One day I was reading on the internet about calcium, and between one page and another I read that calcium orotate helps people with lupus and MS. And when I was reading the article, it said that people with MS should follow the same protocol of people with lupus, but those who suffer from a migraine like headache should take a higher dose.

I immediately order this calcium to see if it can help me, and with the 1st tablet, the headache disappeared.
That was 6 years ago, and that headache hasn't appeared again.
I take 1-745mg in the morning with an empty stomach, and 1-745mg with dinner.
I have made some tests to see if it's real, quitting the calcium for a couple of days, and the headache came back.

I recommended this calcium to 3 friendS with MS and the headache, and all of them are headache free.

Here's the part of the article where talks about it:

Around 1975 Dr. Nieper began treating lupus erythematosus patients with calcium orotate. 35 He found that a dose of 1 to 2.5 grams was surprisingly effective when administered over a period of at least one year, even in advanced cases with pulmonary constriction, pleural effusions, or cardiomyopathy. 35, 50 Therapy also involved low-dose prednisone and a variety of nutrients to promote adrenal steroid synthesis, such as selenium and vitamins C and D2, as well as other calcium and magnesium salts. An account of one patient’s successful response to therapy with calcium orotate and other Nieper compounds can be found in an article available from the Brewer Science Library. 51 In addition Nieper found that multiple sclerosis sometimes accompanies lupus, so it’s not surprising that his protocol for treating MS is strikingly similar to that for treating lupus. 52, 53 He recommended a dose of 1 gram calcium orotate per day for MS patients, with a higher dose given to those patients with a tendency toward migraine-like headaches.

The complete article is:


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Multiple sclerosis seen associated with headache

Yahoo News
Reuters - Wed Dec 3, 3:31 pm ET

(Stuart will insist that more needs to be known of Headaches and MS, as he has battled almost daily headaches for more than 10 years)

NEW YORK (Reuters Health) – Patients with multiple sclerosis are more apt to suffer from headaches than the general population, results of a study hint.

Multiple sclerosis, or MS, is a disease in which the immune system mistakenly attacks and damages the myelin sheath that protects nerve cells. It can cause symptoms ranging from vague tingling to blindness and paralysis.

"Headache is not generally considered a symptom of MS, and studies investigating the relationship between the two conditions have produced conflicting results," Dr. Mario Zappia, of the University of Catania, and colleagues note in a report published this month.

» Read More

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Beware of Bogus Clinics Offering Stem Cell Cures

Discover Magazine

Clinics around the world are offering unproven stem cell treatments to desperate patients with diseases like Parkinson’s and multiple sclerosis, a new report says, and consumers should be on the lookout for snake oil salesmen. A new set of guidelines issued by the International Society for Stem Cell Research (ISSCR) gives consumers some hints on how to identify the scammers: Beware, it warns, of clinics claiming to treat multiple diseases with the same cells, boasting that there is no risk, and offering patient testimonials - rather than results from clinical research - as evidence that their treatment works. “Patients want to believe so much that a treatment is helping them that they can convince themselves that is has” [New Scientist], the guidelines caution.

» Read More ( Come back to this page to leave your comments )


re: Progressive MS

Information obtained from the MS News Channel

Saturday, December 6

Long Term Outcomes of Autologous Hematopoietic Stem Cell Transplantation in Progressive Multiple Sclerosis

Progressive multiple sclerosis (MS) is going with continuously disability and unresponsive to high dose steroid and immunomodulation. The autologous hematopoietic stem cell transplantation (ASCT) has been introduced in treatment of the forms of multiple sclerosis.

Click: Blood (ASH Annual Meeting Abstracts) 2008 112: Abstract 4438
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Friday, December 5, 2008

Holiday Tipping Guides

So often asked, by so many different people. Including me. So, when I found this, I thought I would share it with you.

Click here

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Patient Voices: Multiple Sclerosis

information provided by Trent in Miami

Patient Voices: Multiple Sclerosis

Multiple sclerosis can be an insidious disease, affecting many parts of the body and gradually causing serious disability. What is it like to live with MS? Eight men and women speak about their experiences.

Click this link to LISTEN to their stories.

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Tuesday, December 2, 2008

Gender-related differences in MS

source: Mult Scler. 2008 Nov 21. [Epub ahead of print]

Gender-related differences in MS: a study of conventional and nonconventional MRI measures

summary: This study showed differences between men and women in brain MRI measures in people with MS, suggesting that sex hormones may be related to mechanisms of brain lesions and their repair.

authors: Antulov R, Weinstock-Guttman B, Cox J, Hussein S, Durfee J, Caiola C, Dwyer M, Bergsland N, Abdelrahman N, Stosic M, Hojnacki D, Munschauer F, Miletic D, Zivadinov R

Buffalo Neuroimaging Analysis Center, Department of Neurology, State University of New York at Buffalo, Buffalo, New York, USA; Department of Radiology, Clinical Hospital Centre Rijeka, Rijeka, Croatia.

Background: Studies showed gender-associated differences in multiple sclerosis (MS) disease evolution and in the evolution of conventional magnetic resonance imaging (MRI) findings.

Objective: The aim of this study was to investigate gender differences according to a number of conventional and nonconventional MRI measures in patients with MS.

» Read More

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Decreased T-cell reactivity to Epstein-Barr virus-infected lymphoblastoid cell lines in multiple sclerosis

The cause of MS is not known but many factors are implicated including possibly viruses. The authors investigated immunity to Epstein-Barr virus in people with MS and found fewer immune cells, suggesting that it might somehow be involved.

authors: Pender MP, Csurhes PA, Lenarczyk A, Pfluger CM, Burrows SR

source: J Neurol Neurosurg Psychiatry. 2008 Nov 17. [Epub ahead of print]

The University of Queensland, Australia.

OBJECTIVE: To investigate T-cell and antibody immunity to Epstein-Barr virus (EBV) in multiple sclerosis (MS).

» Read More

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Switching first-line disease-modifying therapy after failure

Switching first-line disease-modifying therapy after failure: impact on the course of relapsing-remitting multiple sclerosis.

Gajofatto A, Bacchetti P, Grimes B, High A, Waubant E.

Multiple Sclerosis Center, Department of Neurology, University of California, San Francisco, California, USA; Department of Neurological and Vision Sciences, University of Verona, Verona, Italy.

Background - Options for non-responders to relapsing-remitting multiple sclerosis (RRMS) first-line disease-modifying therapies (DMT) are limited. We explored whether switching first-line DMT is effective.MethodsPatients with RRMS who first received interferon-beta (IFNB) or glatiramer acetate (GA) were classified in three categories: DMT change because of suboptimal response, DMT change because of other reasons, and no DMT change during follow-up.

» Read More

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Vaccination prevents multiple sclerosis in animal model;

Protection from the own immune system

Vaccination prevents multiple sclerosis in animal model; Heidelberg researchers publish in Proceedings of the National Academy of Sciences

Some 80,000 people in Germany suffer from multiple sclerosis – their immune system attacks and destroys healthy nerve tissue. Researchers at the Heidelberg University Hospital and the German Cancer Research Center in Heidelberg have succeeded in vaccinating mice with specially treated, autologous immune cells and preventing them from developing encephalitis, which is similar to multiple sclerosis in humans. A protein of the nervous system, that is the target of the harmful immune reaction in multiple sclerosis, was placed on the surface of the cells; the cells were treated with an agent that suppresses immune defense.

The Heidelberg researchers have published their results – initially online – in the prestigious journal "Proceedings of the National Academy of Sciences USA".

The team around Professor Dr. Peter Terness is working in the Department of Transplantation Immunology (Director: Professor Dr. Gerhard Opelz) of the Institute of Immunology at the Heidelberg University Hospital. Professor Terness and his colleagues work primarily on developing methods to prevent rejection of donor organs without impairing the immune system.

Above found at Eureka Alerts on Nov 28, 2008

To continue reading this article, click here
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Monday, December 1, 2008

"Don't Ask Me How I Feel - I Have MS"

My neurologist stunned me
when she said:
"You have Multiple Sclerosis
and looking at your MRI,
you are a walking time bomb"

"Don't Ask Me How I Feel - I Have MS"
- By Stephen Knapp

To Obtain Your copy of this MS Patient's Novel, continue reading

Stephen has written a powerful personal story about his MS, which is 400 pages long and took over 6 years to write and publish.

He would like you to check it out. You can order it from the publisher - Authorhouse for $15.70 plus S&H, or from the on-line book sellers like for a few dollars more.

OR, you can get it from him (directly) for just $15 plus S&H $3 each.

If you choose this option, then please send a check to:
Stephen Knapp - 18755 Cape Sable Dr. - Boca Raton, FL 33498-6377

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Thursday, November 27, 2008

Cognitive Dysfunction Tips

Cognitive Dysfunction Tips
For people with cognitive dysfunction as a symptom of multiple sclerosis (MS), seemingly simple tasks can be frustrating. Try some of these tips and ideas for helping yourself avoid stress and get things done.

Info found above is from and will direct you to their website, providing you with another excellent source for information..

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Monday, November 24, 2008

Study Shows Shocking Cost of MS

Monday November 24, 10:08 am ET
Source: Multiple Sclerosis Society-UK
Yahoo Finance

LONDON, November 24 /PRNewswire/ -- A study of people living with the devastating effects of multiple sclerosis (MS) has shown the true economic cost of living with the incurable, life-long condition.

The independent research is one of the largest ever studies into the financial impact of MS and has revealed that the cost of being diagnosed with MS is on average nearly GBP17,000 per person. Care provided informally by families accounts for more than 70% of this.

( GBP = British Pound Sterling)
GBP17,000 (currently) = $ 25,479.51
Convert Pounds Sterling (GBP) and United States Dollars (USD ...

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The MS LifeLines® Peer Connection Program

The MS LifeLines® Peer Connection Program
If you are new to Rebif® (interferon beta-1a) therapy or considering Rebif for your relapsing MS, it may help to talk to someone who understands. Now, with the MS LifeLines® Peer Connection Program, you can. Learn how to connect.
3 easy steps to connect
Contact Peer Connection by telephone at 1-866-783-5189.
Provide some information so you can be matched with an Ambassador.
Call in as scheduled to speak wi th an Ambassador, who will listen and share his or her perspective on living with relapsing MS and taking Rebif.
Call today 1-866-783-5189!
Support Every Step of the Way
Join the MS LifeLines Community
MS LifeLines is a free support service designed to help you start and stay on Rebif therapy today and every step of the way. Our mission is to offer connections, understanding, and support to people on or considering Rebif, and the family and friends who care for them.

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OT tips : Getting Ready for the Holidays -

Shmoozin' with Susan

Getting Ready for the Holidays
by: Susan Dorne, OT
Written - Nov. 24, 2008

Tis’ the season to be jolly….overwhelmed and exhausted! Yes, it’s that time again, already! I am surprised every year how quickly the time has gone by and what little time there is to get ready for the holidays. There is so much we need to think about: gifts, attending parties, entertaining, visitors, decorating, and so much more.

I thought a great place to start would be shopping for gifts. This is something I do all year long, let me explain. When I see something that makes me think of someone in particular, I buy it. Then I put it away and save it for their gift (ok, sometimes the timing may fall in time for the birthday but that’s ok, at least that’s taken care of). I make a list, especially if I’ve already bought something, so I can remember what I have and what I still need. CLICK HERE to continue reading this well prepared article..

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