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Tuesday, June 9, 2015

How do we slow down progression, for Progressive MS Patients?

Published June 1, 2015

Ashley Ringstaff, of MS World, asks Dr. Jack Burks, how we can slow progression for those diagnosed with a progressive form of Multiple Sclerosis. Either Primary Progressive and/or Secondary Progressive. -  Video found here

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A Patient's writings: Hope and Collaboration: A Preview Of What I’ll Be Writing About As A Blogger For CMSC’s Annual Event

By Cathy Chester—June 7, 2015
A few months ago I was asked by June Halper, CEO of the Consortium of Multiple Sclerosis Centers (CMSC) to be CMSC’s first blogger. I’ve attended this annual event before but never as part of the press corps.
As a blogger and patient I was excited at the opportunity to see old friends, make new ones and hear about MS care and research at the largest and most comprehensive meeting on everything MS.
Being CMSC’s blogger not only allowed me access into my choice of pages and pages of presentations, but I was also invited to events such as awards ceremonies and a small gathering to personally meet David Osmond, son of Alan Osmond from the original Osmond Brothers. Both father and son have MS. (More on that at a later date.)
Over the next few weeks I’ll be sharing with you what I learned, including interviews with some of the medical professionals who presented in Indianapolis.
Get ready to be fascinated. Here are a few of the many topics I’ll be writing about:
  • Cannibis and Cognitive Dysfunction
  • Cognitive Rehabilitation in Multiple Sclerosis
  • Using Social Media to Manage and Research MS
  • Factors in Gut Microbiome
  • Robotic Technology
  • Psychotherapy in MS
  • Lifestyle and Unconventional Medicine
  • The Progressive Alliance
  • Health and Wellness
  • Foundation of MS Centers (and the medical students, with their posters, who were awarded money from FMSC to conduct studies)
There were two words I heard over and over again last week. One was “collaborative” and the other was “hope.”
Click here to continue reading

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The Effect of Biofeedback as a Psychological Intervention in Multiple Sclerosis: A Randomized Controlled Study

Alison M. Mackay, Robert Buckingham, Raymond S. Schwartz, Suzanne Hodgkinson, Roy G. Beran, Dennis J. Cordato 

In this randomized controlled trial, biofeedback was examined for its ability to improve emotional well-being in patients with relapsing-remitting MS. Two groups of patients received treatment consisting of relaxation, mindfulness, social support, and education, and one of the groups also received biofeedback designed to regulate the physiological stress response. Both groups showed reductions in anxiety, fatigue, and stress; patients in the biofeedback group also demonstrated significant reductions compared to the control group in physiological measurements of breathing rate and muscle tension.  

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Revised MRI Guidelines for Multiple Sclerosis Stress Consistency

an similar article on this subject found here

June 08, 2015
INDIANAPOLIS — For the first time since 2009, a group of experts have published revisions to the guidelines for magnetic resonance imaging (MRI) in multiple sclerosis (MS), which stress the need for a standardized protocol in the diagnosis and follow-up of this patient population. Details of the revised guidelines were provided in a presentation at the Consortium of Multiple Sclerosis Centers 2015 Annual Meeting.
 Revised MRI Guidelines for Multiple Sclerosis Stress Consistency
“Over the last 10 years, technology has improved such that we can get higher-quality imaging. As a result, if we can get people to use a standardized protocol, we can use that higher-quality imaging to accurately compare over time,” lead guideline author Anthony Traboulsee, MD, of UBC Hospital in Vancouver, Canada, told Neurology Advisor. “There has also been more evidence that … new disease activity can influence treatment decisions [and] can let us know whether patients are on sufficient therapy or if they need an escalation of their therapy. That is probably the most dramatic change in the field — there is now more of a consensus that MRI is very useful and not just sort of useful.”
According to guideline author David K.B. Li, MD, of the UBC MS/MRI Research Group and UBC Hospital in Vancouver, Canada, the goal of these new updates was to standardize as much as possible, given the limitations that there will be technical improvements.
“The aim was to make things as backwardly and forwardly compatible as possible, so that you can compare and be absolutely certain that a change in terms of a new abnormality is because there has been a change as opposed to anything technical,” Li said.
In addition to reemphasizing the importance of obtaining the highest quality of images possible, the new set of guidelines also stress that scans should be obtained as similarly as possible from one study to the next. “In other words, [scans] should be reproducible in terms of brain coverage, so the whole brain needs to be covered and in terms of position of the scan,” Li said.
A key change with the updates, he said, is that previously, physicians were allowed to obtain scans at a 5 mm slice thickness to save time.  “But the change now with the most recent revision is that 3 mm is what is recommended,” he said.
Another change involves the acquisition of scans in three rather than two dimensions, or volume instead of a slice.
“When you obtain in a volume, you can still determine the intervals of those planes under review,” Li said. “The three-dimensional acquisitions tend to be obtained in 1 to 1.5 mm intervals — which is where the field is today.”

Continue reading here

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Monday, June 8, 2015

Current Disease Modifying Treatments and the Invisible Symptoms of MS - Video Recorded 05.26.15

Program Date: May 26, 2015 - Indianapolis, IN

  This video recorded program is one of many provided by MS Views and News, Inc
Provided as an enduring material for people affected by Multiple Sclerosis to learn-from and share with others.  see more of our video-recorded programs at The MS Views and News Learning Channel on YouTube found here: 

Listen to the dialogue first to MS Views and News' Emcee along with the discussions from a local support group leader, an ambassador to iConquerMS and a member of MS World

THEN watch these two empowering videos that will provide needed information for many people:

Mark Janicki, MD - Neurology from Indianapolis

Patricia Pagnotta, MSN, ARNP-C - from Mailtland, Fl.

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Another Study Focused on Stem Cells and Autoimmune Diseases Shows Promise

June 4, 2015

Researchers at Monash University and the MIMR-PHI Institute of Medical Research in Australia recently proposed that specific human stem cells with immunomodulatory properties represent a new promising therapeutic strategy for diseases like multiple sclerosis (MS). The study was published in the Journal of Neuroinflammation and is entitled “Immunosuppressive potential of human amnion epithelial cells in the treatment of experimental autoimmune encephalomyelitis.
Continue reading

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Review Suggests PEG-IFN Therapy for Relapsing-Remitting Multiple Sclerosis Significantly Reduces Relapse Rates

A study recently published in the journal PLoS One compared the use of a specific treatment based on interferon beta-1a with other approved injectable therapies in patients with relapsing-remitting multiple sclerosis (RRMS). The study is entitled “A Network Meta-Analysis of Efficacy and Evaluation of Safety of Subcutaneous Pegylated Interferon Beta-1a versus Other Injectable Therapies for the Treatment of Relapsing-Remitting Multiple Sclerosis” and was conducted by an international research team led by researchers at Tolley Health Economics Ltd. in the United Kingdom and Biogen Idec the United States.
Read More

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Sunday, June 7, 2015

Complementary and Alternative Therapies for Multiple Sclerosis

  • Reviewed by 

  • While some alternative treatments may help with pain and slow MS progression, the jury is still out on others.

    Adam Gault/Getty Images

    Acupuncture is a popular pain-relief strategy among people with multiple sclerosis.

    Although most alternative and complementary therapies for MS haven't been thoroughly studied and approved by conventional medical doctors, growing numbers of people with MS consider them effective at getting MS symptoms under control.

    Pushpa Narayanaswami, MD, an assistant professor of neurology at Harvard Medical School and a staff physician at Beth Israel Deaconess Hospital in Boston, says people with MS often use complementary and alternative medicine to help reduce relapses or ease symptoms, usually in addition to — rather than in place of — conventional therapies.

    Exploring Alternative Medicine for MS

    Because so many people use alternative approaches for treating MS, the American Academy of Neurology (AAN) had a committee look at relevant research and develop complementary and alternative medicine guidelines, which were published in March 2014 in its journal Neurology.

    RELATED: Complementary Therapies to Enhance Your MS Care

    “We viewed a lot of treatments but did not find evidence for most therapies — not enough to say whether it is useful or not,” says Dr. Narayanaswami, who is also a spokesperson for the project. The researchers found little evidence on the safety of the different alternatives, she adds.
    Alternative Treatments That May Work

    MS symptoms can include fatigue, muscle spasms and stiffness, pain, weakness, and bladder problems. According to the AAN guidelines and the latest research, here are some alternative treatments that could help despite there not being an abundance of evidence.
    CLICK HERE to continue reading

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    Caregiver Legal Needs - in Florida

    The information showing below, only pertains to those living in the State of Florida


    Living Wills, Health Care Surrogates, and Advanced Directives

    The following forms have been approved by the Supreme Court of Florida. Neither the Supreme Court of Florida nor The Florida Bar express an opinion as to whether the forms comport with current law.
    [Revised: 12-10-2014]
    information provided by Craig Dorne, PA - Coral Gables, Florida

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    When need to use a Catheter, Keep Informed - T-SPeC Overview -

    The T-SPeC Surgical System has undergone over 6 years of development and testing to provide the newest technology to accurately and safely place a suprapubic (SP) catheter quickly and effectively.

    The T-SPeC Surgical System, available in two models, was developed to allow placement of suprapubic catheters in patients with a range of body sizes by initiating the surgical procedure from inside the bladder under controlled guidance. The T-SPeC T7 can create a surgical tract to 7cm with a minimal 5mm incision. The T-SPeC T14, designed for large abdomen patients, can create a surgical tract to 14cm with the same minimal 5mm incision. Suprapubic catheterization is typically utilized by physicians as a long-term catheterization solution to facilitate drainage of urine from the bladder for patients with spinal cord injuries, or under treatment for urinary retention and severe chronic incontinence.

    The T-SPeC enables surgeons to place the Company's unique 18 Fr. SP urinary catheter by initiating the surgical incision from inside the bladder (starting at the target) utilizing each patient’s unique anatomical landmarks.

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