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Friday, May 21, 2010

THE CHANGING FACE OF MS - online version from the MS Foundation

The Changing Face of MS - By Ben Thrower, MD

This online magazine has many interesting articles

See if you recognize any of the faces found on the front cover of this MS Focus issue.

I am sure you might recognize at least one...


MS Learn Online - Family Life & Relationships

Please explore our video library of MS Learn Online segments on this topic. Note that these videos are categorized into two types of segments. You may jump directly to your preferred segment type by clicking on one of the three links below.

Daily Minutes: Short informational clips about this topic, usually lasting around a minute or so.

Feature Presentations: More comprehensive coverage of a topic, usually featuring a variety of experts and/or perspectives. These are usually broken into 2-4 segments lasting 6-10 minutes each.

Daily Minutes - Family Life & Relationships

MS: A Family Adjustment

Pregnancy and MS

What to Tell the Kids

the National MS Society's online educational webcast series

MS Learn Online is the National MS Society's online educational webcast series.

Transcripts (.pdf format) and podcasts (.mp3 audio format)

are available for most programs.

Current Feature Presentation

Clinical Trials: Solving One Piece
of the MS Puzzle

Cannabis-based Sativex MS treatment set for approval in UK

Sativex, a ground-breaking cannabis-based drug for treating symptoms of multiple sclerosis (MS), could be approved in the UK by the end of June, its creator said on Thursday.

By Rachel Cooper - Published: 6:45AM BST 21 May 2010
GW Pharmaceuticals has been developing Sativex, which eases muscle stiffness associated with MS, for more than a decade and on Thursday the drug maker said the medicine could be approved and launched in Britain by the end of next month.

A regulatory green light in Spain is expected shortly after, according to the company, which added that all major and minor issues relating to the application for Sativex's approval had been resolved.

The approval is now in its final stage, which involves finalising the wording on the product's packaging.

Sativex, which is sprayed under the tongue, is to be marketed in Britain by Germany's Bayer and in the rest of Europe by Spain's Almirall.

GW said both partners were well advanced in preparations for the Sativex launch and GW has manufactured stocks of Sativex for distribution immediately upon UK approval.



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Thursday, May 20, 2010

Terence's MS Story - My Life with MS

Terence's MS Story
My Life with MS

The first symptom of MS occurred while I was in the services. These were optic neuritis and temporal-lobe epilepsy (TLE) or petit mal. I was sent to RAF Hospital, Ely, but doctors there at that time had insufficient information for any accurate diagnosis. Why were there dead cells floating in the vitreous humor? (I kept quiet about the TLE.)

In 1972 aged 36 I was initially diagnosed with MS by Dr Fred Lees at Colchester Hospital, Essex following a myelegram and a very painful lumbar puncture. The symptoms I had then included the usual "pins-and-needles" in my hands, feet and neck when I lowered my chin to chest (the well-known "Barber's chair syndrome"). I was referred to the National Hospital Queen Square, London for a second opinion. MS was confirmed! At the time I refused to believe it! Fay, the wife of a close friend, suffered from relapsing/remitting MS and I certainly didn't have the same symptoms suffered by her or by Jacqueline du Pré and I refused to believe it.

Sadly, in those days we PwMS received little support except what little we learned from books, the Internet, and other PwMS.


SNAKE Oil treatments - Feed on the Desperate, who seek medical cures. See how those with MS (and other diseases) are being lured into deceit of a cure

21st Century Snake Oil Part 1

April 18, 2010 10:03 AM

"60 Minutes" hidden cameras expose medical conmen who prey on dying victims by using pitches that capitalize on the promise of stem cells to cure almost any disease. Scott Pelley reports

CLICK HERE to get informed and LEARN !!

Mind you, this video might make you cry or get quite angry.
Please LEARN from what you see here!!!!

I applaud CBS' 60 Minutes for what they expose !!


Stay informed and up-to-date with News that concerns your MS


Small Phase I Safety Trial of Bone Marrow Stem Cells in MS Completed

May 18, 2010

British researchers report results of a Phase I safety/feasibility clinical trial involving six people with long-standing multiple sclerosis, testing intravenous injections of the patients’ own adult bone marrow cells containing a mix of stem cells. After one year, the investigators found the treatment safe, but because it was a small, open-label trial with no controls, they report that firm conclusions cannot be drawn about its effectiveness. The study, by Neil Scolding, MD (University of Bristol, United Kingdom) and colleagues, is published online on May 5, 2010 in Clinical Pharmacology & Therapeutics.

Background: MS involves immune attacks against the brain, spinal cord and other tissues that make up the central nervous system. For years, researchers have been investigating bone marrow transplantation as a way to reconstitute the immune system in people with aggressive MS whose immune cells have been purposely destroyed, in hopes of stopping the MS immune attacks. This approach is still being investigated as an experimental treatment of MS. Recent studies, largely involving animal models, have suggested that adult stem cells contained in the bone marrow might have the capacity to inhibit destructive immune activity and possibly stimulate tissue repair.

This Study: Six people who had had MS for a duration ranging from 9 to 20 years, and who had moderate to significant disability (scores on the EDSS disease activity scale ranging from 4.5 to 6.5), participated in the study over one year. Each participants’ own bone marrow cells were removed, then filtered and then infused into the vein. None required an overnight hospital stay for the procedure. Rather than separate out a specific type of bone marrow stem cell (such as mesenchymal cells that have received attention as possible repair cells), the research team determined there was sufficient evidence to suggest possible benefit of infusing a mix of whole bone marrow cells.

According to patient reports, they found the procedure tolerable, and no severe adverse events were reported. After the infusion, one participant had postoperative urinary retention, and two had a transient increase in lower limb spasticity. One participant had an MS relapse two months after the infusion.

Continue to read directly from the source of this article


Wednesday, May 19, 2010

TYSABRI Hope and Health Teleconference Schedule: 2010


If you are looking to learn more about MS therapies, the TYSABRI Hope and Health Teleconference Series may help you make a more informed treatment decision.

Many teleconference programs will be offered in 2010.

Log on to hear a physician discuss treatment information and to hear a panel of TYSABRI patients share their personal experiences. Ask them questions directly, or just listen to the discussion — all in the comfort of your own home.

Registration is easy — at no cost to you.

Sign up for free to learn more!

Simply call 1-866-644-8540 ten minutes before the start of each teleconference. When asked for a code, say, "Hope and Health Teleconference" — and you'll get connected.

For a complete listing of MS teleconferences and events in your area, visit


TYSABRI is a prescription medicine approved for adult patients with relapsing forms of MS to slow the worsening of disability that is common in patients with MS and decrease the number of flare-ups (relapses). Because TYSABRI increases the risk of progressive multifocal leukoencephalopathy (PML), a rare brain infection that usually causes death or severe disability, TYSABRI is generally recommended for patients that have not been helped enough by, or cannot tolerate, another treatment for MS. TYSABRI does not cure MS and has not been studied for longer than two years or in patients with chronic progressive MS.


Dealing with Paroxysmal MS Symptoms

Dealing with Paroxysmal Symptoms

By Cherie C. Binns RN BS MSCN

For most people with MS, “paroxysmal symptoms” is not a familiar term. However, even for some individuals who have never been diagnosed with MS, these neurological symptoms may send them to a doctor. Paroxysmal symptoms are characterized by sudden onset, brief duration and rapid disappearance. With patients exhibiting these events, brain wave studies do not identify them as seizures. These paroxysms may appear as brief twitching or spasms coming on suddenly and disappearing fully within seconds. They may or may not lead to an MS diagnosis. They are not “MS Seizures”.

I had one patient who developed severe shaking leg spasms for about 20 seconds whenever we tried to reposition him. We were able to minimize this somewhat by letting him know we were about to move him, keeping hands in place for a few seconds before actually moving him, and not stopping if a spasm occurred until he was settled in the new position. This made it easier for him to relax and become comfortable.

To continue reading, click here and scroll to the article.

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Monday, May 17, 2010

MS related - There IS help for Foot Drop

NESS L300 Foot Drop System

The NESS L300 is an advanced foot drop system designed to use mild stimulation to lift your foot to help you walk more safely and easily. If the NESS L300 is right for you, it may be easier to walk on flat ground, up and down stairs, as well as on uneven surfaces. This light-weight device is designed to fit just below your knee and to be put on and taken off with one hand. Use of the NESS L300 may eliminate the need to wear a rigid, heavy orthosis.

Is NESS L300 Right For Me?

Learn more about what conditions the NESS L300 may help and when it may not be appropriate to use it. Click here to learn more.

How NESS L300 WorksLearn how

the system works and explore it's unique design features. Click here to see how it works.

Getting Started

Learn the next step to trying the NESS L300. Click here to learn more.


"Providing You with 'MS Views and News', is What We Do"
Remain up-to-date and Informed with Multiple Sclerosis News and Information. If not yet receiving the"Stu's Views and MS Related News", weekly M.S. e-newsletter, then please take 20 seconds to register at: - - Thank you -

Sunday, May 16, 2010

Donate to Tissue Banks

Obtained from a woman named Cindee and a guy named Mike

People living with MS may hold the key to curing this disease. One way they can make a difference is to arrange to donate their brain and spinal cord tissues when they die. The National MS Society supports three MS tissue banks, which are storage facilities that provide brain and spinal cord tissues to researchers studying multiple sclerosis. These studies generally focus on the pathology of MS — its nature, cause, and effects on the brain — and they are extremely important.

A tissue bank is very close to what it sounds like: an area in a laboratory or medical center where tissue specimens are "deposited" and stored for later "withdrawal" and use.

The MS tissue banks store brain and spinal cord tissues, spinal fluid, and other specimens from persons who had MS during their lifetimes. The banks are often interested in collecting specimens from people who do not have MS, or from family members. These samples are frozen or otherwise preserved very soon after the death of the donor. The banked tissues are carefully catalogued with information about the each donor's medical history.

For those considering donating tissue, planning ahead is essential. Brain tissue must be prepared within hours after death to be of use in research. (This donation need not interfere with funeral arrangements.)

The decision to contribute to this special type of research is most thoughtful, and is truly appreciated by all who are involved in moving toward a world free of MS.

Individuals interested in the possibility of tissue donation can contact these banks:

Click here to read the listings and article from the NMSS website