~~ Scroll left side of this blog for needed resources. Also, use our 'search by topic' tool, to find specific information.
Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, and procedures for your personal knowledge and to keep you informed of current health-related issues. It is not intended to be complete or exhaustive, nor is it a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.
Monday, May 15, 2017
Survey: Misdiagnosis, Myriad Symptoms Common for Patients with Multiple Sclerosis
Click here to receive MS news via e-mail
May 12, 2017
A new survey of 5300 patients with multiple sclerosis in the United States suggested nearly half had to visit a physician at least 5 times before being correctly diagnosed with MS, and 4 in 10 were initially misdiagnosed with another condition. The survey findings from Health Union, a Philadelphia-based healthcare information service also showed that MS patients regularly encountered wide array of symptoms, far beyond those typically discussed in most news coverage of the disease.
Of the 42% of patients who were initially misdiagnosed, one quarter were told they were depressed. Another 15% were diagnosed with migraines and 14% were diagnosed with fibromyalgia. Psychiatric disorders, chronic fatigue syndrome, and Vitamin B-12 deficiency were also common incorrect diagnoses. Tim Armand, president and co-founder of Health Union, said the survey helps paint a fuller picture of the hurdles people with MS must overcome. “The results of this survey clearly show that people with MS struggle with a disease that impacts all aspects of their life in ways that many around them simply cannot see,” said Armand, in a press release.
Armand said patient support networks could be integral in sharing information among patients and with also helping patients feel validated. Findings pointed out that once patients received the correct diagnosis, nearly two-thirds (65%) start treatment within the first three months post-diagnosis. However, the survey also revealed that some patients are apprehensive about MS drugs.
Forty-two percent of respondents said they were worried about the side effects of MS treatments, and 35% said they worried about the safety of disease-modifying therapies.
Devin Garlit, a patient advocate with Health Union, said it took 13 years for him to find the right therapy. “Finding the right treatment can be a difficult process that requires significant trial and error. You may have side effects with one, the next may not work well, and another may not be covered by insurance,” said Garlit, in the press release. -
MS Views and News is MAKING an IMPACT on those affected by Multiple Sclerosis