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Disclaimer: 'MS Views and News' DOES NOT endorse any products or services found on this blog. It is up to you to seek advice from your healthcare provider. The intent of this blog is to provide information on various medical conditions, medications, treatments, for your personal knowledge and to keep you informed of current health-related issues. It is not a substitute for the advice of your physician. Should you or your family members have any specific medical problem, seek medical care promptly.

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Saturday, December 21, 2019

NMSS updates - Key MS Policy Priorities Funded for FY 2020

On December 20, 2019, the President signed funding bills passed by Congress earlier this week. These funding bills provide the funding for the remainder of Fiscal Year (FY) 2020.

MS Activists' work throughout the year resulted in significant increases for MS funding priorities. These increases include:
  • $16 million for the MS Research Program at the Department of Defense - an over $10 million increase from FY 2019.
  • $6.1 million to the Lifespan Respite program - an over $2 million increase from FY 2019. These grants to states maximize existing resources and better coordinate and deliver quality respite services to family caregivers.
  • $41.7 billion to the National Institutes of Health to fund biomedical research - a $2.6 billion increase from FY 2019.
The National Neurologic Conditions Surveillance System at the Centers for Disease Control and Prevention received $5 million in funding to continue implementation of the MS and Parkinson’s Disease pilots

These bills also included other important priorities benefiting people living with and affected by MS:
  • The Patient Centered Outcomes Research Institute (PCORI) is reauthorized until 2029. PCORI has funded approximately $70 million in MS research to help determine what treatments work best for whom, under what circumstances. 
  • The Creating and Restoring Equal Access to Equivalent Samples Act of 2019 (CREATES) Act was signed into law, which makes it easier for generic drug companies to obtain samples of brand-named products needed to create generics. 
  • A temporary (five month) re-authorization of two Medicaid demonstration programs that would otherwise expire: 
    • The Money Follows the Person Program which helps people get the Home & Community-based Services in the setting of their choice, and
    • The Spousal Impoverishment Program, which protects a portion of a couples’ income and assets for the needs of the “well spouse” that would otherwise be used to pay for the nursing home care of the other spouse.
  • Manual complex wheelchair exemption from the Medicare competitive bidding process that protects access to this important equipment.
Additionally, Congress attached a large tax cut to the spending bill.  This measure included a temporary 2-year extension of the 7.5% threshold for the medical expense deduction. 

To find out more about the Society’s advocacy priorities, please click here.

information sourcehttps://www.nationalmssociety.org/About-the-Society/News/Key-MS-Policy-Priorities-Funded-for-FY-2020

Getting a Handle on MS Tremors and Shakes

Prevention is the best medicine for MS-related tremors, but help is available for those who already have them. 

By Denise Mann
Medically Reviewed by Samuel Mackenzie, MD, PhD
Last Updated: December 18, 2019

tremors and shakes


An occupational or physical therapist may be able to recommend exercises or assistive devices that ease the impact of tremors. Corbis

Many people with multiple sclerosis (MS) develop tremors, or shaking, in various body parts. Tremors can be mild, but they can also be severe and disabling.

"MS tremors are rhythmic, back-and-forth muscle movements that you can't control,” says Alessandro Serra, MD, PhD, a neurologist at University Hospitals Cleveland Medical Center in Ohio. “The tremor can affect your hands, arms, legs, or even your head and vocal cord muscles."

People with MS get tremors when plaques, or damaged areas, develop along the nerve pathways responsible for voluntary muscle movement and balance.

How much of an impact they have on a person’s life varies from one individual to another.

Dario Anastasio, 62, of Newington, Connecticut, had to give up his job as a computer systems engineer because of his tremors.

“Before I was diagnosed with MS, I would have tremors in my hands, but I could still write and use a computer,” Anastasio says. The tremors worsened after his 2007 diagnosis with MS.

Linda Roudebush, 62, of Austin, Texas, is not so troubled by the tremors in her left hand. “I am right-handed,” she says. “So the tremor in my left hand is an inconvenience, but not all that bothersome. I don’t take anything for it, and I use the shaking hand to scratch an itch or give a back massage,” she jokes.

Different Types of Tremors


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Thursday, December 19, 2019

A Great Resource provided by The National Multiple Sclerosis Society - Find Doctors & Resources


Healthcare Providers:   Medical providers that specialize in the diagnosis and treatment of conditions and symptoms related to MS.

Emotional Support:   Licensed professionals and community based programs providing caregiver support, family support and education.

Legal Resources:   Attorneys and legal services with expertise in claims and civil matters related to MS

Financial Assistance:  Programs offering financial assistance, grants or loans for accessibility, housing and pharmaceutical needs.

Mobility & Accessibility:  Services and providers for home accessibility, ramps, elevators and lifts, transportation, vehicles and mobility equipment.

Independent Living:   Local aging services that also serve individuals with disabilities of any age, centers offering independent living skills training, personal advocacy, information and referral and peer counseling and access to service dogs

Medical & Assistive Equipment:  Durable medical equipment, incontinence supplies, wheelchairs (power and manual), scooters, hoyer lifts, aids to daily living products such as reachers (reaching device), adaptive eating utensils, canes and walkers, and cooling vests/cooling equipment.


CLICK:  TO FIND DOCTORS and RESOURCES


The National Multiple Sclerosis Society does not endorse any of the providers listed here. The information contained in Find Doctors & Resources is thought to be reliable but is not guaranteed to be accurate. It is compiled from provider descriptions of their own services as well as other public data sources and is subject to change without further notice. For those providers listed as Partners in MS Care or Center for Comprehensive Care, the Society approves those resources to ensure they meet specific criteria of the National MS Society.


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Young MS Researchers Share Findings




Depression is higher in African American women regardless of income, and anxiety is higher in 
African American women with the lowest income, according a study 
presented by Jagriti Bhattarai, MD.
The emotional needs of African American women with MS, stopping nerve damage, picturing cognitive problems and complementary and alternative medicine were among the topics presented at the recent Tykeson Fellows Conference.

READ About these study findings by clicking here


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