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Within this blog you will find thousands of valuable MS related articles and resources which will enable you to learn and feel empowered with key Multiple Sclerosis information.

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Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, for your personal knowledge and to keep you informed of current health-related issues. It is not a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.


Friday, August 21, 2009

International MS Society Listings

Source: Carnival of Bloggers

IFnot yet registered to be receiving our weekly MS related e-newsletter, please visit our website, to register: http://www.msviewsandnews.org - thank you

Everyday Tips When Living with Primary-Progressive Multiple Sclerosis

Everyday Tips When Living with Primary-Progressive Multiple Sclerosis
featuring Shelley Peterman Schwarz

This four-part webcast series explores:

  • Your Kitchen and Cooking
  • Your Bathroom and Grooming
  • Your Bedroom and Dressing
  • Staying Connected
Click here to view the webcasts, or
copy into your
browser: http://www.nationalmssociety.org/multimedia-library/webcasts--podcasts/everyday-tips-when-living-with-primary-progressive-multiple-sclerosis/index.aspx
If you have a pop-up blocker, you will need to disable it prior to participating in a MS Learn Online webcast.

Source : National MS Society

Squiffy is a hit in the UK

Squiffy is a person from England, UK.

He IS the Webmaster for the greatest little charity in the world.
The Multiple Sclerosis Resource Centre - http://www.msrc.co.uk

Visit his personal site Squiffy's House of Fun - Laughter for Multiple Sclerosis -

Also to visit his StumbleUpon blog: http://www.stumbleupon.com/stumbler/squiffy2/

Thanks in advance and tell everyone you know! squiffs xx

UK NEWS : Higgy's Heroes X-treme Challenge! Running from John O’Groats to Lands End (871 miles) in 16 DAYS for MSRC

Location: John O'Groats to Land's End

Date: Commences 12th September

At MSRC, we are constantly amazed and impressed at the lengths some people will go to raise funds and raise MS Awareness but even we are speechless at this one…….

On Saturday 12th September, Simon Barnes from Stroud will be taking on his toughest challenge yet.

Running from John O'Groats to Land's End!

You can view Simon's route plan here - http://www.msrc.co.uk/downloads/Simonbarnesroute.pdf

Yes, that's right; he is going to RUN from one end of the UK to the other, covering a staggering 871 miles in 16 days!

That's an average of nearly 55 miles a day!

Simon is busy making last minute preparations to his challenge, not least of all preparing himself mentally for what lies ahead and we are hoping that lots of you will show your support.

How you can help:

• If you live in the area or close to Simon's route, could you get a group together to give Simon a much needed cheer and encouragement as he runs through your town?

• Are you or do you know a physiotherapist who can offer a much needed massage at the end of his daily run?

• Could you send Simon a message of support via MSRC that we can forward to him each evening?

Please email abi@msrc.co.uk or call 01206 505444 if you can offer any help with the above.

You can also support Simon's incredible journey by donating at http://www.justgiving.com/sibar/

You can also donate by text message. Text "Higgy" to 88600

Text cost £2.50 and £1.51 will go to MSRC. You will receive 2 texts at a total cost of £2.50 and £1.51 will go to the charity.

To view more about Simon's extraordinary run click here: http://www.youtube.com/watch?v=ZothCiu8TWM

John Habkirk - Website Manager - Reply to: squiffy@msrc.co.uk

Simon Barnes is running from John O’Groats to Lands End (871 miles) in 16 DAYS for MSRC! Find out more http://tinyurl.com/lkytcx and watch the video - http://tinyurl.com/lu5ejq

Thursday, August 20, 2009

Duke Researcher Awarded Grant for Multiple Sclerosis Research

By National MS Society, Eastern NC
Updated: Aug. 20, 2009


The National Multiple Sclerosis Society has recently committed $15.8 million to support 45 new MS research projects as part of its $40 million international investment this year alone to spur momentum in cutting-edge MS research. More than $499,000 of these funds are allocated for Dr. Simon Gregory of Duke University. This financial commitment is the latest in the Society's relentless research effort to prevent, treat and cure MS.

Dr. Gregory is an assistant professor in the division of Medical Genetics, Department of Medicine at Duke University. His primary research revolves around the detection of genes involved in multiple sclerosis. With his research on "Defining the functional role of a novel MS susceptibility gene," he is able to further advance efforts to find a cure for MS. He joins a team of over 350 investigators in the U.S. and abroad supported by the Society who share the goal of achieving a world free of MS.

Continue Reading

Have something to share with others? If so, please use the post comment link found below. Your name and email address would be appreciated but is not necessary unless you want a response from others. Thank You

The Multiple Sclerosis Resource Centre (MSRC) - UK

The Multiple Sclerosis Resource Centre (MSRC) is a proactive and innovative charity, passionately committed to supporting anyone affected by Multiple Sclerosis through access to unbiased information and advice. Our approach is to encourage individuals to make choices that are appropriate to their daily lives, empowering them to maximise their potential. For more information call 0800 783 0518 or +44 (0) 1206 505444 or e-mail: info@msrc.co.uk
Click this link to see a listing of international MS organizations found on the MSRC website

Buy a small charity car draw ticket & support MSRC!
Click on this link
www.everyclick.com/MSRC to win a new Fiat 500 for just £2.

The Multiple Sclerosis Resource Centre (MSRC) on Facebook

http://www.msrc.co.uk - publishers of New Pathways magazine


MS Research Update: Challenges and Opportunities

by John R. Richert, MD

People are always asking 'What's going on in MS research?' But lately, many individuals are also adding, 'What challenges are we facing in the current economic environment?' As a response, I believe a quick update on the Society's research program — where we are now and what is required to maintain critical discovery — will not only address this question, but also let each of us know what we can do to help.

There has never been a more amazing time in MS research than now. Progress is being made at a remarkable rate, and the National MS Society's 62-year-involvement has driven much of this progress, including the six approved disease-modifying drugs and new therapeutic approaches making their way through the development process.

And even in these challenging economic times, we're continuing to propel research forward. This year alone, we're providing over $33.5 million to support 345 new and ongoing projects in our core research portfolio, plus $1.5 million for Fast Forward, our drug development subsidiary which continues to attract its own new funding streams. In addition, thanks to the efforts of our MS activists, an additional $5 million has been specifically set aside for funding MS research out of the 2009 Department of Defense budget.

At the Society, we have three clear research goals — STOP MS, REVERSE THE DAMAGE AND END MS FOREVER.
Learn more about these goals and some exciting projects making headway in this three-pronged approach >>

Source: National MS Society

Wednesday, August 19, 2009

Stuart Schlossman vs. Stuart F. Schlossman

Stuart Schlossman of MS Views and News, Stu's Views & M.S. News and Stu's Views and MS Related News is NOT the Stuart F. Schlossman, shown below

Stuart F. Schlossman, MD Dana-Farber Cancer Institute 44 Binney Street Dana 1530B Boston, MA 02115. Office phone: (617) 632-3325. Fax: (617) 632-2690 ...

The Stuart Schlossman of MS Notoriety wishes he had the brains and prestige of Stuart F..

But, Stuart Schlossman - is happy for who he is and what he has done for the Multiple Sclerosis (MS) community.

Oh and by the way Stuart Schlossman (is not a medical doctors) and only has the initials of RRMS behind his name.

This message is/was intended for all who have thought the opposite of what is true...

MS Views and News, Stu's Views & M.S. News

Inexpensive Hypertension Drug Could Treat MS

Provided by Karen D, in South Florida:
Reported August 19, 2009

(Ivanhoe Newswire) -- Turning serendipity into science, researchers at the Stanford University School of Medicine have found that a safe, inexpensive drug already widely used for high blood pressure may have therapeutic value in multiple sclerosis as well.

Neurology professor Lawrence Steinman, MD, senior author of the study, cautioned that extensive clinical trial work is needed to determine if the drug, known as lisinopril, can do in humans what it does in mice. "We were able to show that all the targets for lisinopril are there and ready for therapeutic manipulation in the multiple-sclerosis lesions of human patients,” Steinman was quoted as saying. “Without that, this would be just another intriguing paper about what's possible in the mouse."

This all came about seven years ago, when Steinman learned he had high blood pressure and his doctor prescribed lisinopril, a drug used by millions of people that has an excellent safety profile. On receiving the news, Steinman went home and did a Google search on the drug. A glitch in Steinman's home computer, which he had never bothered to correct, automatically inserted the additional term "multiple sclerosis" to any keywords typed into the search field.

continue reading from the Ivanhoe.com website

For those reading this on facebook, please visit our ms blog to leave comments


Tuesday, August 18, 2009

Cognitive decline in multiple sclerosis: impact of topographic lesion distribution

Cognitive decline in multiple sclerosis: impact of topographic lesion distribution on differential cognitive deficit patterns

Some people with MS can develop some degree of cognitive impairment. Although brain volume loss, which can occur in people with MS, and the lesion load are associated with cognitive dysfunction, the exact mechanisms that determine this cognitive decline are not yet fully understood. In this article the authors have shown that the brain volume loss in deeper regions of the brain seems to play a more important role in determining cognitive impairment in people with MS than the total lesion load.

>> Read More


Magnetic resonance evidence of cortical onset of multiple sclerosis

source: msif.org

MS is characterised by the presence of lesions in the white matter of the brain and the spinal cord. These lesions can be observed by conventional MRI techniques and are required for the diagnosis of MS. However, at the time of the onset of MS symptoms the MRI scan in some people is considered normal, without any lesion in the white matter. When this happens, the diagnosis of MS can be delayed. Although MS is a disease traditionally considered as predominantly affecting the white matter, the involvement of the grey matter has been shown to be important and related to clinical progression. The authors studied four people with symptoms suggestive of MS, who had normal MRI results, using a new MRI technique, double inversion recovery (DIR), They found that, despite having an apparently normal MRI result, all four people had lesions located in the cerebral cortex, which were shown by the DIR technique. From a pathological and diagnostic perspective, these findings may be very important.

Click here to continue

Treatment Worse than MS?

By Cherie C. Binns RN BS MSCN

Lately, it seems I have been hearing from a number of folks who read this website as well as on MS Forums and Chat rooms that they have gone off all therapy for MS because “the treatment is worse than the disease”. Some are even refusing MRIs to document whether their illness is stable, progressing or may not even be present. Most have refused LPs (lumbar punctures) to confirm that they have MS because of potential dangers associated with the procedure (pain with the procedure, spinal headache, potential need for blood patch, etc).


I started with MS long before we had treatment for the illness and diagnosis was difficult to pin down because docs did not want to “pronounce a death sentence” on a young adult when they might live a fairly normal life if they were oblivious to the illness’ presence. For 19 years, I had classic relapses and remissions with vision loss, spasticity, numbness and tingling, incredible fatigue, cognitive and emotional symptoms, and bladder/bowel symptoms. My caring doctors wrote this off to stress since I was a mother of two young and active children and I worked second and third shift so my husband could work days and one of us always be with the children. So on top of all this, I was sleep deprived and my one stable adult relationship was compromised by work schedules.

Continue reading this exceptional exposé from our website
scroll down to Treatment Worse than MS?

After reading Cherie's story, please come back here, to leave comments.

Thank You


Explaining your Multiple Sclerosis to your friends, two guys do it on YouTube

August 18, 1:35 AM - Multiple Sclerosis Examiner - Mike Szymanski

Explaining your MS to your friends is tough. They don't understand, they don't get it, and they are sometimes as confused as you are about the whole thing.

Here are two brave guys who have recently explained their disease to friends via YouTube.

Philip Browder, aka Masta Flipp, told his friends, family and fans this week that he has Multiple Sclerosis.

He explains his absence from the Internet, his symptoms, his loss of eyesight and limitations in his limbs, and what the possible next steps will be with his treatments.

He's a brave man, with a young son and supportive family.

He explains the illness in clear and concise terms, as baffling as it is to him.

I wrote to him and he has been surprised and delighted about the outpouring of support. He says he's doing fine, and he has a doctor he thinks is giving him the right advice about the next steps.

The story is touching and the video is wonderful. Good luck to you Philip.

Also below is a video blog of a guy named Gav in the United Kingdom. He is recently diagnosed, at 25, and with some wit and circumspection, explains what he is going through with the illness.

FIND BOTH YOU TUBE Videos by clicking here, to revert to the examiner.com site

Additionally, the first video, was placed on our website a few weeks ago.
You can view it by visiting the MS Views and News website


Monday, August 17, 2009

MS Patients Who Smoke Show More Brain Atrophy, More Lesions, than MS Nonsmokers

ANOTHER reason to immediately stop smoking...

Release Date: August 17, 2009

BUFFALO, N.Y. -- Persons with multiple sclerosis who smoked for a little as six months during their lifetime had more destruction of brain tissue and more brain atrophy than MS patients who never smoked, a study by neuroimaging specialists at the University at Buffalo has shown.

Research published in the Aug. 18, 2009, issue of Neurology®, the medical journal of the American Academy of Neurology, showed that "ever-smokers" had more brain lesions and greater loss of brain volume, as well as higher scores on the Expanded Disability Status Scale (EDSS), than MS patients who had no history of smoking.

Click here to continue reading


[ photograph ]

Cigarette smoking is a compelling risk factor linked to the development and worsening of multiple sclerosis, according to research conducted by Robert Zivadinov.

Download JPEG

Contact: Lois Baker -ljbaker@buffalo.edu -- 716-645-4606


Care Given to People with MS by Family Members Presents Unique Challenges

Cherie C. Binns RN BS MSCN - proposed that I post this meaningful article

Study funded by National MS Society points to need for respite and mental health support for family care givers
Aug. 2009

A study focusing on family members of people with MS with moderate to severe physical disabilities highlights the unique demographics of this population and their need for support. Health care researcher Robert Buchanan, PhD (Mississippi State University) and colleagues published their results in the July 2009 issue of Disability & Rehabilitation. This study was funded by the National MS Society.

Background: Studies suggest that at any one time, an estimated 30 percent of people with MS require assistance and care at home, and that about 80 percent of that care is provided by informal, unpaid care givers who are usually family members. This type of care is important if it helps people remain in their homes rather than move to a nursing home. To better understand the informal care provided to people with moderate to severe physical disabilities and other aspects of long-term care related to multiple sclerosis, the National MS Society released a request for research proposals on this topic under the auspices of its Health Care Delivery and Policy Research Program. Dr. Buchanan’s team received funding to conduct studies of long-term care issues including a study of informal care-giving in the home.

Click here to continue reading direct from the National MS Society.


More on PPMS and SPMS

From the National MS Society:

Webcast: Understanding Primary-Progressive MS

A three-part video webcast series focusing on primary progressive MS.


Read articles on SPMS and PPMS found on this blog, by clicking here.
When the page opens, scroll to view the various postings.


Not enough said of MS Pain

So often we forget that there are many face of Multiple Sclerosis.

For some it is cognitive issues while for others it's all about mobility or vision and yet there are those too, who suffer from pain. It may not be everyday but enough to know there is a problem.

Also there are those who suffer from combinations-of, each mentioned above.

By clicking this link, you will be able to explore various articles already posted to this blog about Pain and it's effect on those with MS.

I tend to remain clear of the MS Pain topic, because I suffer from pain. Various types and attacking various portions of my body in various ways. I have always felt that if I did not discuss my pain, then it wouldn't hurt.. I could speak about Johnny or Jane's (his or her ) pain(s) but not about mine.

But being how I have been feeling the last few days, I figured, sure why not, let's bring it up and out into the open again..... Then I can hurt, and others will know: that I am what I am...

Have a comment? Please try to leave this on our blog site, by clicking here


MS patient credits orthomolecular medicine for ending painful attacks

Canada.com - Amy Minsky- August 17, 2009

Since he was a teenager, Peter Leeds has suffered painful attacks that render his hands and feet crippled and numb.

He had no idea he has multiple sclerosis, a debilitating disease that plagues the central nervous system, leading to physical and cognitive disabilities.

"I'd wake up and my toes and fingers would be numb," he said. "The numbness would creep up my legs, creep up my arms, until it took me over, making me numb from the neck down."

Suffering attacks at least once a year, it wasn't until four years ago, when Leeds was 31 years old, that he was diagnosed with MS.

Shortly after, as Leeds lay sobbing on the floor, his wife asked him if he was going to die.

He couldn't answer. He didn't know anything about the prognosis or treatments.

Leeds, a Toronto resident, has benign relapse-remitting MS, which is characterized by unpredictable, yet clear, attacks.

Symptoms can begin to appear over a few hours or days, and last for days or months. Between attacks, the body can recover almost completely.

Click here to continue to read from the 9th paragraph


Help the MS Foundation Choose Future MSF Cruise for a Cause Destinations!

It's All About MEE. That's the motto of the MSF's educational programs, including the MSF Cruise for a Cause. Our goal is to Motivate, Educate, and Empower you. In that spirit, we'd like you to help select the itineraries for our future cruises. Where would you like to go?

Let us know know by participating in a short survey. Completing the survey will take approximately two minutes, and will help us to determine which cruises our attendees would most enjoy.

Click Here to Take the Survey!


Sponsor Reports Positive Results of Clinical Trial of Zenvia™ for Pseudobulbar Affect (Uncontrollable Laughing and/or Crying)

An oral drug designed to treat uncontrollable laughing and/or crying (also called pseudobulbar affect), a troubling symptom experienced by some people with MS, ALS, and other neurological disorders, has passed another hurdle by showing positive results in a Phase III trial. According to company sources, Zenvia™ (Avanir Pharmaceuticals) significantly reduced the rate of laughing and crying episodes and appeared to be safe and well tolerated. The company is conducting a complete analysis of the results to present at scientific meetings and to prepare a filing with the U.S. Food and Drug Administration requesting approval to market the drug.

Click here to continue reading from the second paragraph

Oral MS Medications in Study

Below is a short listing of medications currently under study or in research

Oral Fingolimod Reduces MS Disease Activity

First oral MS drug one of many treatment advances on horizon

Oral Cladribine Reduces MS Relapses in Phase 3 Clinical Trial

FDA Agrees to Fast Review for Oral Drug Being Tested for MS

Novel Oral Therapy Suppresses Immune Attack in MS Model

Laquinimod Results Published: Oral Drug Reduces Disease Activity in Phase 2 Study

MS Trial Alert: Investigators Seeking 30 People with MS for Study of Oral Nerispirdine for Visual Function

Clinical Trial of Oral CDP323 in Relapsing MS Discontinued

Positive Results Reported For Oral Teriflunomide For Relapsing MS

Results Published: Oral Drug BG00012 Reduced MRI Inflammation in Relapsing-Remitting MS During Phase 2 Trial -- Phase 3 Trials Recruiting Patients

To review balance of this comprehensive listing, click here


What drug treatments are available for MS and its symptoms?

CLICK HERE to find a table of drugs used to treat multiple sclerosis and its symptoms.
It only lists drug therapies and does not deal with other forms of therapy

The list is by no means complete and new treatments are being researched and coming into use all the time. It should be emphasized that none of these drugs are a "cure" for either MS nor for any of its symptoms. The only medications available at the moment either slow down the course of the disease at best or are palliative on its symptoms.

source: mult-sclerosis.org


Novartis Version of Bayer MS Drug Wins U.S. Approval

By Eva von Schaper

Aug. 17 (Bloomberg) -- Novartis AG won U.S. Food and Drug Administration approval to sell its Extavia multiple sclerosis treatment, its brand of Bayer AG’s Betaseron.

Extavia, a form of interferon beta-1b, can be used in patients with early and relapsing forms of multiple sclerosis, Basel, Switzerland-based Novartis said in a statement today.

Selling the treatment is a strategic step that allows Novartis to establish itself in the multiple sclerosis community before introducing its potentially best-selling FTY720 MS pill. The company aims for at least $1 billion in sales for its multiple sclerosis franchise, Joe Jimenez, the head of Novartis’ drug unit, said in an interview before the approval. Novartis plans to set up a network of sales people, nurses, as well as support hotlines to help sell Extavia and “build our commercial capability,” Jimenez said.

Continue to read from Bloomberg.com