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Friday, January 9, 2009

Progressive MS : Future Treatment Options


Today's new Feature Presentations focus on progressive MS.
This Feature Presentation will discuss the differences between primary and secondary progressive MS, the role of an MRI in diagnosis, and common characteristics of progressive MS.

Can Progressive MS Be Treated?
This Feature Presentation examines the issues of limited treatment options for people with progressive MS, what is in the pipeline for treatments, and using a team approach to managing the disease.
Click here to view the webcasts, or
copy into your browser: If you have a pop-up blocker, you will need to disable it prior to participating in a MS Learn Online webcast.

Leaving Comments, Suggestions and/or Questions, are Always Appreciated. - Thank you

End of the week Humor - Entertainment

Indian Chief 'Two Eagles' was asked by a government official, 'You have observed the white man for 90 years. You've seen his wars and his technological advances. You've seen his progress, and the damage he's done.'

The Chief nodded in agreement.

The official continued, 'Considering all these events, in your opinion, where did the white man go wrong?'

The Chief stared at the government official for over a minute and then calmly replied. 'When white man find land, Indians running it, no taxes, no debt, plenty buffalo, plenty beaver, clean water.
Women did all the work, Medicine man free. Indian man spend all day hunting and fishing; all night having sex.'

Then the chief leaned back and smiled. 'Only white man dumb enough to think he could improve system like that.'

Thursday, January 8, 2009

New Tysabri Poll (January 8, 2009)

It's been a while since I last created a Tysabri Poll and although this is not official, it will help many, to better understand questions that they might have.

Again, since we have not done this in quite some time, it would be nice to hear from those using Tysabri.
This will allow Tysabri speculators or those trying to make a decision, to know more about this MS Medication.

Answers should be left as comments to this blog posting.
And as Always, I thank and appreciate all of those who leave their comments...

Poll questions originated from various sources, including Lauren in Ca.
No need to answer all questions. Reply to whichever, or all.

  1. For how long have you been using Tysabri ?
  2. How many infusion have you had?
  3. From the start of using Tysabri, how long til you began feeling better and what was it that you felt that made you feel better?
  4. Did you find that you were starting to see improvements in your symptoms (even slight improvements) somewhere between your 4th & 6th infusion?
  5. Do you find that with each infusion of Tysabri there is now hope in your life?
  6. Is your MS now stable since being on Tysabri therapy?
  7. Have the recent cases of PML caused you concern enough to stop Tysabri treatments?
  8. How has Tysabri changed your life? Specifically your day-to-day living?
  9. How has Tysabri changed the way you look at MS?
  10. What would you tell or advise, to an MS peer, contemplating the use of Tysabri?
Again - Please reply by clicking the comments link.


Wednesday, January 7, 2009

A Message from an MS Peer in Saudi Arabia

I received this message from an MS peer in Saudi Arabia whom I met on Facebook.
Yes, I am now on facebook too.. No wonder I have no time to breath anymore.

dear stuart
i would like to thank u for you writing and care and website
i thank you for that gift and to know that i am not facing it alone and how i would love and wish to learn and know more about ms the thing that had changed my life ,,,,,
you are right about the reason from where i got it form my moms irish side i heard it from the doctors here but didnt think it was true and till i heard it from you .. with all the drama in my life never knew that i wil get ms,,, i used to work as a flight attendent at the saudi airlines for 3 years it was the time of my life never could be more happy
i was so in to sports diving and all an till i got ms the first time this was about 2 years ago i got it in my leggs they where all numb
the doctors didnt explan what was ms at that time it wasnt that known in saudi ,, so anyway it took me time to walk good ,, and i couldnt fly no more they moved me to a ground job that i dont like at all :)
and then one year after on last APR,,, ms hit me agin
it had started on my fingers then it came all over my left side from hed to feet .. i am lucky that my work covers all treatment and medications i was in hospital for about 60 days i couldnt move walk take or hear i couldnt even sit and my eye site when down to -13
i knew my life was over and it took me along time to stand up i had so much faith to stand after i lost my car and alot of thing i cant explan the hell i was in my heart just died but i made it i got back on my feet and got married and did so much things ,,, but still i got alot of efect from ms ... such as my eyes some parts of my left arm and hands are num and cant run in some ways i wasnt the same man i found i a dark side in me ,, but i am still figthing and i take some medications for ms ,, and it is a injection called rebif i take it 3 time a week ,, but really it is killing me . making me so sick and weak each time i take it ,,
and the doctors say it wont cure ms but if it comes back it wont be that strong ,,, i know my life wont ever be the same i meen i cant get mad or so happy or else my left side will move alot and i cant stop it
anyway i am so sorry for this long email i could go on and on :) so u take care and really hope to hear soon from you take care and may god keep u and ur famliy safe
your friend amro
Just so you each know, after receiving this letter from Amro, I replied - lifting his spirits and answering his many questions.. They do not have a lot of people in Saudi Arabia with MS and so, via facebook he now has a new way of reaching out to others. Helping him to better understand Rebif and what it will do for him and how to combat his getting sick from it, was one of my first priorities...
If you want to comment, I would think that Amro would appreciate your responses...

Types (Forms) of Multiple Sclerosis

Relapsing-remitting MS (RRMS) is the most common form of Multiple Sclerosis (approximately 40% of all MS cases). People with relapsing-remitting MS have unpredictable relapses (attacks) or symptoms, but generally return to normal (the state of 'remission') between attacks. During this time, the person will either fully or partially recover from the symptoms experienced during the relapse.

If the health of some people with relapsing-remitting MS does deteriorate after each relapse, but their condition is stable between relapses, this is called ‘worsening relapsing-remitting MS’.


Without treatment, Secondary-progressive MS, formerly called chronic progressive MS, develops within 10 years in about 50% of people who have had relapsing-remitting MS.

Some people with secondary-progressive MS have relapses, but many do not. In time, people with this condition experience a gradual and continuous increase in symptoms and disability.

» Read More


People with Primary-progressive MS have steadily worsening symptoms from the outset of their diagnosis, and do not have distinct relapses. Their disability gradually worsens, and it may level off at some point or continue over months or years.

Primary-progressive MS is a progressive form of the disease and does not display any definitive periods of relapse or remission.


People with Benign MS (see definition, found below) have mild, infrequent, sensory exacerbations with a full recovery. After one or two attacks with complete recovery and without any disability, this form of MS does not worsen with time and there is no permanent disability or disease progression.


Suggestions and/or Questions, are Always Appreciated. - Thank you

Pain and MS

Stuart lives with MS Pain and so, always appreciates this topic being re-emphasized.
My thanks to Julie Stachowiak, Ph.D. from: for re-publishing this article
The links shown below will re-direct you to the website

Overview of Pain as a Symptom of MS
Okay, here goes. Raise your hand if you think multiple sclerosis (MS) is not painful.
Keep your hand up if you actually have MS.

I guess that there may be a couple of you out there with MS who are saying, "Pain? Whaddya mean?" However, I am willing to bet that (like me) most of you have felt pain as part of your MS experience, whether it is from the "MS hug," severe tingling sensations or optic neuritis.

The pain that comes along with MS is different for everybody, both in manifestation and severity, given that there are over 50 symptoms of MS - most of which could have a pain component. Surprisingly, it was only in very recent years that the "experts" believed that MS brought any form of pain.

Read the full article (while you shake your head in amazement at that last statement): Overview of Pain as a Symptom of Multiple Sclerosis

Leaving Comments, Suggestions and/or Questions, are Always Appreciated. - Thank you

Physical activity and quality of life in multiple sclerosis

Source: MSIF
January 2009

Physical activity and quality of life in multiple sclerosis:
intermediary roles of disability, fatigue, mood, pain, self-efficacy and social support

summary: The authors studied whether there was an association between physical activity and quality of life in people with MS. They found that people who were more active had lower disability, depression, fatigue and pain.

authors: Motl RW, McAuley E, Snook EM, Gliottoni RC

source: Psychol Health Med. 2009 Jan;14(1):111-24 -pubmed

Department of Kinesiology and Community Health, University of Illinois at Urbana-Champaign, Urbana, Illinois, USA.

Physical activity has been associated with a small improvement in quality of life (QOL) among those with multiple sclerosis (MS). This relationship may be indirect and operate through factors such as disability, fatigue, mood, pain, self-efficacy and social support.

Leaving Comments, Suggestions and/or Questions, are Always Appreciated

The onset location of multiple sclerosis predicts the location of subsequent relapses

MSIF - January 2009
authors: Mowry EM, Deen S, Malikova I, Pelletier J, Bacchetti P, Waubant E
source: J Neurol Neurosurg Psychiatry. 2008 Dec 15. [Epub ahead of print] -Pubmed

summary: This study showed that people with MS whose first relapse is in the spinal cord or optic nerve have more risk of having a second episode in the same location.

BACKGROUND: Demyelinating events in relapsing-remitting multiple sclerosis (RRMS) can involve several locations in the central nervous system. We sought to determine if initial clinical demyelinating event (IDE) location predicts subsequent clinical relapse locations in early RRMS.

» Read More

Leaving Comments, Suggestions and/or Questions, are Always Appreciated. - Thank you

Tuesday, January 6, 2009

MS Facts in various languages

MS Views and Related News now has MS Resource FACT Links available in more than (11) languages.

Click the Link (found above) to advance to our web resources. Scan the page to find the to learn and better understand in the language of your choosing.

Aside from English, we now have MS Facts and MS Information weblinks in: Spanish; French; Italian; German (Deutch); Portugues; Romanian; Japanese; Chinese; Czech; Hebrew, and Indonesian.

(If you have Multiple Sclerosis information to share in another language, please send me the URL)

Multiple Sclerosis Facts and Our MS Glossary

What Causes MS? - The factors that may be responsible for MS

Who Gets MS? - Why some individuals are more likely than others to develop MS

Symptoms of MS - The symptoms of MS are highly variable, depending on the areas of the central nervous system that have been affected

Diagnosis of MS - Several tests and procedures are needed to diagnose MS

The History of MS - The history of multiple sclerosis is a detective story spanning more than a century

View : Our MS Glossary

For more MS Related News stories, Subscribe to: Stu's Views and MS Related News.

Leaving Comments, Suggestions and/or Questions, are Always Appreciated. - Thank you

Scientists Work to Improve Treatments for Multiple Sclerosis

Researchers have yet to find a cure, but they are developing a better understanding of the disease.

Transcript of radio broadcast: 05 January 2009

This is SCIENCE IN THE NEWS in VOA Special English. I'm Faith Lapidus.

And I'm Bob Doughty. This week, we tell about the disease multiple sclerosis.

Leaving Comments, Suggestions and/or Questions, are Always Appreciated. - Thank you

MS Helping Hands - Press Release

January 6, 2009 - PSA -

It seems that the National Multiple Sclerosis Society (NMSS) doesn't want to recognize that there is another MS foundation in the State of Washington. We need this PSA to let people know that we do exists. MSHH has provided financial assistance to thousands of people with MS and others.

William L. "Bill" Brayer, President
MS Helping Hands-MSHH

Leaving Comments, Suggestions and/or Questions, are Always Appreciated. - Thank you

A Link between Periodontal disease and MS

Gum Diseases causes and risk factors reviews
To view Un-edited and complete article, click the above link

Periodontal disease is marked by bacterial overgrowth. However, a persistent immune response to chronic infections in the mouth is believed to play a major role in gum destruction.Diseases Associated with Periodontal Disease

Autoimmune Diseases. Autoimmune conditions (Crohn’s disease, multiple sclerosis, rheumatoid arthritis, lupus erythematosus, CREST syndrome) have been associated with a higher incidence of periodontal disease.

Some research suggests that periodontal disease may even play some causal role. For example, one study suggested that P. gingivalis, one of the major bacteria in periodontal disease, was associated with destructive processes in the brain leading to multiple sclerosis. Still, more research is needed to determine a definitive association between these diseases.
» Read More

Leaving Comments, Suggestions and/or Questions, are Always Appreciated. - Thank you

Monday, January 5, 2009

Immune molecule may reduce severity of multiple sclerosis

New Kerala Mon, 05 Jan 2009 3:08 AM PST
Washington, Jan 5 : Experiments on mice conducted at Albert Einstein College of Medicine have shown that an immune molecule called CXCL1 may help decreases the severity of multiple sclerosis-like disease.

Click: Immune molecule may reduce severity of multiple sclerosis To Read Full Story
Leaving Comments, Suggestions and/or Questions, are Always Appreciated. - Thank you

Biogen shares fall on JP Morgan downgrade

AP via Yahoo! Finance Mon, 05 Jan 2009 8:40 AM PST
Shares of Biogen Idec Inc. fell Monday after JP Morgan cut its rating on the stock, saying the multiple sclerosis drug Tysabri could continue facing challenges in 2009 while the company lacks any catalysts to drive new revenue.
Biogen shares fall on JP Morgan downgrade
Leaving Comments, Suggestions and/or Questions, are Always Appreciated. - Thank you