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Saturday, July 25, 2009

The TYSABRI TOUCH® Prescribing Program for MS Patients

Special note: The TOUCH program is only available in the USA

Because of the risk of PML, TYSABRI is available only through the TOUCH Prescribing Program, which stands for TYSABRI Outreach: Unified Commitment to Health. TOUCH is a restricted distribution program focused on safety. The goal of the TOUCH Prescribing Program is to minimize the risk of PML.

TOUCH was developed with the help of the Food and Drug Administration (FDA).

  • Only prescribers and patients enrolled in the TOUCH Prescribing Program can prescribe and receive TYSABRI
  • Only certain pharmacies and infusion sites authorized by the TOUCH Prescribing Program can dispense and infuse TYSABRI

TOUCH offers more interaction with doctors and nurses. Your treatment is closely monitored to help make sure TYSABRI continues to be right for you:

  • Once every 4 weeks at each infusion visit
  • Plan to see your doctor 3 months after your first infusion, 6 months after your first infusion, and at least as often as every 6 months thereafter

TOUCH assigns you your own specially trained Biogen Idec Case Manager to help:

  • Get you started on therapy and answer questions about your therapy
  • Find an authorized infusion site in your area
  • Provide information about insurance coverage and possible sources of financial assistance, if needed
Continue to read by clicking here

By clicking the above link you will learn of the enrollment process and the Pre-infusion checklist

information provided above was gathered and posted by: Stuart Schlossman-RRMS


Friday, July 24, 2009

Biogen reports 11th Tysabri brain infection case

Fri Jul 24, 2009 - 6:00pm EDT - Reuters

 * Biogen reports 11th case of Tysabri brain infection
 * Tysabri seen as key growth driver for Biogen
 * Company says won't report new cases on website
  BOSTON, July 24 (Reuters) - An 11th patient taking Biogen
Idec Inc's (BIIB.O) multiple sclerosis drug Tysabri has
developed a potentially deadly brain infection since July 2006,
when it was reintroduced to the market.
 The Cambridge, Massachusetts-based biotech company released
the news on its website late on Friday.
 Tysabri, which Biogen sells in conjunction with Irish
drugmaker Elan Corp Plc (ELN.I), is considered critical to the
future growth of both companies.

Click here to continue reading this Reuters report


Students' MS essays earn scholarships

South Florida teens awarded scholarships for dealing with multiple sclerosis.

BY JULIE LEVIN - Journalist for the Miami Herald

Sean Giblin says he no longer has the time, or the energy, to feel sorry for himself. The 19-year-old Plantation teen was diagnosed with multiple sclerosis at age 16. The illness slowly sapped the coordination and energy he needed to run, and be a part of his beloved soccer team. The changes left him frightened and depressed. But as he comes to terms with his illness, that is slowly changing.

``I realized that why get down on yourself when you can have a positive outlook on the disease and try to help out others who are dealing with other mental or physical illnesses. Be positive, rather than negative,'' said Giblin, a recent South Plantation High School graduate.

In the fall, Giblin will take all that positive energy to Florida Gulf Coast University, where he will start college. He'll take with him a $3,000 scholarship, courtesy of the National Multiple Sclerosis Society, as well as a special scooter to help him get around campus.

Each year, the group issues more than $1 million in scholarships to high school seniors who have been diagnosed with MS, or have a parent with the illness. Hundreds of applicants submit essays describing how the illness has affected their lives. Winners are selected not only on the essay, but also their academic records, leadership and participation in school and community, work experience, goals and financial need.


Giblin was one of only seven winners in South Florida, and 18 statewide.

Click here to continue reading Sean's Story

Special note: Stuart knows the Giblin family and is quite proud to be able to add this today to this blog.
Sean IS a very special person and deserves the very best.


Multiple Sclerosis Patients look forward to a day with no injections - written by: Mike Szymanski
July 23, 2009

German drug makers apply to approve MS pill

Imagine a day with no injections? Multiple Sclerosis suffers can look forward to such a day after the German-based company Merck KGaA asked European regulators to approve its pill for the debilitating nerve disease.

It's really a battle between companies. The German company is racing with Novartis AG to release the first oral medicine for MS. The company asked for European Medicine Agency approval of a pill, called cladribine, and the next step is to get U.S. approval.

Click here to continue.


Thursday, July 23, 2009

Israel leads world in stem cell research

Israel leads world in stem cell research

Visit our website to watch this Fox News broadcast

Information found here was provided by Chad, a Facebook fan of MS Views and News

MS Views and News is dedicated to the global collection and distribution of current information concerning Multiple Sclerosis. In collaboration with other organizations, MS Views and News uses state-of-the-art communication channels to provide information for those affected by, or interested in MS.


Merck KgaA Asks EU to Approve Multiple Sclerosis Pill (Oral Cladribine)

By Naomi Kresge

July 23 (Bloomberg) -- Merck KGaA asked European regulators to approve its pill for multiple sclerosis, the next step in the German drugmaker’s race against Novartis AG to market the first oral medicine for the debilitating nerve disease.

Merck submitted a marketing authorization application for the pill, cladribine, to the European Medicines Agency and plans an application to U.S. regulators this quarter, the Darmstadt, Germany-based maker of drugs and chemicals said in an e-mailed statement today.

The application “brings us closer to the possibility of providing an oral short-course treatment to patients with multiple sclerosis,” Roberto Gradnik, an executive vice president in Merck’s Serono division, said in the statement.

» Read More



Wednesday, July 22, 2009

Motor nerve model could help cure multiple sclerosis, diabetic neuropathy

Washington, July 22 : In what may lead to cures for diabetic neuropathy and help further understanding of multiple sclerosis and related conditions, researchers at the University of Central Florida (UCF) have for the first time designed a model motor nerve system that''s insulated and organized like the human body.

MS, diabetic neuropathy, and other conditions caused by a loss of myelin insulation around nerves can be debilitating and even deadly, but adequate treatments do not yet exist. That''s in large part because of deficiencies in model research systems.

Click to continue at the third paragraph

Have something to share with others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You

Multiple Sclerosis Information from "The Patients' Voice"-Uk

On "The Patient's Voice" website Find out about Multiple Sclerosis (MS) and MS symptoms including:

• which tests are employed to diagnose Multiple Sclerosis
• which are the most common MS early symptoms and MS signs including MS pain
• the causes of Multiple Sclerosis
• the disease subtypes, such as primary progressive MS, relapsing-remitting MS and secondary progressive MS
• the latest therapies and treatments and the condition prognosis
• information on the disease epidemiology and its pathophysiology (including MS lesions and inflammation)
• the history of the condition
• current directions in MS research

The site also includes a comprehensive list of MS organisations and associations worldwide suitable for either MS patients or Healthcare Professionals.

Click here to view their listings of USEFUL Links, to globally known MS organizations


Prediction of acute multiple sclerosis relapses by transcription levels of peripheral blood cells

The ability to predict the spatial frequency of relapses in multiple sclerosis (MS) would enable physicians to decide when to intervene more aggressively and to plan clinical trials more accurately.

Methods: In the current study our objective was to determine if subsets of genes can predict the time to the next acute relapse in patients with MS. Data-mining and predictive modeling tools were utilized to analyze a gene-expression dataset of 94 non-treated patients; 62 patients with definite MS and 32 patients with clinically isolated syndrome (CIS).

The dataset included the expression levels of 10,594 genes and annotated sequences corresponding to 22,215 gene-transcripts that appear in the microarray.

Click here to continue


Tuesday, July 21, 2009

What is an MS Centre?

As defined by the:
  • MSIF (Multiple Sclerosis International Federation) ,
  • The CMSC (Consortium of MS Centers),
  • and the IOMSN (International Organization of MS Nurses),

Click here to review


Merck Serono Launches RebiSmart™, First Electronic Injection Device For Delivery of Multiple Sclerosis Treatment Rebif®

Merck Serono Launches RebiSmart™, First Electronic Injection Device For Delivery of Multiple Sclerosis Treatment Rebif®

* RebiSmart™ is designed to improve ease of handling and usage and introduces the potential for improved treatment adherence for multiple sclerosis patients
* First launch of RebiSmart™ together with recently approved multidose cartridges of the new formulation of Rebif® in the European Union and Canada

Geneva, Switzerland, June 24, 2009 – Merck Serono, a division of Merck KGaA, Darmstadt, Germany, announced today the launch of the innovative individually adjustable electronic injection device RebiSmart™ for the self-administration of Rebif® (interferon beta-1a), the company’s disease-modifying drug used to treat relapsing forms of multiple sclerosis (MS). RebiSmart™ is the first device of its kind in this indication and was specifically designed for ease of handling and use. The unique features of RebiSmart™ also introduce the potential for improved treatment adherence, helping patients receive the full benefit from their treatment.

Click here to continue reading.

Meanwhile, if you are not yet registered to receive our weekly MS related e-Newsletter, called "Stu's Views and MS Related News", please click here to register. It will take less than 30 seconds to complete this form. - Thank you

Pain and other unpleasant sensory disturbances are relatively common in MS

Sensory complaints of the upper extremities in multiple sclerosis: relative efficacy of nortriptyline and trans cutaneous electrical nerve stimulation

summary: Pain and other unpleasant sensory disturbances are relatively common in MS and can have an important impact on the quality of life. These symptoms are generally due to damage in the central nervous system and their treatment is often unsatisfactory.

click here to continue to read from the second paragraph

Effect of a 4-week period of unloaded leg cycling exercise on spasticity in multiple sclerosis

obtained from the

summary: Rehabilitation has been shown to be crucial in MS, especially when there is a certain degree of disability. Studies also suggested that rehabilitation might be important for spasticity management. The authors aimed to investigate the effect of a four-week programme of unloaded leg cycling on the current scales for spasticity, from both objective (clinical examination and neurophysiology) and subjective (people with MS) points of view. They found that, although this four-week exercise programme did not have a positive impact on objective scales, some improvement was observed from the participants’ point of view.

authors: Sosnoff J, Motl RW, Snook EM, Wynn D

source: NeuroRehabilitation. 2009;24(4):327-31

weblink: click here to read more


Monday, July 20, 2009

Wireless Device Helps (Plano, Tx.) MS Patients Walk

By Arezow Doost
PLANO (CBS 11 / TXA 21) ― Jul 20, 2009
The Plano man started attending to physical therapy at UT Southwestern Medical Center. But in January, Riskey was introduced to a wireless device for patients with neurological damage. And now, he's walking again, without falling.

It is called the Bioness L-300. The wireless device sends electronic signals to stimulate the nerve, turning on Riskey's muscles as he takes each step. "It's got little sticky electros," Riskey said. "This thing receives a signal from a little switch in my shoe."
Click here to continue reading

Read more of the Bioness L300

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A bitter pill: Price of biologic drugs often too high for poor, ill seniors who need them

Sunday, July 19th 2009,

WASHINGTON - DeAnna Platkin couldn't afford the advanced medication for her multiple sclerosis, and she couldn't wait for health care reform.

So the 72-year-old Bensonhurst, Brooklyn, grandmother signed legal papers declaring her husband of 50 years refused to support her.

"My husband is a funny man. He doesn't want help from anyone, and this was hard for him," Platkin said. "It makes him feel like he doesn't want to take care of me."

Platkin's drug, a high-tech biological-class medication called Betaseron, came out 17 years ago, and costs more than $2,000 a month. If it was a regular medicine, there'd be a generic alternative by now.


"My Hiatus from my MS Medication - The Pros and Cons - a valuable lesson learned...." - (Re-Circulated)

Yes, this article has been mentioned several times. Think of it's importance for you to remember and for all new people to this blog or our other pages, to be seeing it for the first time. It was originally published on April 3, 2008.

(To Review the article, at the bottom of this message is the link to view)

Many, many comments were left to this blog posting and scores of others simply sent email responses directly to me.

My Thanks to all, who have been leaving comments concerning this matter that needs to be circulated and re-circulated time and time again... Reason, there are always new people to read it and there are always those, who consider either not taking an MS medication or those who want to do, as I did and take that medication vacation.

There were follow-up to the original story found here. Each can be found by doing a blog search (using the box in the top left corner of the blog) for "Medication Vacation" ..

It is vital for all to chat with your medical doctor before making any changes to medication dosage.

I hope, that if you know somebody considering a medication vacation for any chronic condition, that you inform them of this blog posting.
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If you have any questions, suggestions or comments, please write to me at:

Best Regards,

Stuart - July 20, 2009 8:51 AM



Sunday, July 19, 2009

Multipl Sclerosis: Community gathers to help local woman seek cutting-edge treatment in Israel

By Larissa Theodore, Times Staff
Published: Saturday, July 18, 2009 11:15 PM EDT
Patti “Trish” Brown was in her late 30s when she first began having symptoms of multiple sclerosis. The Beaver resident remembers bending her head forward and feeling a shock down the length of her spine. She asked two physicians, but neither was concerned. So Brown pushed the symptoms aside until 1998 when she had a major flare.

She and a friend were walking in the Beaver Cemetery when her right foot stopped working.

“I couldn’t take another step,” said Brown, now 53.

Her symptoms only worsened — from severe fatigue to balance and walking problems. One day, numbness crept into her feet and up her legs, and by that afternoon had worked its way up to her chest. Last year, Brown was officially diagnosed with the disease.

>> Continue reading this article