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Friday, December 11, 2009


Laurie provided the following information

MS and food intolerance.
From the beginning of this century there have been centers where special diets for people with MS were prescribed.
A clinical comparison has not been possible.

Dogs and cocoa.
When dogs consume cocoa products, they become paralysed and incontinent. Heart disease may follow, the dogs soon die. Dr. A. Glauberg, DVM and Dr. P. Blumenthal, MD, in 1983 published their findings concerning the theobromine metabolism in dogs, as compared to the same in humans.
The metabolism of theobromine in dogs was very much slower than same in human beings.

P450 and MS.
Cocoa is an alkaloid, which is metabolised with the aid of the liver-enzyme- system P450 (CYP). This enzyme cannot as yet be determined in the blood. There is a lot of circumstantial evidence that P450 (CYP) activity is abnormal in MS. We have found that if MS patients do not consume certain foodsubstances, the ones normally metabolised with the aid of P450 (CYP), the MS will remain stable.
An antihistamine is useful if an offensive 'xenobiotic' has been ingested. All the antihistamine seems to do in MS is to stop the abundant fluid production in the CNS, remove the edematous patches as soon as possible, prevent CNS damage, scars later on.

The elimination diet for people with MS has nothing in common with alternative medicine. More with phenylketonuria (PKU), where the demyelination of the CNS has been stopped with an elimination diet as well. In PKU there is a deficiency of the enzyme phenylalanine hydroxylase. In MS we have increasing evidence of malfunction of the liver-enzyme-system P450.

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Thursday, December 10, 2009

A Happy and a Merry or the other way around

A Happy Hanukkah and a Merry Christmas

or is it a Merry Christmas and Happy Hanukkah

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A Message from MS Lifelines - Brighten Your Outlook

As 2009 comes to a close, you may be thinking about resolutions for the New Year. This year, why not resolve to try to think positive? Having an optimistic outlook may help you to manage stress, cope with challenges and contribute to a positive sense of self.

Of course there will be certain events and certain times when it may be more difficult to maintain a positive outlook—and that's okay. No one can be happy and upbeat all the time. Living with relapsing MS is a personal journey, and everyone's experience is different. However, there are steps that you can take that may help you maintain a positive attitude in spite of the challenges of MS. For some, thinking positively is something that comes naturally; however, for others it may take some practice. The good news is, optimism is not necessarily inherent, it is a skill that can be learned. For instance, practice spinning negative thoughts into positive ones. Instead of saying "it's too complicated," try "I'll tackle it from a different angle."

Count on friends and family

Your family and friends can also play an important role in helping you to stay positive. Talking openly and honestly with loved ones can help them learn how best to support you. In addition, spending time with others and enjoying your favorite activities together can be a fun and rewarding way to connect with the people you care about.

Here's to your health!

Don't forget to be good to yourself. Making smart lifestyle choices may give you a feeling of well-being. So remember to get enough rest, eat right, exercise under the guidance of your physician and continue to take your therapy as prescribed by your doctor.

Remember, even if you're not naturally optimistic, trying to maintain a positive attitude may help you overcome some of the obstacles that might come your way. We hope you find the tips we've provided informative and useful.

We wish you a very happy holiday season and hope that 2010 is filled with many positive experiences.

Learn tips to help you maintain a positive attitude from an MS LifeLines nurse.

Find out how MS LifeLines® Ambassadors, Kim, Nicole and Missy stay positive and live well with relapsing MS.

MS LifeLines Ambassadors are sponsored by EMD Serono, Inc. and Pfizer Inc.


Disorders That Mimic Multiple Sclerosis

David H. Mattson, MD, PhD, Department of Neurology, Indiana University Medical Center, Indianapolis, IN; Albert C. Lo, MD, PhD, CPH, Department of Clinical Neuroscience, Engineering and Neuroscience, Brown University, Providence, RI;Elizabeth Auld, PA, Departments of Primary Care and Neurology, VA Connecticut Healthcare System, West Haven, CT

If you have multiple sclerosis (MS)––or you know someone who does––you probably remember how long it took to make the diagnosis. You also may remember a lot of blood tests, a lumbar puncture, at least one magnetic resonance imaging (MRI) scan, as well as many visits and examinations by various doctors. You may wonder why it still takes so long to make the diagnosis in this modern age of MRIs and other sophisticated tests. We are going to try to explain why it can be so difficult for even the most expert MS neurologist to determine that someone has MS. You have to live with the diagnosis and face the disease and the treatments. You should understand and have confidence in the diagnosis. Also, if your case of MS does not fit the typical pattern, you need to be aware of the other disorders that can mimic MS. This is important because the treatments may be very different and, just as in most cases of MS, treatment begun early in the course of the disease is the best way to prevent or slow further neurologic damage.

Continue to read directly from The United Spinal Organizations' MS SCENE


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MS questions from a patient's viewpoint

National Post Published: Wednesday, December 09, 2009

Multiple sclerosis is a neurological condition that, with the exception of trauma, is the most frequent cause of neurological disability beginning in early to middle adulthood. The Mellen Center at the Cleveland Clinic in Cleveland, Ohio, is the largest and most comprehensive program for MS care and research worldwide. The following is an edited online forum with questions from patients and others affected by MS, led by Dr. Alex Rae-Grant, who specializes in the care of patients with MS, and is involved with resident and student education at the clinic

Read the Questions and Answer session found here


Wednesday, December 9, 2009

Blog Searches for MS information

Looking for something on this blog?

Use the Blog Search Box, found near to the upper right of this page - that looks like this:Blog Search
Type in a keyword like: Pain, or CCSVI, or Zamoboni, or Stem Cell, or other things you seek and then click enter

All articles containing the keyword will then become available for you.

Yes, It's THAT simple

If ever you have questions for me, write to


MS Resource Links from MSV&N

Internet Resources for those affected by Multiple Sclerosis (MS)
We are regularly out on the Web. When we find a great site we list it.

Click here to visit the Resource links we have available to make it easier for you.

If you know of a site that can be listed at one of the links shown, send it to for review.


For People with MS, here are Tips for Dealing with Trigeminal Neuralgia

Try These Things for a Little Relief

By , Guide

Updated: December 09, 2009

While I have never suffered from the bring-you-to-your-knees-in-agony pain from a full-force attack of trigeminal neuralgia (TN), I have had some small “mini-TN” episodes that are enough to let me know that this must be terrible for those experiencing TN attacks. Even my little twinges are enough to make me get very still and very quiet, usually staring straight ahead and blinking only when absolutely necessary. My sentences are reduced to meaningful looks or one-word responses to questions.

Unfortunately, as many of us know, relieving the pain from trigeminal neuralgia is a little more involved than taking an over-the-counter pain reliever. For many people, part of the frustration of TN is that there seems to be little to do to bring any relief at all. However, there are things that people have tried with varying success to alleviate some of their pain.

The idea behind many of these tips is to “scramble the signals” of the affected nerves so that they do something besides cause pain. Whether medically or scientifically sound or not, many people out there are finding some level of relief from these tips and none of them are harmful. While most people say that none of these techniques completely eliminate their discomfort, they do claim to experience a reduction in the pain. To me, this sounds better than nothing and worth a try.

Read about applying heat, cold, pressure and more, by clicking here.


Severe Facial Pain as a Symptom of Multiple Sclerosis

Trigeminal Neuralgia or Tic Doloreux and MS

By , Guide

Trigeminal neuralgia has to be one of the worst symptoms that people with multiple sclerosis (MS) experience. A couple of readers have written to me about this symptom and said that there were no words to describe the intensity of their pain. It is one of the types of pain described as “neurogenic pain” or “primary pain,” meaning it is the direct result of the disease process of multiple sclerosis, caused by demyelination and lesions on specific nerves.

What Does It Feel Like?

Trigeminal neuralgia, often called tic doloureux (French for “painful twitch”), is perhaps the most intensely painful MS-related symptom. It can be described most commonly as:
  • occurring in the lower part of the face (often triggered by chewing, drinking or brushing one’s teeth)
  • intense, sharp pain
  • like an electrical jolt
  • usually the most intense pain is short-lived (from a few seconds to up to two minutes), but can result in a more constant burning or aching
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Pharmaceutical Resources and Program information for the MS Patient

MS Pathways®

Use the above resources to find local programs in your area


On the Stu's Views & M.S. News - blog we have Shared MS Resource Links

If your organization is not listed let me know as me to include it and let me know that you will place our link on your site.


Tuesday, December 8, 2009

MS Related: Symptom Management

Because I have been receiving many emails of late, on symptoms and what they can learn of problems associated with MS, I thought to revive the article posted earlier this year on:

Symptom Management
A comprehensive overview of strategies and medications used to manage MS symptoms, along with initial findings on many experimental treatments presently being studied


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Darla’s Message to MS: “To live with fear is a life half-lived”

Written and Posted by Justine Lam on Dec 8th, 2009
I met Darla Bongiovanni in September when she was just starting her first year of classes at SUNY-Purchase in New York. Darla’s not just a undergrad student, she is also musician turned science major who was diagnosed with MS a few years ago. She originally came back to school to get more involved with the fight against MS as a doctor and researcher. Her dream was to become a neurologist specializing in MS.

She found the Myelin Repair Foundation’s website when she was starting to read up more on multiple sclerosis research that specifically pertained to myelin. In her words, this is what intrigued her about the MRF:

“We can’t wait for a cure for MS” was the first thing I saw on the website. I was so happy to see that the MRF had developed this research model with a timeline and goals in hopes of making progress FAST.

Simply put, I want to do, to see, and to feel as much as possible while I still can. MS could very well slow me down, but myelin repair means MS wouldn’t ever stop me.

So, she emailed us regarding getting involved as a volunteer.

Click here to continue reading


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Cleveland Clinic receives $2.75M grant to study stem cell use in treating MS

11:38 am, December 8, 2009

The Cleveland Clinic has received a $2.75 million federal grant to study the use of stem cells in treating multiple sclerosis.

The four-year grant from the Department of Defense will fund a 24-patient study to be done by the Center for Stem Cell and Regenerative Medicine, which is made up of investigators from biotech company Athersys Inc., Case Western Reserve University, the Clinic, Ohio State University and University Hospitals Case Medical Center.

In the study, patients with relapsing MS who are still able to walk even though they have moderate to severe disability will have bone marrow removed from their hips. Mesenchymal stem cells then will be grown in a laboratory and inserted into the body to determine whether such a procedure is safe and improves the patient's condition.

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Monday, December 7, 2009

Biogen Idec's oral compound BG-12 achieves development milestones in MS and RA

CAMBRIDGE, Mass. – December 7, 2009 – Biogen Idec (NASDAQ: BIIB) today announced that its oral compound BG-12 (dimethyl fumarate) achieved key milestones in clinical trials for multiple sclerosis (MS) and rheumatoid arthritis (RA). In recent months, the last patient was enrolled in the CONFIRM trial, the second of two Phase III trials designed to evaluate the efficacy and safety of BG-12 as a monotherapy in patients with relapsing-remitting multiple sclerosis (RRMS). Both the DEFINE and CONFIRM Phase III trials are now fully enrolled and will evaluate the effect of BG-12 on clinical relapse, disability progression, various MRI measures of disease activity, and safety.

The last patient was also enrolled in a Phase II study to evaluate the safety, tolerability and efficacy of BG-12 in combination with methotrexate in subjects with active RA who had an inadequate response to conventional disease-modifying antirheumatic drug (DMARD) therapy.

"There is significant unmet need in both the MS and RA communities for additional treatment options," said Kate Dawson, M.D., senior director, Medical Research, Biogen Idec. "The Phase IIb study of oral BG-12 in patients with MS showed promising MRI results regarding the compound's ability to reduce inflammation and its potential for neuroprotection. We look forward to results from the DEFINE and CONFIRM Phase III MS studies, as well as the proof-of-concept trial in RA."

CLICK here to finish reading this article from Eureka alerts

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The Winter of our Life… (dealing with Seasonal Blues)

By Cherie C. Binns RN BS MSCN


Winter is nearly upon us with its shorter days and longer nights, increased activity with holiday and seasonal events, and the added demands on our time with shopping, baking, parties, etc. Many of us, however, do not find this as joyous a time as our friends and neighbors do. We can be beset by fatigue, changes in appetite, a desire to curl up and “hibernate” so to speak. We might be more irritable, sleep less well, or have less control of our emotions. The good news is that this is not something we have to live with every year if we identify why we are feeling this way and take action. It is possible all this is caused by SAD or Seasonal Affective Disorder.


Seasonal Affective Disorder (SAD) is a real and treatable entity that at first may look to some of us as if our MS is acting up. It saps energy. It wreaks havoc with sleep. It changes appetite. Perceptions of people and places can be altered. Everything may start to ache. We may think we are having a relapse due to the pain, changes in mood, possibly even distortion in vision. In the low light of these late autumn days and early nights and the continuance of this through the next several months, we tend to retreat from life , hole up in our homes or our rooms and not venture out and engage in the more social offerings of this time of the year.

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